Columns

August 15, 2019August 13, 2019

A Coloring Book Prompts Reflection on My Choice of a Road to Treatment

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I was with my son in a store recently when a coloring book for adults caught my eye. Ordinarily, I wouldn’t have given it a second glance. But what ... Read more

August 14, 2019August 12, 2019

A Letter to My Younger Self: Looking Back at My Son’s Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It’s easy to look back and think about what one could have done differently. Handling a crisis with grace rather than anger, calling the doctor immediately instead of waiting, ... Read more

August 13, 2019August 12, 2019

Could Relating Common Procedures to Pain Scales Help Patients?

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Many of us have been there. We’ve walked into a medical office in pain, seeking relief. As the doctor completes an evaluation, we are asked that common and potentially ... Read more

August 8, 2019August 5, 2019

The Faces of Worry: Raising Children with Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

There is never a time that I do not worry about my sons. “MacDonald the Older” is 23, but not a day goes by that I do not feel ... Read more

August 7, 2019August 5, 2019

When a Bleed Ruins the Day, There Are Still Lessons to Be Learned

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

It’s quite difficult to focus on any sense of positivity when bleeds become more frequent. After a bleed-free streak that lasted over six months, it was easy to be ... Read more

August 7, 2019August 5, 2019

When Plans Go Awry: I’m Trying My Best to Be Grateful

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Raising two sons with hemophilia has taught me to be flexible. I have learned that my best attempts to make plans can be thrown out the window in an ... Read more

August 6, 2019August 1, 2019

An Open Letter to Hemophilia Parents

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Dear Hemophilia Parent, Today, I write to you. I am a child with hemophilia. I am taking the liberty of speaking on behalf of your child, who may be ... Read more

August 5, 2019August 5, 2019

My Husband and I Are Blessed in Our First Year of Marriage

Columns, HemoWife - a Column by Alliah Czarielle

As I pen this column, my husband, Jared, and I are celebrating a full year of marriage. It’s been a blissful one, with so many milestones reached and memorable ... Read more

August 1, 2019July 30, 2019

Aiding Our Sons in Building Self-Esteem

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

In my experience, raising two children with a chronic illness includes the usual worries that parents and other primary caregivers often face. It also creates issues that directly address ... Read more

July 31, 2019July 29, 2019

Looking to My Sons’ Futures with Hope

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I have big dreams for my sons. I want them to go to college, have successful careers, and find loving partners. I hadn’t thought that these things would be ... Read more