Columns

July 18, 2019July 16, 2019

When Will You Teach Me to Ride a Bike?

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Last week, I did something I never dreamed I would do: I taught “MacDonald the Younger” how to ride a bike. At 13, he is considered a senior statesman ... Read more

July 17, 2019July 15, 2019

Change Is Hard, but My Son Realizes He Needs to Take Control of His Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When your children move into adulthood, managing their bleeding disorder becomes their responsibility. I have worked hard to prepare my adult son. He says “adulting” is not fun. I ... Read more

July 16, 2019July 11, 2019

Diagnostic Terms for Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I am not merely a carrier of hemophilia. I am certainly not an asymptomatic carrier of hemophilia. I am not even a symptomatic carrier of hemophilia. I am a ... Read more

July 15, 2019July 10, 2019

The Story of a Pearl: Embracing Irritants in a Process of Becoming

Columns, HemoWife - a Column by Alliah Czarielle

I’ve recently taken to collecting pearls. It started as a stock-obtaining activity for the jewelry business I run with my husband, Jared, who has hemophilia. It has since grown ... Read more

July 12, 2019July 10, 2019

The Summer of Love Is Alive and Well

Columns, Stories from the Road - a Column by Ann Kendall

About this time every summer, my social media feeds begin to fill with lots of smiling faces from hemophilia camps across the country. Photos showing kids pursuing myriad activities ... Read more

July 11, 2019July 15, 2019

How Hemophilia Care Evolution Has Changed My Family Dynamics

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

When my son “MacDonald the Older” took over his care, I celebrated his accomplishment. “MacDonald the Younger” would not reach independence until many years after his older brother did, ... Read more

July 10, 2019July 8, 2019

From Severe to Mild: My Son Embarks on a New Adventure

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Severe, moderate, and mild: These are the degrees with which a person with hemophilia is labeled based on the percentage of clotting factor in their blood. With the word ... Read more

July 9, 2019July 3, 2019

We Must Believe Girls and Women with Hemophilia Who Say They Are in Pain

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Over the past few years, I have had the pleasure of connecting with many women who are diagnosed with hemophilia A, hemophilia B, or as symptomatic carriers. These women ... Read more

July 3, 2019July 1, 2019

My Son’s Trip to a Trampoline Park Is a Triumph Over Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When I was a kid in the 1970s and ’80s, I thought children who had trampolines in their yards were amazing. Being invited over to jump on a friend’s ... Read more

July 2, 2019July 2, 2019

Women with Mild Hemophilia Deserve Prophylactic Treatment 

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When someone has a hemophilia diagnosis, they receive treatment in one of two ways: on demand, in which they are given products to help their blood clot after an ... Read more