13 Tips for Managing Your Child’s Hemophilia

Life with hemophilia can be challenging but there are ways that you can manage the disease to ensure your child leads as normal a life as possible. To help you navigate your child’s illness and help prevent bleeds, we’ve put together a list of tips.

MORE: How to prepare for your child’s first hematologist’s appointment.

1. Speak to healthcare professionals about the best ways to keep your child safe and what to do in case of an emergency.

2. Stay up to date with all the latest new about hemophilia so you can be proactive in your child’s treatment.

3. Look for a local support group or join an online community with members who will understand and support you and your child’s needs.

4. Always keep your child informed of his illness and treatment using age-appropriate terminology so that he understands what he needs to do if he injures himself.

5. Ensure your child knows that his hemophilia is not his fault and is not because of anything he’s done.

6. Limit the risks of injuries in your home by ensuring there are no tripping hazards, sharp edges or other dangers.

7. Ensure your child always wears a safety helmet, elbow and knee pads when riding his bike.

8. Insist your child wears his seatbelt on car journeys.

9. Avoid play areas which look unsafe.

10. Keep popsicles in the fridge as they help to control small mouth bleeds.

11. Attend to any bleeds or injuries immediately.

12. Ensure other caregivers such as family members, babysitters, sports coaches, and school staff know how to deal with bleeds and injuries.

13. Have your child wear a medical bracelet or necklace so others may be alerted in case of emergency.

MORE: Understanding the basics of hemophilia.

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.