Columns

February 18, 2021February 17, 2021

My Family’s Angel Has Left a Mark on Our Hearts

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

When my first son was 6 months old, we experienced our initial reception into the world of hemophilia. Until that point, his bleeding disorder had not reared its ugly head. ... Read more

February 17, 2021February 15, 2021

Tips for Offering Help to a Loved One During a Crisis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

“Fine.” People have asked hundreds of times how my family and I were doing — particularly my youngest son, Caeleb, given his hemophilia — and I’ve replied with that single ... Read more

February 15, 2021February 11, 2021

Why I’d Take Many Small Bleeds Over a Large, Extended Injury

Columns, HemoWife - a Column by Alliah Czarielle

I recently asked my husband, Jared, who has hemophilia, a this-or-that question: “Would you rather have many insignificant bleeds several times a month, or big bleeds several times a year ... Read more

February 11, 2021February 8, 2021

To Move From Hopelessness to Joy, I Had to Be Honest With Myself

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

In past columns, I wrote about moments of absolute hopelessness — no more prevalent than the times when hemophilia reared its ugly head in my sons’ lives. There were many ... Read more

February 10, 2021February 8, 2021

In Caregiving, Raising the White Flag Can Be a Sign of Strength

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

There is no shame in raising the white flag when caregiving challenges become too taxing. The white flag, an international symbol used when someone seeks a truce or ceasefire, usually ... Read more

February 9, 2021February 5, 2021

I Have Hemophilia and Tattoos, and I Don’t Regret It

Columns, The Forgotten Factor - a Column by Shellye Horowitz

A few years ago, I went to a tattoo convention. Before I could enter, I was required to sign a liability release. The form said that people with bleeding disorders ... Read more

February 8, 2021February 4, 2021

Why I Don’t Always Think About Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle

When I tell people I’m married to someone with hemophilia, I get different reactions. Some people are genuinely curious and want to know more about my husband’s condition. They’ll ask ... Read more

February 4, 2021February 2, 2021

As a Parent, I Can Only Show Up With What I Know

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

One thing that struck me over the head when I became a parent was an awareness that I bring my whole self to the table. When treating bleeds and other ... Read more

February 3, 2021February 1, 2021

Let’s End the Game of Comparisons With a Little Love

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Rap sessions are common at bleeding disorder conferences. During these group discussions, people come together to talk about similar interests, such as a new diagnosis in the family, inhibitors, or ... Read more

February 1, 2021January 28, 2021

Exercising Helps Me Realize That Pain Is Necessary for Growth

Columns, HemoWife - a Column by Alliah Czarielle

After an entire year of getting little exercise, I’ve finally decided to work out again. I’d gone several months without much physical activity, so I’m starting with jump rope fitness ... Read more