I was happy to see hemophilia depicted well on a favorite TV show
I was pleasantly surprised to see a character with hemophilia depicted in a recent episode of “Call the Midwife,”…
Articles by Jennifer Lynne
My top tips for self-infusing hemophilia medication
Years ago, a home health nurse came to my house to infuse my medication for von Willebrand disease and…
Hemophilia management takes a toll on patients, yes, but also families
My bleeding disorders, hemophilia B and von Willebrand disease, have significantly affected my family. As I’ve aged, my…
Pacing myself as one of my pain management strategies
People with hemophilia experience prolonged bleeding, even from minor injuries, and may also experience spontaneous bleeding into joints,…
How gender bias in healthcare affects women with hemophilia
Historically, hemophilia has been viewed as a disease that affects men and boys, which has led to significant gender…
Why global access to hemophilia treatments matters
Significant disparities in access to hemophilia treatment exist around the world. In general, people with hemophilia can live…
How we can raise awareness of hemophilia in women
As a woman with hemophilia B and von Willebrand disease, I understand the importance of awareness about bleeding…
Have you thought about end-of-life planning for you or a loved one?
My mom passed away a few weeks ago. Over the past six years, it has been a great honor and privilege…
How making an elevator pitch might help explain hemophilia
In the marketing world, we have a concept called the elevator pitch. An elevator pitch is a short, persuasive speech…
Bruises Are a Routine Part of My Life With Hemophilia and VWD
As a person with von Willebrand disease (VWD) and hemophilia, bruises have been a near-constant presence in my…