Hemophilia CHOICE Project Survey

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The Hemophilia Foundation of American (HFA) has teamed up with the Centers for Disease Control and Prevention (CDC) to create a survey for hemophilia and bleeding disorder patients who don’t currently receive care from a government-funded hemophilia treatment center (HTC).

MORE: Why shared data is important for furthering hemophilia research

The survey is designed to collate information from patients about their health experiences and the care they’ve received for their bleeding disorders in order to identify areas that need improvement.

CHOICE stands for Community Having Opportunity to Influence Care Equity and the project will help the HFA to assess what the local chapters of the organization can do to help patients more and improve services.  The survey is available in English and Spanish and does not ask for any personal information. The brochures are available to download on the website and it’s estimated the survey will take around 20 minutes to complete.

MORE: What to know about hemophilia in women

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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