News

September 27, 2019September 27, 2019

Chinese Patients with Rare Diseases Lack Affordable, Accessible Treatment

News

Health insurance is largely effective for Chinese patients with rare diseases such as hemophilia when it comes to being able to utilize healthcare services and buy medication. However, affordable ... Read more

September 25, 2019September 25, 2019

Hemlibra Use in Severe Hemophilia A Could Save $3 Billion Over 20 Years, Study Estimates

News

Using Hemlibra (emicizumab) as prophylaxis lowers treatment costs considerably for people with hemophilia A compared to preventative factor (FVIII) treatment, according to an economic model study. The model predicts $47,814 in ... Read more

September 23, 2019September 23, 2019

High Rates of Undiagnosed Depression and Anxiety Found in Adults with Hemophilia, US Survey Says

News

Many hemophilia patients experience undiagnosed symptoms of depression and anxiety that can impact their ability to cope with the disease and to adhere to treatment, a U.S. survey says. ... Read more

September 20, 2019September 20, 2019

NovoSeven Linked to Low Rate of Dangerous Blood Clots in Review Study

News

Problematic thrombotic events are fairly rare in people using NovoSeven, among all types of bleeding disorders for which it is approved, including hemophilia, a review study shows. The study, “Thrombotic ... Read more

September 18, 2019September 18, 2019

NovoSeven-Hemlibra Combo Not Linked to Higher Risk of Thrombosis, Data Show

News

Simultaneous use of NovoSeven (recombinant factor VIIa, rFVIIa) and Hemlibra (emicizumab) in patients with hemophilia A is not associated with higher risk of thrombosis, new analysis of the Phase ... Read more

September 16, 2019September 16, 2019

Study: Hemlibra Is Safe, Effective in Young Hemophilia A Patients Without Inhibitors

News

Hemlibra (emicizumab) is safe and effective to treat children younger than 12 who have hemophilia type A and are negative for antibodies against synthetic factor VIII, results from a Japanese ... Read more

September 13, 2019September 13, 2019

Freeline’s Gene Therapy for Hemophilia B Is Promising, Phase 1/2 Data Show

News

Data from the first two patients treated with FLT180a, Freeline’s single-infusion gene therapy for patients with hemophilia B, showed a rise in levels of clotting factor IX to 40%, with ... Read more

September 11, 2019September 11, 2019

Hemophilia Three Times More Prevalent Worldwide Than Thought, Study Finds

News

Scientists report that hemophilia is three times more prevalent in men worldwide than previously thought and still associated with a poorer life expectancy, especially in low-income countries. Findings of ... Read more

September 9, 2019September 9, 2019

Hemlibra Given with Immune Tolerance Induction Safely Treats Children with Severe Hemophilia A, Study Finds

News

Combining immune tolerance induction, used to prevent the development of anti-factor VIII inhibitors, with Hemlibra (emicizumab) is a feasible and safe way of treating children with severe hemophilia A, a study ... Read more

September 6, 2019September 6, 2019

Cyklokapron Lessens Blood Loss, Joint Pain in Hemophilia A Patients Needing Hip or Knee Surgery, Study Reports

News

Hemophilia A patients undergoing total hip or knee replacement/reconstruction surgeries have lesser blood loss and require a lower transfusion amount if treated with Cyklokapron (tranexamic acid), a study reports. ... Read more

Pin It on Pinterest