Hemophilia News Today Forums | Site-Wide Activity https://hemophilianewstoday.com/forums/activity/ Activity feed for the entire site. Fri, 18 Sep 2026 21:59:32 -0500 https://buddypress.org/?v=3.4.4 en-US 30 hourly 2 bebaea8f7eea21530bb290bb5f0ec364 Community Member started the discussion Does hemophilia run in your family, or were you the first to be diagnosed? in the forum Hemophilia Inheritance https://hemophilianewstoday.com/forums/forums/topic/does-hemophilia-run-in-your-family-or-were-you-the-first-to-be-diagnosed/ Wed, 16 Sep 2026 14:19:24 -0500 Does hemophilia run in your family, or were you the first to be diagnosed?

For some people, hemophilia has been part of their family’s story for generations. For others, the diagnosis comes as a complete surprise, with no known family history.

Does hemophilia run in your family, or were you (or your loved one) the first to be diagnosed? Did the diagnosis lead other relatives to get tested or recognize signs they had…

Read more

]]> 6b980698b6fda762e38b194583a620fb Community Member replied to the discussion Forum Improvements - Feedback Appreciated! in the forum Using Our Forums https://hemophilianewstoday.com/forums/forums/topic/forum-improvements-feedback-appreciated/#post-12718 Mon, 14 Sep 2026 08:28:01 -0500 Reply to Forum Improvements - Feedback Appreciated!

Hi! It would be great if we had easier access to the platform. I find a sign-up cumbersome especially for first-timers. Aside from that though, would love to see channels or groups for special interests, hobbies or life stages so the world won’t feel so small or different. Maybe add in some daily/weekly conversation starters too.. (top of my…

Read more

]]> 3c661aa7f82696965e9e82cfcaf620f7 Community Member started the discussion Forum Improvements - Feedback Appreciated! in the forum Using Our Forums https://hemophilianewstoday.com/forums/forums/topic/forum-improvements-feedback-appreciated/ Wed, 09 Sep 2026 22:25:03 -0500 Forum Improvements - Feedback Appreciated!

Hi everyone, the Hemophilia News Today team is looking to make some improvements to how the forums and groups on this site function. Our goal is to improve the experience for all you so that participating in this community is easier and more valuable. If you have any specific suggestions for improvement, complaints, or experiences you’d like us…

Read more

]]> e6035eada843e83a2c9cf4a018771dc3 Community Member posted an update: What’s one adjustment you’ve made because of hemophilia […] https://hemophilianewstoday.com/forums/activity/p/1258/ Wed, 15 Jul 2026 18:14:09 -0500 What’s one adjustment you’ve made because of hemophilia that people without it probably wouldn’t think twice about? ]]> 0 7f1149309e875abcdd50aed51054b593 Community Member posted an update: What's a "bad" or "banned" activity that you still […] https://hemophilianewstoday.com/forums/activity/p/1230/ Wed, 17 Jun 2026 10:06:34 -0500 What’s a “bad” or “banned” activity that you still do in spite of hemophilia? And how do you keep yourself safe, yet happy?

To start: I like martial arts and boxing. To keep safe, I gauge my body and I don’t force the movements. I love training and I avoid sparring.

]]> 1 abd412a2c4c9d24054006088385a7c35 Community Member replied to the discussion Treatment Options in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/treatment-options/#post-12685 Mon, 08 Jun 2026 22:16:56 -0500 Reply to Treatment Options

Hi Caz, I’ve been looking into Hympavzi (Marstacimab). Anyone else here has experience about it? Specifically for Severe Haemophilia B with previous inhibitor but not undetectable. Including the use of Cevenfacta as prophylaxis for bridge and treatment for breakthrough bleeds,

]]> 9dd426f92d605dca68820163905f77a9 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1207/ Thu, 29 Jan 2026 23:11:47 -0600 0 42feefae904dbce96f2d34f81f3e82a6 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1195/ Wed, 22 Oct 2025 17:13:48 -0500 0 6b3a9685ee3a10e07ef1b1800efa7be7 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1194/ Wed, 22 Oct 2025 17:12:55 -0500 0 324162f16d6c64ebc50565a7acec5f71 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1182/ Tue, 12 Aug 2025 19:41:07 -0500 0 8e996f450ae24913793c59b1f87f6603 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1181/ Tue, 12 Aug 2025 19:19:36 -0500 0 03f2c2e7dbb3d2db798b49278371b67a Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1180/ Tue, 12 Aug 2025 19:19:33 -0500 0 e5cb75c252abb813bee7824977f2ec6f Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1164/ Tue, 24 Jun 2025 15:48:41 -0500 0 c41c8947ab6cc0d384683c2c9b4a8352 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1163/ Fri, 20 Jun 2025 18:34:46 -0500 0 3463e4fe82160422cf6b35fdb2cd6c81 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1139/ Tue, 29 Apr 2025 17:47:27 -0500 0 e2979323dc30bafe12d59f4189cc845c Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1133/ Wed, 02 Apr 2025 19:48:01 -0500 0 d5dba47f42477533f798fd9c5b26ede2 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1093/ Fri, 07 Feb 2025 20:04:19 -0600 0 eda1c5ee552fd83fff9356bd0490ee82 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1085/ Thu, 12 Dec 2024 17:30:42 -0600 0 9cd2c79fef5221dcff0fcf9534425d01 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1084/ Thu, 12 Dec 2024 17:30:41 -0600 0 c9a11376a8da56bcd3e8d2dc06f2c900 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1083/ Thu, 12 Dec 2024 17:30:39 -0600 0 aee1c01871d6dab9bdbd41a0a8d672db Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1059/ Wed, 12 Jun 2024 13:03:09 -0500 0 aa4d5d217be8a673fdc2084a72021b5a Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1049/ Tue, 02 Apr 2024 18:38:40 -0500 0 bb4c5dfe41e2a831ab9d048c23a994ee Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1048/ Tue, 02 Apr 2024 18:38:38 -0500 0 18c305aac6dc1717d591f52e3857b7c7 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1043/ Wed, 06 Mar 2024 14:21:28 -0600 0 a9d0697a09f6712246b39c31a09b0963 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1041/ Thu, 29 Feb 2024 14:45:09 -0600 0 2e493675faf2921f9b886711dfff0396 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1032/ Mon, 06 Nov 2023 19:04:31 -0600 0 99688a42100f2dc7e01bdc796fdab08d Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1030/ Thu, 19 Oct 2023 16:16:46 -0500 0 c4d63190e29572526655e7b2a35ccd49 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1029/ Thu, 19 Oct 2023 16:15:50 -0500 0 ccabe7112535397ebf61f6acdf350827 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1028/ Thu, 19 Oct 2023 16:15:49 -0500 0 1b459433794e83e31a1c8188ce7ca00f Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1020/ Fri, 01 Sep 2023 23:34:58 -0500 0 11596244194aad7c8afb7aa9b197f652 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1015/ Tue, 01 Aug 2023 18:47:01 -0500 0 686ff42b5d6a5195d8a11353164928b0 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1014/ Tue, 01 Aug 2023 18:47:00 -0500 0 3434206b7ecdf00cdefa832d412b850d Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/1006/ Thu, 22 Jun 2023 13:19:33 -0500 0 dcae0a8cfa3d38b0772aee54547e64d3 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/997/ Mon, 06 Mar 2023 14:35:40 -0600 0 28666fa3a1a7220bf9e1baebacfb73eb Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/980/ Tue, 17 Jan 2023 14:21:09 -0600 1 6bd52a6e2f5ccd798bd1abd28947a3df Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/979/ Tue, 17 Jan 2023 14:20:29 -0600 1 4e939d7d45d93cd1f61850dcbf233f08 Community Member updated their profile https://hemophilianewstoday.com/forums/activity/p/971/ Fri, 06 Jan 2023 16:12:28 -0600 2 0f344623fbb6015b8b4a2bd3c1466b8e Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/943/ Thu, 10 Nov 2022 13:09:45 -0600 0 b321189815bbb623449f6bba7f3fd6c1 Community Member replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12421 Fri, 07 Oct 2022 14:53:52 -0500 Reply to A new class of hemophilia drugs.

Milos, there is no anti-activated protein C (anti-APC) drug on the on the market in any country. ApcinteX Ltd and Centessa Pharmaceuticals are testing (phase 1/2 clinical trial) an anti-APC drug called SerpinPC (clinical trial # NCT04073498), with results expected in October 2023. See press release… Read more

]]> e64b5a6ad9762c6ea5b4cdd7cf5505d4 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/926/ Wed, 05 Oct 2022 12:43:42 -0500 0 5eaa7c1407d22b2db18c5a789ea213ff Community Member replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12409 Sat, 01 Oct 2022 16:06:15 -0500 Reply to A new class of hemophilia drugs.

Thank you, Cazandra.

]]> 55ba6b438bb0048aab5fdcdeaac12228 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/921/ Wed, 14 Sep 2022 19:37:19 -0500 0 0cdb3a189c6de6fab5997f0fb9c719c9 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/919/ Tue, 13 Sep 2022 19:28:15 -0500 0 4c3d11e709a6bcec403bc59e7096113e Community Member replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12402 Tue, 13 Sep 2022 16:27:58 -0500 Reply to A new class of hemophilia drugs.

Hi Milos,
I have reached out to a few clinicians about your question, and they have no information to share. I will keep my ears open and ask that you do the same.

Thank you!! Have a great week, Milos 🙂

]]> 0f08be07278b09467b026915ce20f844 Community Member started the discussion Gene Therapy in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/gene-therapy-2/ Wed, 07 Sep 2022 17:30:05 -0500 Gene Therapy

Gene therapy is a hot topic with many questions to be answered. Columnist Jennifer Lynne writes about the questions she has about gene therapy and hemophilia B.

 

If gene therapy is a possibility, what questions do you have? What would help you investigate a treatment?

]]> f0cdfd945a66b440b6e348c6cb23ed3d Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/916/ Tue, 06 Sep 2022 23:52:12 -0500 0 4860a9e05f8574c4f7c21fd3e83c4837 Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/915/ Tue, 06 Sep 2022 12:47:57 -0500 0 4ca2a045351e15d12bce9f90dce310ff Community Member replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12400 Sun, 04 Sep 2022 20:28:37 -0500 Reply to A new class of hemophilia drugs.

Milos, I’m doing some research and will get back to you soon 🙂

]]> 4095b7d13a6aabce87037b6f98591ebd Community Member became a registered member https://hemophilianewstoday.com/forums/activity/p/911/ Sun, 04 Sep 2022 20:09:28 -0500 0 c842456119214418e9f4bb89b7806a7e Community Member replied to the discussion A new class of hemophilia drugs. in the forum Hemophilia Treatment https://hemophilianewstoday.com/forums/forums/topic/a-new-class-of-hemophilia-drugs/#post-12398 Sat, 03 Sep 2022 05:35:41 -0500 Reply to A new class of hemophilia drugs.

Activated protein C inhibitor for correction of thrombin generation in hemophilia A blood and plasma.

]]>