Columns

December 5, 2019December 3, 2019

We Aren’t in Kansas Anymore

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My wife is scheduled for surgery this week in Albuquerque, New Mexico. She will be in the hospital for one or two nights. We live about 3½ hours from ... Read more

December 4, 2019December 2, 2019

How to Be Prepared This Holiday Season

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The holiday season is in full swing, and with fewer shopping days, it will be upon us more quickly than usual. While we are concerned with presents, shopping, parties, ... Read more

December 3, 2019November 27, 2019

Breaking into the Boys Club: Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Since hemophilia was discovered, it has been accepted as a male disease. No one questions that a man is struggling with hemophilia. A man with a bleeding disorder living ... Read more

November 27, 2019November 25, 2019

Giving Thanks for the Blessings in My Life

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

A “6 Years Ago Today” moment popped up in my Facebook feed recently. The notification took me back to another Thanksgiving when my son, Caeleb, was 7, and we ... Read more

November 26, 2019November 22, 2019

Gratitude on the Hemophilia Journey

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Living with hemophilia is challenging for anyone. It can be even more difficult for women who struggle to obtain a diagnosis and treatment. Despite the struggles, I am thankful ... Read more

November 25, 2019November 22, 2019

Dreams of a Better Future

Columns, HemoWife - a Column by Alliah Czarielle

My husband, Jared, and I are at a point in our lives where our careers have taken on greater significance. It seems like just yesterday when we were college ... Read more

November 22, 2019November 20, 2019

Clap After Every Pirouette

Columns, Stories from the Road - a Column by Ann Kendall

When my daughter was little, she had the most amazing dance teacher, Jenna. Jenna was a mom of boys who loved the rough and tumble, but her dance studio ... Read more

November 21, 2019November 19, 2019

Learning to Manage My Anxiety While Serving as Caregiver

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I recall an early experience with anxiety. I was standing at the back of the church, ready to appear before the congregation to offer the sacrament of communion. But ... Read more

November 20, 2019November 18, 2019

Performing My First Self-infusion Was Empowering

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

With so many injuries lately, possibly because of a lack of exercise, I found it necessary to finally learn the ropes of self-infusion. Self-infusion of critical factor is important ... Read more

November 20, 2019November 18, 2019

A New Journey: My Son’s Chronic Pain

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

For the longest time, my son Caeleb being in a wheelchair was just part of the normal workings in my home. The constant bleeds that kept him immobile were ... Read more