What a Symptomatic Hemophilia Carrier Wants Others to Know
What happens when a symptomatic hemophilia carrier needs minor surgery? Will her increased risk of bleeding be recognized? The…
Articles by Jennifer Lynne
Managing Bleeding Disorders Requires Attention to Mental Health
It’s easy to spot physical damage, such as swollen joints, nosebleeds, limps, and bruises, when one suffers from a…
Why Entrepreneurship Works for Me as a Person With Hemophilia
Growing up in suburban Milwaukee, I saw the world through a self-employed lens. My grandfather sold and repaired typewriters, a…
For the Immunosuppressed, Life Still Isn’t Back to ‘Normal’
In addition to having hemophilia B and von Willebrand disease, I also am a caregiver to my 79-year-old…
You’re Not Alone: A Conversation With Bodybuilder L.A. Aguayo
I recently had the honor of interviewing bodybuilder L.A. Aguayo over Zoom. He is 34 years old, has severe…
Let’s Not Forget the Importance of Dental Care
I’m diligent about oral healthcare. I use an electric toothbrush, floss every day, and visit my dentist every three months.
Turning Gratitude Into Action on World Hemophilia Day
I am lucky to live in the United States, where medication to treat hemophilia and von Willebrand disease is…
Learning to Breathe Can Help Reduce Stress
Stress has been a constant issue for me. I struggle to manage it, but I’m improving. If I could jump…
How to Best Advocate for Yourself in an Emergency
I recently participated in a webinar called “Mild Matters,” organized by the Hemophilia Federation of America. The purpose was to…
Revisiting a Tragic Chapter in the History of Hemophilia and AIDS
I recently visited the small town of Arcadia, Florida, which is not far from my home. Arcadia holds…