Columns

May 13, 2020May 11, 2020

What I Remember as the Mother of Newly Diagnosed Children

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I have celebrated Mother’s Day, as a mom, for 24 years. In those years I’ve experienced tremendous joy and insurmountable grief. Some of my deepest grief came right after ... Read more

May 11, 2020May 7, 2020

4 Tips for Dealing with Caregiver Fatigue

Columns, HemoWife - a Column by Alliah Czarielle

Spoiler alert: This column shares brief plot details from the Netflix series “Atypical.” Caregiver fatigue is real. It’s normal, and people should talk about it. Lately, my husband and ... Read more

May 8, 2020May 7, 2020

Surveys on the Sidewalk

Columns, Stories from the Road - a Column by Ann Kendall

I first noticed the survey as I headed down the street while the sun was rising last Sunday morning. A rock painted bright orange with the words “poll of ... Read more

May 7, 2020May 6, 2020

Life May Be Difficult, but We’ve Got This

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Families who live with chronic illness have quickly learned to place trust in medical teams to determine the best course of action. If doctors and nurses suggest we quarantine, ... Read more

May 6, 2020May 4, 2020

Letting My Child Grow Up While Remaining His Advocate

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I used to be great about determining if my now 14-year-old son Caeleb was having a bleed. Identifying the symptoms of a joint bleed was second nature to me. ... Read more

May 5, 2020May 1, 2020

Protecting Hemophiliacs from the Unknowns of COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Our hemophilia community has been here before. A novel virus — previously, it was HIV — hit the world, and our community was uncertain about how it would affect ... Read more

May 4, 2020April 30, 2020

What Happens When the Pandemic Ends?

Columns, HemoWife - a Column by Alliah Czarielle

What’s new, month of May? Why hello there, extended coronavirus lockdown!   Our community quarantine was set to end on April 30. In the last few days of April, ... Read more

April 29, 2020April 30, 2020

Remembering Our Other Family on the Front Lines

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Losing family members is hard. Long-lived lives that come to an end, distance that prevents relatives from remaining close, and estrangements following family squabbles are a few ways to ... Read more

April 27, 2020April 23, 2020

Why We’re Planning to Get a Dog

Columns, HemoWife - a Column by Alliah Czarielle

My husband, Jared, and I recently talked about getting a dog. I’m excited and can’t wait. We spent an entire night flipping through pictures of various dog breeds. We ... Read more

April 22, 2020April 30, 2020

Giving Thanks for Peace While in Self-quarantine

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

If I had to define my self-quarantine in one word, it would be peace. I live in a peaceful, small, rural town. My street is quiet and my porch has ... Read more