Columns

August 16, 2018August 17, 2018

The Dreaded ‘Beginning of School’ Question

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

“MacDonald the Younger” is entering the seventh grade this year. His health is terrific, and for the first time in his life, there is very little fear about participating ... Read more

August 15, 2018August 14, 2018

I Will Not Be Quick to Blame My Child’s School

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Having a bleeding disorder can be frightening. In the beginning, it is normal to think about the what-ifs when you’re unsure of what to expect. “What if I don’t ... Read more

August 13, 2018August 10, 2018

Help Me Help You: A Carer’s Perspective

Columns, HemoGirlfriend - a Column by Alliah Czarielle

Last week, just after our wedding, Jared got a shoulder bleed. Jared has severe hemophilia B, but he does not get bleeds often. When he does, it’s almost like ... Read more

August 9, 2018August 9, 2018

Our Family’s Second Hemophilia Diagnosis Was Harder than the First

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

  My eldest son was about to celebrate his ninth birthday. He had attended a fantastic performing arts camp. My wife and I bought Happy Meals for the entire ... Read more

August 8, 2018August 6, 2018

Thinking About Finances and Fatherhood

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

The topic of fatherhood is often an awkward one to talk about with other men. To an extent, I have that same sort of apprehension as I always find ... Read more

August 8, 2018August 6, 2018

You Can Advocate for Your Child with These Back-to-school Tips

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Summer vacation flies by so quickly! We start preparing for the new school year by shopping for new clothes, school supplies, and shoes. However, prepping for school when your ... Read more

August 2, 2018July 31, 2018

Life Can Change In an Instant

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

In an instant, things can change and redefine who we are. One minute life appears to take us down one road, and then we encounter something that brings us ... Read more

August 1, 2018August 10, 2018

What Is a 504 Plan and Why Do I Need It?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Special education. Those two words strike fear into the hearts of many parents. “But my son doesn’t need special ed!” I know, because I was one of those moms. ... Read more

July 30, 2018July 26, 2018

Entering Married Life with a Husband Who Has Hemophilia

Columns, HemoGirlfriend - a Column by Alliah Czarielle

In a week’s time, I’ll be a 20-something married woman. I’ll be transitioning from my current “single” civil status to writing “married” on government forms. Just a few days ... Read more

July 26, 2018July 30, 2018

I Will Teach You How to Skate and Sing

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Sometimes chronic illness holds us completely captive, and we lose moments due to pain or other complications. My family is no exception, as my youngest son experienced one year. ... Read more