Columns

February 18, 2020February 14, 2020

It’s OK to Advocate for Care

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I attended my first women-only hemophilia retreat in the fall of 2016. To say the weekend was an eye-opener would be a gross understatement. It changed my life. First ... Read more

February 14, 2020February 12, 2020

On the Road with Ross: Driving in the Winter

Columns, Stories from the Road - a Column by Ann Kendall

Lately, I’ve spent a lot of time driving on Interstate 95. I barely like driving across town, let alone spending eight or more hours a week on one of ... Read more

February 13, 2020February 11, 2020

The Importance of Self-care

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

A lack of control is one of the most frustrating things about staying in the hospital. Doctors, nurses, and everyone else enters the room without permission. Nothing runs on ... Read more

February 12, 2020February 10, 2020

Playtime Is Not so Simple with Hemophilia

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

Our baby girl turned one earlier this year. Watching Cittie mature makes me reflect on the innocent phase of childhood. Life was so simple back then. I believed games ... Read more

February 12, 2020February 10, 2020

The Stories We Don’t Hear

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It was a beautiful Sunday afternoon and I encouraged my son Caeleb to take our dog, Betty, for a walk. He gathered the necessities of a 14-year-old — headphones ... Read more

February 11, 2020February 10, 2020

Take Care of Yourselves, Carrier Moms!

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Carrier moms — those whose sons or daughters have hemophilia — inspire me. I see you struggle, sometimes daily, with the realities of parenting a child who has a ... Read more

February 10, 2020February 7, 2020

Finding the Beacons of Light During Times of Darkness

Columns, HemoWife - a Column by Alliah Czarielle

Memories flooded my mind as I was going about my usual work today. I suddenly thought about my life before I met my husband, Jared, before my pregnancy, and ... Read more

February 6, 2020February 4, 2020

Surrounded by Breathtaking Works of Art

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As a father of sons with hemophilia, I know my way around a hospital like the back of my hand. We have visited the emergency room far too often. ... Read more

February 5, 2020February 3, 2020

Talking to My Son About Chronic Pain

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I’ve been living with chronic pain for several years. When I’m asked whether I had an accident or trauma to my neck and back, my answer is no. But ... Read more

February 4, 2020January 31, 2020

Hemophilia Inheritance Graphics Need Updating

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Inheritance patterns in hemophilia are a common discussion topic for many reasons. Among the reasons that people seek information about hemophilia inheritance is their desire to better understand if ... Read more

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