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https://hemophilianewstoday.com/forums/activity/p/979/ Tue, 17 Jan 2023 14:20:29 -0600 1 4e939d7d45d93cd1f61850dcbf233f08 Bea updated their profile https://hemophilianewstoday.com/forums/activity/p/971/ Fri, 06 Jan 2023 16:12:28 -0600 2 0f344623fbb6015b8b4a2bd3c1466b8e Sabrina Painter became a registered member https://hemophilianewstoday.com/forums/activity/p/943/ Thu, 10 Nov 2022 13:09:45 -0600 0 b321189815bbb623449f6bba7f3fd6c1 PaulC replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12421 Fri, 07 Oct 2022 14:53:52 -0500 Reply to A new class of hemophilia drugs.

Milos, there is no anti-activated protein C (anti-APC) drug on the on the market in any country. ApcinteX Ltd and Centessa Pharmaceuticals are testing (phase 1/2 clinical trial) an anti-APC drug called SerpinPC (clinical trial # NCT04073498), with results expected in October 2023. See press release… Read more

]]> e64b5a6ad9762c6ea5b4cdd7cf5505d4 Janet Bowen became a registered member https://hemophilianewstoday.com/forums/activity/p/926/ Wed, 05 Oct 2022 12:43:42 -0500 0 5eaa7c1407d22b2db18c5a789ea213ff Milos replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12409 Sat, 01 Oct 2022 16:06:15 -0500 Reply to A new class of hemophilia drugs.

Thank you, Cazandra.

]]> 55ba6b438bb0048aab5fdcdeaac12228 Chris Ramsey became a registered member https://hemophilianewstoday.com/forums/activity/p/921/ Wed, 14 Sep 2022 19:37:19 -0500 0 0cdb3a189c6de6fab5997f0fb9c719c9 David Clark became a registered member https://hemophilianewstoday.com/forums/activity/p/919/ Tue, 13 Sep 2022 19:28:15 -0500 0 4c3d11e709a6bcec403bc59e7096113e Cazandra Campos-MacDonald replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12402 Tue, 13 Sep 2022 16:27:58 -0500 Reply to A new class of hemophilia drugs.

Hi Milos,
I have reached out to a few clinicians about your question, and they have no information to share. I will keep my ears open and ask that you do the same.

Thank you!! Have a great week, Milos šŸ™‚

]]> 0f08be07278b09467b026915ce20f844 Cazandra Campos-MacDonald started the discussion Gene Therapy in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/gene-therapy-2/ Wed, 07 Sep 2022 17:30:05 -0500 Gene Therapy

Gene therapy is a hot topic with many questions to be answered. Columnist Jennifer Lynne writes about the questions she has about gene therapy and hemophilia B.

 

If gene therapy is a possibility, what questions do you have? What would help you investigate a treatment?

]]> f0cdfd945a66b440b6e348c6cb23ed3d Esther became a registered member https://hemophilianewstoday.com/forums/activity/p/916/ Tue, 06 Sep 2022 23:52:12 -0500 0 4860a9e05f8574c4f7c21fd3e83c4837 Manal became a registered member https://hemophilianewstoday.com/forums/activity/p/915/ Tue, 06 Sep 2022 12:47:57 -0500 0 4ca2a045351e15d12bce9f90dce310ff Cazandra Campos-MacDonald replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12400 Sun, 04 Sep 2022 20:28:37 -0500 Reply to A new class of hemophilia drugs.

Milos, Iā€™m doing some research and will get back to you soon šŸ™‚

]]> 4095b7d13a6aabce87037b6f98591ebd kevin powers became a registered member https://hemophilianewstoday.com/forums/activity/p/911/ Sun, 04 Sep 2022 20:09:28 -0500 0 c842456119214418e9f4bb89b7806a7e Milos replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12398 Sat, 03 Sep 2022 05:35:41 -0500 Reply to A new class of hemophilia drugs.

Activated protein C inhibitor for correction of thrombin generation in hemophilia A blood and plasma.

]]> 8b14eb927a5b18aa74c7fdc522620268 Cazandra Campos-MacDonald replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12397 Fri, 02 Sep 2022 21:34:21 -0500 Reply to A new class of hemophilia drugs.

Hi Milos, May I ask which drug you are referring to? Are you talking about the recent news regarding gene therapy?

]]> 1feb110571536aac02f8b739ab56b39d Milos started the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/ Thu, 01 Sep 2022 14:36:50 -0500 A new class of hemophilia drugs.

Is the mentioned drug registered anywhere in the world?

 

]]> 1d26ef6d4e48f6c17fc46ce827b6c7b0 Cazandra Campos-MacDonald started the discussion Conditional Approval for Gene Therapy in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/conditional-approval-for-gene-therapy/ Tue, 30 Aug 2022 15:19:15 -0500 Conditional Approval for Gene Therapy

This is huge news for the bleeding disorder community! See the link below.

https://hemophilianewstoday.com/news/roctavian-hem-a-gene-therapy-given-conditional-approval-eu/

 

What do you think?

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