News

August 14, 2020August 14, 2020

Novo Nordisk Resumes Phase 3 Trials of Concizumab in Hemophilia A and B

News

Novo Nordisk has resumed its Phase 3 clinical trials investigating concizumab as a potential treatment for hemophilia A and B, the company announced in a press release. The trials were paused ... Read more

August 13, 2020August 13, 2020

New Streaming Channel Showcases Rare Disease Films

News, syndicated

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the ... Read more

August 12, 2020August 13, 2020

CDC Seeks Patients’ Input to Update Guidelines for Prescribing Opioids

News

The U.S. Centers for Disease Control and Prevention (CDC) is seeking input from people who live with pain, as well as their caregivers and healthcare providers to better understand ... Read more

August 10, 2020August 10, 2020

Idelvion Helps Hemophilia B Patients Adhere to Prophylactic Treatment, Studies Show

News

Treatment with Idelvion (rIX-FP) helps children and adults with hemophilia B stick to prophylactic dosing schedules by reducing treatment burden, according to a study using clinical trial and real-world data. ... Read more

August 7, 2020August 7, 2020

Long-term Adynovate Therapy Reduces Bleeding in Severe Hemophilia A

News

Long-term prophylaxis, or preventive treatment with Adynovate continues to safely reduce bleeding events over multiple years in children and adults with severe hemophilia A without causing neutralizing antibodies, a ... Read more

August 5, 2020August 5, 2020

FVIII Prophylaxis Early in Life Improves Joint Outcomes in Hemophilia A, Study Shows

News

Starting factor VIII (FVIII) preventive therapy before the age of 2.5 years improves joint outcomes in young adults with hemophilia A compared to starting treatment later in childhood, a ... Read more

August 3, 2020August 3, 2020

FDA Clears CRYOcheck Lab Test of Factor VIII Activity in Hemophilia A

News

The U.S. Food and Drug Administration (FDA) has cleared for use CRYOcheck Chromogenic Factor VIII, Precision BioLogic‘s lab test to monitor factor VIII activity in the blood of hemophilia A patients ages ... Read more

July 29, 2020July 29, 2020

Enzyre Secures €1.4M to Advance Portable Device to Monitor Coagulation

News

Novalis Biotechnology is supporting a €1.4 million ($1.64 million) investment in Enzyre to finalize the development of a handheld diagnostic device to monitor blood coagulation status in people with ... Read more

July 27, 2020July 27, 2020

#ISTH2020 – Unmet Medical Need Found in Mild, Moderate Hemophilia A Care

News

Adults with mild and moderate hemophilia A have a substantial number of bleeds per year as well as joint problems and surgeries, revealing an unmet medical need in these ... Read more

July 24, 2020July 28, 2020

#ISTH2020 – Gene Therapy BAY 2599023 Showing Steady FVIII Activity, Safety in Trial

News

A single dose of the investigational gene therapy BAY 2599023 safely promotes a sustained production of factor VIII (FVIII), effectively preventing spontaneous bleeds in people with severe hemophilia A, a ... Read more

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