Columns

June 14, 2018June 12, 2018

Hemophilia Camp Sparks Joy in My Son

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My son gets off the bus. I look at his face, hoping to see an indication of how his first camp experience went. Did he have a good time? ... Read more

June 13, 2018June 13, 2018

Can Hemophilia Be a Disability?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Social media. You either love it or hate it. I must confess that I am guilty of wasting time on Facebook and Twitter, but I have used these outlets ... Read more

June 7, 2018June 5, 2018

The Lessons Our Son Taught Us One Day at the Pool

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My wife and I sat by the pool and watched our 3-year-old super fish glide through the water. The skill he displayed with a set of floaties wrapped around ... Read more

June 6, 2018June 4, 2018

It’s Time for My Son to Spend a Week at Hemophilia Camp

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

New swimming trunks, sunscreen, cap, sleeping bag — gathering these items means it’s time for hemophilia camp! My son Caeleb is so excited that he is driving his dad ... Read more

June 4, 2018June 1, 2018

How I Chose a Man with Severe Hemophilia to Be My Life Partner

Columns, HemoGirlfriend - a Column by Alliah Czarielle

When I was younger, my parents would tell me to date a particular “ideal” man. This man need not be good looking, but he’d better be a good guy ... Read more

May 31, 2018May 30, 2018

Finding the Meaning in the Word ‘Team’

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I am originally from Texas, so I know the meaning of the word “team.” The Lone Star State reveres sports organizations like no other place in the country. Friday ... Read more

May 30, 2018May 29, 2018

Showing Appreciation for the People Behind the Scenes

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a musician who has played in orchestra pits, wind ensembles, chamber groups, and orchestras. I even played antiphonal oboe one Christmas! Music is powerful. It transforms you ... Read more

May 24, 2018May 25, 2018

We Are Mighty as We Face Hemophilia Challenges Together

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Some of my most enjoyable moments are guy times with my boys. We laugh, we attempt to keep the house in order, and we succeed, despite ourselves. My sons, ... Read more

May 23, 2018May 23, 2018

My Son’s Birth Led to the Discovery of a Family Secret

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

There are moments in life that seem to disappear, while others have burned into my memory. I can remember a moment that took place 20 years ago, and my ... Read more

May 17, 2018May 15, 2018

Finding Answers Together

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Both of my sons have expressed frustration at having a bleeding disorder. After experiencing a problematic infusion, each has cried out, “I hate having hemophilia!” While they are almost ... Read more