How to celebrate the holidays while you handle your hemophilia
Every year, the holiday season appears to arrive earlier, a stark contrast to the days when Christmas wasn’t even contemplated…
Articles by Jennifer Lynne
With bleeding disorders, I use Scrabble to take my mind off things
Scrabble, the classic word game that has enthralled generations, is a captivating blend of strategy, vocabulary, and skill. I began…
Mild is the most dangerous word in the classification of hemophilia
The recent Rare Blood Disease Summit sponsored by Genentech highlighted a critical perspective pertinent to me: “Mild is…
Who knew that my cleaning woes could be solved by a robot?
In the wake of my mother’s tragic passing in February and the havoc wreaked by Hurricane Ian last year,…
Why I became a physical therapy dropout as I rehabilitate my knee
Physical therapy (PT) plays a crucial role in the management of hemophilia. While it may seem counterintuitive for…
5 elite athletes prove inspiring as they defy hemophilia’s limits
In 1975, when I was diagnosed with hemophilia B and von Willebrand disease, my dreams of participating…
Uniting for accessible care at the Rare Blood Disease Summit
Last week, I was privileged to attend Genentech‘s Rare Blood Disease Summit at its campus in San Francisco. I’ve…
My struggle to find a suitable knee brace with hemophilia and EDS
About a month ago, my world was turned upside down when my kneecap dislocated while I was simply shifting…
Welcome to my pity party, where floods are just the beginning
Welcome to my world, where it seems like I’m perpetually hosting a pity party. The past year has thrown more…
Improving menstrual cycle tracking for better care and privacy
During my teenage years, I vividly recall attempting to convey the severity of my menstrual bleeding to a male…