Columns

July 16, 2020July 15, 2020

We Are the Experts of Our Own Stories

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

At times I struggle with documenting my journey as a caregiver for a loved one with a bleeding disorder. I can’t offer medical advice because I am not an ... Read more

July 15, 2020July 13, 2020

Finding Joy During the Worst of the Worst

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The past few months have been filled with change. My family and I moved from Texas back to New Mexico, my husband and I started new jobs, and our ... Read more

July 13, 2020July 9, 2020

Life’s Struggles Are Real, but So Is Personal Growth

Columns, HemoWife - a Column by Alliah Czarielle

When my husband, Jared, and I started dating, I was aware that he has hemophilia B and epilepsy. Not long after that, someone close to me gave me a ... Read more

July 9, 2020July 6, 2020

The Roles We Play as Caregivers

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Two weeks ago, my family moved back to New Mexico. Today, I find myself attempting to bring order to my office. I started matching books with the subject matter ... Read more

July 8, 2020July 6, 2020

Being Grateful for the Boring and Mundane

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a sucker for routine. Spontaneity does not come easily to me because I do not like surprises. I missed routine when my now 14-year-old son, Caeleb, was ... Read more

July 7, 2020July 10, 2020

How to Help Your Doctor Take Hemophilia Seriously

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Last week, I met a new local hematologist. He is not my main hemophilia doctor, but with my hemophilia treatment center eight hours away, it helps to have a ... Read more

July 6, 2020July 2, 2020

Let’s Avoid Playing the Blame Game

Columns, HemoWife - a Column by Alliah Czarielle

Social media is one of my guilty pleasures. Whenever I find myself with free time, I open Facebook and mindlessly scroll through the endless news feed. I become immersed ... Read more

July 2, 2020June 29, 2020

Accepting a Hemophilia Diagnosis Was a Question of Faith

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I entered my 3-month-old son’s room and stared at him as he peacefully slept in his cradle. Streetlights shined through the window into the darkened room. I glanced out ... Read more

July 1, 2020June 29, 2020

When Keeping Up Appearances Isn’t Good Enough Anymore

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Some moments in my life are ingrained in my soul, such as the births of my sons, my wedding day, the mornings when each of my parents died, and ... Read more

June 29, 2020June 25, 2020

Putting Disability in the Entrepreneurial Spotlight

Columns, HemoWife - a Column by Alliah Czarielle

Over the past few months, my husband and I have been working extra hard on our jewelry retail business. It’s surprising how much work goes into running a small ... Read more