An Open Letter to Dads Living With Hemophilia and Raising Daughters
Dear Hemophilia Dad, I am writing to you today to protect the health of your beloved daughter. Trust me, I…
Articles by Jennifer Lynne
A Tale of Struggle: How One Patient Advocated for an Implanted Port
Kendall Fitzpatrick and I have much in common. Like me, she has hemophilia B and von Willebrand disease.
Watching the ‘Unspeakable’ TV Series About Tainted Blood Tragedy
I recently watched the eight-episode Canadian drama miniseries “Unspeakable,” which was inspired by real events and first televised a…
Talking Women and Hemophilia With Community Leader Kim Phelan
I have von Willebrand disease (VWD) and hemophilia B, a less common form of hemophilia that arises when a…
Living With Hemophilia, I Am Both Thankful and Heartbroken
Hurricane Ian, which battered the southeastern United States and the Caribbean in late September and early October, nearly destroyed…
The Hemophilia Community Supports Us After Hurricane Ian
Greetings! I’m writing from Orlando, Florida, my temporary oasis from the wrath of Hurricane Ian. Last week, my mom and…
With Hemophilia, I Needed Extra Preparations for Hurricane Ian
Well, hello, Ian. Please go away. As I write this, the track of Hurricane Ian has shifted south from Tampa,…
I’m Waiting No Longer to Start a Fitness Program and Get Into Shape
The end of 2022 is rapidly approaching, and I’ve made nary a dent in my fitness and diet goals…
Milestones Have Resonance When Living With Hemophilia
“It’s my party, and I’ll cry if I want to, cry if I want to, cry if I…
How Shared Decision-making in Healthcare Has Improved My Well-being
Shared decision-making in healthcare was a topic at the National Hemophilia Foundation’s Bleeding Disorders Conference I attended virtually last week.