Navigating social media for information about hemophilia and other health issues can produce mixed results, but amid the noise…
Jennifer Lynne
Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. She has deep roots in the bleeding disorder community, having been diagnosed with hemophilia B and Von Willebrand’s disease in 1975 at the age of 10. A proud graduate of the University of Wisconsin–Madison with a BA in marketing and journalism, Jennifer also completed MIT’s prestigious Birthing of Giants Fellowship Program. Originally from Brookfield, Wisconsin, she now lives in sunny Punta Gorda, Florida. Jennifer is the founder of GirlsBleedToo.com, a platform dedicated to raising awareness about bleeding disorders in women and girls. Through her writing, she hopes to educate, advocate, and amplify the voices of those—especially women—living with these often-overlooked conditions.
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Articles by Jennifer Lynne
Note: This column describes the author’s own experiences with Mounjaro (tirzepatide). Not everyone will have the same response…
Last year, I had the privilege of connecting with Jeanette Jones, a former education manager at the Hemophilia Federation…
During the December holiday season, while visiting family in Illinois and Wisconsin, I had an unexpected dental emergency: A…
In a recent blog post on the Hemophilia Federation of America’s (HFA) website, HFA board member Joe Markowitz, 73,…
Rare Disease Day, observed this year on Feb. 29, serves as a poignant reminder of the challenges facing those…
In the 1970s and ’80s, treating my von Willebrand disease and hemophilia B often involved a regimen that…
A person like me, with bleeding disorders like hemophilia and von Willebrand disease, can incur staggering expenses. The…
On a recent call with others in the bleeding disorders community, a poignant concern emerged: the fear that the…
As my beloved hematologist pointed out during my last hemophilia clinic appointment, my health situation is rare. I…