I met my husband on the golf course. Now, one of my greatest joys is watching my daughter learn to play at that very same course. It is where ... Read more
Raising children is like building a house. For those of us who manage chronic illness and other disorders, our floor plans may look a little different, but at the ... Read more
It’s a struggle to balance life with two disorders. I need to take daily medications for epilepsy while also self-infusing to treat internal bleeds. I recently suffered a horrible ... Read more
It is hard for some of the people in my community to understand why my son Caeleb struggles when he walks. Many see him as a normal 14-year-old boy ... Read more
Over the past few years, I have learned that bleeding disorders are complex, particularly for women. Hemophilia is not always easy to understand or treat. It can take women ... Read more
Like other countries, the Philippines is in a state of panic due to the COVID-19 outbreak. Schools have canceled classes well into mid-April. The possibility of lockdowns in various cities ... Read more
I do not have hemophilia. My sons are the ones who live with a chronic bleeding disorder, and at first, I struggled to find something we might have in ... Read more
My 14-year-old son Caeleb is having trouble walking. Some days are better than others, but the bad days are filled with crazy pain. His right knee and ankle have ... Read more
Growing up is exciting. Most young adults spend their late teens and early 20s meeting new people and making new friends. As we grow older, we get jobs, move ... Read more
I do not like to tell people that my sons are hemophiliacs. It is not that I am blind to the reality that they have a bleeding disorder, but ... Read more
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