‘The Hub’ aims for hemophilia B awareness, empowerment
As my beloved hematologist pointed out during my last hemophilia clinic appointment, my health situation is rare. I…
Articles by Jennifer Lynne
An unlikely walking companion helps me improve my wellness
Last year, at the Hemophilia Federation of America‘s Mild Matters Summit in Oklahoma, I attended a session led…
A dental dilemma and COVID-19: What a way to start 2024
The new year isn’t exactly kicking off on a high note for me. At the end of last…
A new year brings hope for the treatment of hemophilia
Embracing the start of 2024, I reflect on the friendships I’ve made within the hemophilia community over the past…
Learning to embrace conflicting emotions in a loved one’s absence
Soon, I’ll leave sunny Florida for the northern tundra of Madison, Wisconsin, and Schaumburg, Illinois, to be with my family…
Genetic testing raises questions about my bleeding disorders
I eagerly anticipate a future where inherited bleeding disorders can be conclusively diagnosed, with absolute certainty, through genetic tests.
Navigating copay accumulators in the health insurance maze
‘Tis that season again — not the one adorned with festive decorations and holiday cheer, but the one with the…
What I learned from a recent summit on mild bleeding disorders
Last month, I had the privilege and the honor of being one of 60 attendees at the Mild Matters…
Rethinking the classification of hemophilia to reflect its complexity
In the realm of hemophilia, I believe the current classification system oversimplifies a far more intricate reality. Severe,…
How to celebrate the holidays while you handle your hemophilia
Every year, the holiday season appears to arrive earlier, a stark contrast to the days when Christmas wasn’t even contemplated…