Columns

February 14, 2019February 13, 2019

We Will Continue to Rebuild Our Lives

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

February 2014 proved to host the last bleed “MacDonald the Younger” faced thus far. The treatment plan created by our Hemophilia Treatment Center worked like a charm, and in ... Read more

February 13, 2019February 12, 2019

My First Steps into Parenthood

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

As I write this, I’m bedridden from a bleed in my right hip. I’m learning what it means to have both hemophilia and a baby girl. Although I could ... Read more

February 13, 2019February 12, 2019

What Are the Things That Most Defines Us?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The following is a group activity I like to do in some of the workshops and presentations that I give. Each person has 16 slips of paper and I ... Read more

February 11, 2019February 8, 2019

To My Husband, the Father of My Daughter

Columns, HemoWife - a Column by Alliah Czarielle

To the father of my daughter, Thank you for being present from the very beginning of my pregnancy — when those two lines first appeared, and you told me ... Read more

February 7, 2019February 5, 2019

This Is Way Beyond My Understanding

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My youngest son, wife, and I just returned from an appointment with our hematologist concerning plans for treatment. In the twinkling of an eye, our worlds changed. We will ... Read more

February 6, 2019February 4, 2019

My Son Progressed from Severe Hemophilia to Mild, and I’ll Take It

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior Caeleb is about to start a new chapter in his life with hemophilia; it’s one I never imagined I’d see. About nine months ago, Caeleb began ... Read more

January 31, 2019January 30, 2019

There Is Lifesaving Wisdom and Care in the Hemophilia Community

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Thank goodness for the great friendships that we forge along the way. Those of us who live with chronic illnesses learn the most about caring for our loved ones ... Read more

January 30, 2019January 29, 2019

A Port Removal and New Beginnings

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Friday is a big day. My husband and I will take Caeleb to the Hemophilia Treatment Center for bloodwork. If all looks well, we may discuss removing his port-a-cath. Not ... Read more

January 28, 2019January 25, 2019

I’m a Mommy Now: Reflections on New Parenthood

Columns, HemoWife - a Column by Alliah Czarielle

On Friday, Jan. 18, my husband Jared and I finally had our baby girl. We named her Melanie Citrine. Labor was perhaps the most physically challenging thing I’ve ever ... Read more

January 24, 2019January 23, 2019

It’s Not Our Fault!

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Those of us who either have caregivers or serve as caregivers for others with chronic illness know what it is like to feel as if we are the cause ... Read more