Joe is the father of two sons with hemophilia. He and his wife, Cazandra, are active members in the bleeding disorders community and often facilitate workshops both locally and nationally. Joe is a pastor in the United Methodist Church and writes a blog about spirituality and faith. You may follow his blog at www.joekmac.com.
I often get caught up thinking about things I did not do for my sons, who have hemophilia. I worry about the many deficiencies I have, and how they affect my sons’ lives. Dealing with a bleeding disorder is more than enough to worry about, but do they feel…
I started writing for BioNews, the publisher of Hemophilia News Today, almost three years ago. However, it recently dawned on me that I never mentioned why I named my column “In the Twinkling of an Eye.” While amazingly simple on the surface, the answer has deep layers that may…
In our culture, we learn at a very young age to make resolutions at the start of a new year. Unfortunately, the odds of breaking our goals are much higher than the odds of fulfilling what we set out to accomplish. UAB Medicine News reports that less than 8%…
I taught choral music in a few local school districts in the Houston metropolitan area in a former life. One year, a friend of mine in the bleeding disorders community asked if I had a group that could provide entertainment at the hemophilia Christmas party. I told her…
With all of the talk about COVID-19 vaccinations being right around the corner, I cannot help but feel like I can finally breathe. Hopefully, at this time next year the world will look back on the year past and proclaim, “We are free at last!” Life may return to normal,…
Before having children, my definition of a season of life did not contain color. Everything appeared black and white. If there was a medical issue, it lasted for a little while and soon passed. Nothing remained for long. The most significant medical problem I faced was when I broke my…
Let’s face it. This year contains one struggle after another. We continue to ask the same questions: “How do we beat this virus? Will I continue to be insured during layoffs? How will I afford quality care for my loved one in the middle of political, medical, and economic turmoil?”…
We all live according to life lessons. Not every way by which we govern our lives proves useful or affirming, but the lessons still unknowingly exist. My goal is to identify the negative patterns that I relate to the world and change them so that my actions match my desired…
One day, my youngest son, whom we affectionately call “MacDonald the Younger,” and I flew to a hemophilia conference. He could not wait to see old friends, and I could not wait to gather with my tribe and learn about advancements in treatments for those with bleeding disorders. My…
Early in the life of our son “MacDonald the Elder,” we came face to face with one of our first major medical decisions: deciding which factor product to infuse. By the time our firstborn was 2, we had chosen our hematologist, survived a first bleed, and taken a trip…
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