Columns

September 19, 2019September 17, 2019

The Unwritten Rules of Processing Information

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

One of my favorite educational philosophers is Ruby Payne. Payne focuses on the unwritten rules of social classes and how various groups respond to and receive information. Payne suggests ... Read more

September 18, 2019September 16, 2019

Cutting Remarks Can Harm Those with Invisible Illness

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior, Caeleb, has been in great health for the past five years. Five years of the occasional ear infection, strep throat, or allergies, but no bleeds. In ... Read more

September 17, 2019September 17, 2019

Life Between Peak and Trough

Columns, The Forgotten Factor - a Column by Shellye Horowitz

One of the challenges for individuals with hemophilia — whether severe, moderate, or mild — is bleeds. Often people with hemophilia will struggle with bleeds into their joints. The ... Read more

September 16, 2019September 12, 2019

A Little Money Is a Big Deal When a Partner Has a Disability

Columns, HemoWife - a Column by Alliah Czarielle

I lost some money today during an online transaction. It was 3,150 Philippine pesos (around $60). The amount was a client’s payment for a product she had bought from ... Read more

September 13, 2019September 11, 2019

Hemophilia in Fiction: Where Is It?

Columns, Stories from the Road - a Column by Ann Kendall

Last week, I read Gill Paul’s latest novel, “The Lost Daughter.” The book is a historical fiction account of Russia’s Romanov family. It is well-known that the Romanovs and ... Read more

September 12, 2019September 10, 2019

Let Us Cross the Bridge

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

A few years ago, my family and I attended an inhibitor symposium in San Francisco. While the conference was jam-packed with incredible information, we did have a little free ... Read more

September 11, 2019September 9, 2019

Building Confidence in My Identity as a Father

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

As time passes, I can feel both the joys and the pressures of fatherhood. My life has centered around our daughter’s needs and ensuring that she is always happy ... Read more

September 11, 2019September 9, 2019

I Am Grateful for My Son’s Marching Band Role, Despite His Joint Pain

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My 13-year-old son Caeleb has had five years without experiencing any bleeding episodes. He developed an inhibitor at 11 months old, which is still active. Sometimes I find it ... Read more

September 10, 2019September 5, 2019

My Hemophilia Is an Invisible Disability

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When you look at me, you’ll see a quirky, colorful, loud, and active person, yet at the same time, I am reserved. I am of average height and weight, ... Read more

September 9, 2019September 5, 2019

Returning to the Gym Is a Worthwhile Investment of Time and Money

Columns, HemoWife - a Column by Alliah Czarielle

The smell of rubber. The clanging of metal plates against one another. The sight of sweaty bodies heaving, struggling. Towels slung over shoulders. Muscles popping out of the chiseled ... Read more