Hemophilia B and experimental gene therapy have been in the news lately. I was even…
Articles by Jennifer Lynne
In February, I wrote about hemophilia’s effects on bone health after attending a webinar sponsored by Factor My…
Living with any chronic illness comes with a financial burden. Hemophilia, in particular, is extremely rare and extremely…
Last week, I gave in to my 79-year-old mother’s pleas to travel from Florida to the Midwest for a family…
Most women of childbearing age have normal monthly periods. For women like me with bleeding disorders, monthly periods are a…
Dear Newly Diagnosed Sister, Welcome! You are now part of a supportive community full of love, courage, and inspirational…
As my COVID-19 recovery continues, I have questions. So I called public health expert Frank James, MD, to help.
It finally happened. COVID-19 found me. After two and a half years of following the guidelines, I couldn’t outwit…
A simple tonsillectomy led to my eventual diagnosis of hemophilia B and von Willebrand disease. Without a family…
What happens when a symptomatic hemophilia carrier needs minor surgery? Will her increased risk of bleeding be recognized? The…