Columns

May 24, 2019May 22, 2019

Posing a Challenge: The True Cost of Mental Healthcare

Columns, Stories from the Road - a Column by Ann Kendall

Many years ago, while working in the association management world, I had a director who challenged his managers (including me) to calculate the “true” cost of every program we ... Read more

May 23, 2019May 21, 2019

What Job, the Man and the Legend, Has Taught Us About Suffering

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

It is no secret that I am a pastor in the United Methodist faith. Many times, I find that having children with bleeding disorders challenges my theology and how ... Read more

May 22, 2019May 20, 2019

This Graduation Season, Take Stock of Your Achievements

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The month of May can be an emotional roller coaster for many. Social media fills up with parents bragging about their children’s latest accomplishments — honor society, college acceptance ... Read more

May 21, 2019May 17, 2019

Delving into the Depths of My DNA

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I am a patient. I am an expert on my own health experiences. I am an educator. I am an advocate. Hemophilia is a rare disease. Being a woman ... Read more

May 16, 2019May 14, 2019

My Son Claims Victory Over His Mountain of Struggles

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Our family took a recent trip to White Sands, New Mexico. The dunes were amazing. I had thought that my feet would burn due to the heat. However, I ... Read more

May 15, 2019May 13, 2019

New Treatments Mean Summer Camps Can Focus on Fun

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Summer is upon us. Our kids have big plans: sleeping in, watching television, playing video games, sleepovers, vacations, and summer camp. From church camp to athletic and band camp, ... Read more

May 14, 2019May 10, 2019

My Hate-Love Relationship with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I don’t think anyone likes having a chronic disease. I have good days, and I have bad days. Thankfully, the good days outnumber the bad ones. There are days ... Read more

May 13, 2019May 9, 2019

Mother’s Day Reflections from a New Mom and Spouse of a Person with Disability

Columns, HemoWife - a Column by Alliah Czarielle

As I write this, Mother’s Day is approaching, and tributes to mothers have begun filling the pages of local blogs and publications. They speak of the heroism of moms ... Read more

May 10, 2019May 8, 2019

Writing Out Chronic Worry Doesn’t Have to Mean Writing About Worry

Columns, Stories from the Road - a Column by Ann Kendall

I once spent an entire summer reading Emily Dickinson’s work and analyzing it, from the literal meaning of her words to the historical context of her work and the ... Read more

May 9, 2019May 7, 2019

It’s a Chronic Illness, Not Your Sole Identity

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

A name is not mere letters on paper or a screen, but a way to proclaim our existence. What we call ourselves lets the world know who we are. ... Read more