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    • #11896
      Kevin Schaefer

      Registration is now open for Global Genes‘ 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be live-streamed from California Sept. 27-29, and some seats also are available for attending the event in person in San Diego.

      This conference provides people in rare disease communities a chance to connect with each other and share experiences. This year’s event focuses on three central themes: living with a rare disease and patient support, tactics, and capacity building for advocates, and leadership skills labs. You can read more about it here.

      Are you planning on attending this summit?

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