Columns

March 20, 2019March 18, 2019

Bleeding Disorders Awareness Month: The Comfort of a Port

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The unimaginable has happened. My youngest son, Caeleb, had his port removed. Of course, when someone with a bleeding disorder has a port, it’s usually not forever, so why ... Read more

March 14, 2019March 13, 2019

Ready, Set … Off to the Hospital?!

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

So, we are in the car. Everyone is in their respective seats. We are all looking forward to our vacation. The car is filled with suitcases and excitement. Then, ... Read more

March 13, 2019March 12, 2019

The Struggles of Dating with a Chronic Illness

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

Looking at myself now, my younger self never would have expected me to be where I am. Recalling my younger years, I remember having anxiety about being alone when ... Read more

March 13, 2019March 12, 2019

Bleeding Disorders Awareness Month: Being Present

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

“I’m so sorry. What can I do? I am here if you need me.” When we hear bad news about someone we love, most of us struggle to find ... Read more

March 7, 2019March 6, 2019

The Unique MacDonald Family Vocabulary

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Every family speaks their own language. Mine certainly does. It is like a secret code that is unbreakable outside of our house, used to inform family members how we feel ... Read more

March 6, 2019March 4, 2019

Bleeding Disorder Awareness Month: The Hemophilia Holocaust

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The 1980s were my favorite decade. I was in high school, and my music was the most important thing in my life. I practiced hard for auditions in the ... Read more

March 4, 2019March 1, 2019

As a New Mom, I Want Only the Best for My Daughter’s Health

Columns, HemoWife - a Column by Alliah Czarielle

Baby Cittie turned a month old on Feb. 18. I’ve noticed that her leg has sported a largish gray spot resembling a bruise since birth. Although it has faded, ... Read more

February 28, 2019February 27, 2019

Why Am I So Angry?

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

In past columns, I discussed my frustrations when anger rears its ugly head out of the shadows of my consciousness and takes hold of me. It isn’t pretty, nor ... Read more

February 27, 2019February 26, 2019

I Have a New Perspective, but I Still Remember the Past

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

In my home these days, hemophilia is like a family member who stops by for a fleeting visit — just long enough to say hello and give a quick ... Read more

February 21, 2019February 20, 2019

Removing Port Number 7

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

This week, we will consult with the surgeon who will have placed and removed six of my son’s seven port-a-caths. There will not be an eighth foreign object in “MacDonald ... Read more