Columns

March 25, 2021March 23, 2021

Both Science and Religion Guide Me When Answering, ‘Why Me, Dad?’

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Although my sons, now 15 and 24, are different as night and day, they both began asking questions about hemophilia at about age 5. I tackled the tough issues they ... Read more

March 24, 2021March 22, 2021

Sometimes a Fun Day With Friends Outweighs the Pain That Follows

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My youngest son, Caeleb, became best friends with a girl named Taylor in sixth grade. Then, our family moved away to Texas, but returned to New Mexico two years later. ... Read more

March 23, 2021March 12, 2021

Dumping the Imposter Syndrome and Embracing Hemophilia as a Woman

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Sometimes I feel like I don’t belong. I’m a misfit, an imposter. I feel fine and haven’t had a bleed in almost a month. Do I really have hemophilia? Do ... Read more

March 22, 2021March 18, 2021

How I’m ‘Future-proofing’ for My Chronically Ill Family

Columns, HemoWife - a Column by Alliah Czarielle

I have a number of friends working as financial advisors. From time to time, they offer me life insurance policies, stock market deals, and other similar investments. As a young ... Read more

March 18, 2021March 16, 2021

Removing the Medical Cabinet From Our Kitchen Inspires Hope

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I faced my old friend, the medical supplies boxes, still not believing the task ahead of me. I almost spoke to the six boxes stacked on top of one another. ... Read more

March 15, 2021March 11, 2021

I Designed a Ring Inspired by Hemophilia to Help Raise Awareness

Columns, HemoWife - a Column by Alliah Czarielle

My design prototype for a jewelry piece commemorating hemophilia just rolled off the manufacturing line. The Hemo Ring will be posted on our Instagram store soon, just in time for ... Read more

March 11, 2021March 9, 2021

CRISPR Gene Therapy Gives Me Hope for a Future Without Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

On Sunday mornings in my home, I usually watch “CBS Sunday Morning,” hosted by Jane Pauley. Last week, an interview caught my eye. The segment featured Dr. Jennifer Doudna, who ... Read more

March 10, 2021March 8, 2021

Isolation Has Had Lingering Effects on My Son’s Mental Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my youngest son, Caeleb, was in elementary school, my main objective was to get him to school every day and not receive a phone call from the nurse. That ... Read more

March 9, 2021March 5, 2021

Hemophilia Care Entails More Than Treating Bleeds

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Grab the factor, syringes, butterfly needles, drapes, Band-Aids, self-adherent wrap, sharps container, and tourniquet! These things are usually what comes to mind when we think about hemophilia care. Medical supplies ... Read more