Columns

January 22, 2020January 20, 2020

How Do You Know When a Child’s Pain Is Real?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Parenting is not easy. And when you have a child with a rare bleeding disorder such as hemophilia, it is exponentially more difficult. Not only are you dealing with ... Read more

January 21, 2020January 17, 2020

Horrible Periods Are Not Necessary

Columns, The Forgotten Factor - a Column by Shellye Horowitz

We grow up hearing our mentors — women we respect and love — regularly complain about menses. Periods seem to be a fairly universal inconvenience and bother. However, I ... Read more

January 20, 2020January 16, 2020

Sometimes I Need to Take My Mind Off You

Columns, HemoWife - a Column by Alliah Czarielle

The new year is a wonderful time. To many of us, it’s a symbol of fresh hope and new beginnings. I greeted January with many dreams and the hope ... Read more

January 16, 2020January 14, 2020

Wanting More Won’t Stop My Family from Being Content Now

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My son couldn’t walk, and placing him in a wheelchair proved to be impossible. Internal bleeding into a knee or ankle forced my “stinky boy” to remain in bed. ... Read more

January 15, 2020January 13, 2020

2019 Was Rough, So I’m Embracing a New Year

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

With 2019 behind us, it’s time for everyone to start anew and welcome 2020 into their lives. It’s hard to be fond of 2019 considering the impact my chronic ... Read more

January 15, 2020January 13, 2020

Remembering the Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I received an email from a friend I hadn’t heard from in some time. She told me that her nephew and his wife just had a baby and he ... Read more

January 14, 2020January 10, 2020

Women Get Inhibitors, Too, and Should Be Tested Regularly

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Recently, I was browsing the website of the National Hemophilia Foundation and came across a series of videos encouraging people with hemophilia to have regular testing for inhibitors. As ... Read more

January 13, 2020January 9, 2020

The Joys of an Occasional Reprieve

Columns, HemoWife - a Column by Alliah Czarielle

I’d been sick with acute respiratory troubles for almost a week. Not a minute had gone by without a sniffle or a sneeze. My sinuses had been painful and ... Read more

January 9, 2020January 7, 2020

I’m Thankful for Lessons Learned

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My family entered the hemophilia community more than 23 years ago with the birth of my oldest son. During our time with the bleeding disorders community, my wife and ... Read more

January 8, 2020January 6, 2020

It’s Time to Let Go of the Items That Haunt Me

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I have begun the year on a high note: I can park both cars in my garage. My family pitched in to help with a clear out. We tossed ... Read more