In the 1970s and ’80s, treating my von Willebrand disease and hemophilia B often involved a regimen that…
Articles by Jennifer Lynne
A person like me, with bleeding disorders like hemophilia and von Willebrand disease, can incur staggering expenses. The…
On a recent call with others in the bleeding disorders community, a poignant concern emerged: the fear that the…
As my beloved hematologist pointed out during my last hemophilia clinic appointment, my health situation is rare. I…
Last year, at the Hemophilia Federation of America‘s Mild Matters Summit in Oklahoma, I attended a session led…
The new year isn’t exactly kicking off on a high note for me. At the end of last…
Embracing the start of 2024, I reflect on the friendships I’ve made within the hemophilia community over the past…
Soon, I’ll leave sunny Florida for the northern tundra of Madison, Wisconsin, and Schaumburg, Illinois, to be with my family…
I eagerly anticipate a future where inherited bleeding disorders can be conclusively diagnosed, with absolute certainty, through genetic tests.
‘Tis that season again — not the one adorned with festive decorations and holiday cheer, but the one with the…