The Hemophilia Foundation of American (HFA) has teamed up with the Centers for Disease Control and Prevention (CDC) to create a survey for hemophilia and bleeding disorder patients who don’t currently receive care from a government-funded hemophilia treatment center (HTC).
The survey is designed to collate information from patients about their health experiences and the care they’ve received for their bleeding disorders in order to identify areas that need improvement.
CHOICE stands for Community Having Opportunity to Influence Care Equity and the project will help the HFA to assess what the local chapters of the organization can do to help patients more and improve services. The survey is available in English and Spanish and does not ask for any personal information. The brochures are available to download on the website and it’s estimated the survey will take around 20 minutes to complete.
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