There are organizations all over the world that are dedicated to helping people with hemophilia and their loved ones. To make your search a little easier, we’ve listed some of the the more well-known ones below:
National Hemophilia Foundation
The NHF started in 1948, with the goals of discovering better treatments and eventually a cure for bleeding and clotting disorders. The foundation wants to prevent additional problems these diseases may cause by providing education, advocacy and research. If you feel that you’re isolated from the hemophilia community or if you need support or information, you can find your local NHF branch here.
Coalition for Hemophilia B
This organization is a bit more niche as it focuses on one type of hemophilia. This is because the founders’ son had hemophilia B, which became the impetus for this coalition they created in the ’90s. The aim is to make quality of life the focal point of treatment for patients with hemophilia. Their website provides information about the latest hemophilia B research and it’s a primary form of support and information for people both nationally and internationally.
Hemophilia Federation of America
The HFA was founded in 1994 in an effort to create an organization that would take care of what the bleeding disorder community needed at the time: to advise consumers in regards to safe, affordable, and obtainable blood products and health coverage and a better overall quality of life for patients who were suffering from bleeding disorders.
World Federation of Hemophilia
The WFH has been a member of the WHO for more than 45 years. Its main purpose is to find better treatment options for people all over the world that are living with hemophilia and other inherited bleeding disorders. Its humanitarian aid program has been a incredibly valuable in helping various developing countries in their pursuit to provide treatment for all.
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