Short Bio |
I Have severe Hemophilia B and currently on weekly prophylaxis. Whilst it is exciting to hear of experimental developments It is disappointing to realise that it may still be a long time before people like myself (in mid 70s but otherwise healthy) see any benefit from them. I have participated in trials before for the longer lasting factor IX and would be more than willing to participate in these new trials – but these days it all seems to be happening in China and the USA.
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How did you hear about us? |
Honestly not sure – it just appeared in my email a short while ago
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How long have you or the person that you are caring for had Hemophilia? |
whole life though not diagnosed until about 4 years of agge
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