The Pandemic Strengthened My Connection to the Hemophilia Community
For most of my 56 years, I’ve felt isolated from the hemophilia community. Before the internet — yes, youngsters, there…
Articles by Jennifer Lynne
Spreading the Word About Bleeding Disorders in Women and Girls
As a woman affected by the bleeding disorders hemophilia B and von Willebrand disease, I realize that increasing awareness about…
We Need More Studies of People With Mild Hemophilia
Instead of Powerball, I have won the rare bleeding disorder lottery. I have von Willebrand disease and hemophilia B, a less…
How Hemophilia Can Affect Bone Health
I recently attended a webinar called “Impact of Factor 8 on Bone Mineralization,” sponsored by Factor My Way, a patient…
The Challenges of Dating as a Woman With Hemophilia
I’ve been dating for nearly 40 years, and consider myself somewhat of an expert. Valentine’s Day feels like the perfect…
Heart Disease, an Increasing Problem for Those With Hemophilia
Heart disease is the No. 1 killer of women. Yet all of the studies I found on hemophilia and…
Returning to a Plant-based Diet This ‘Veganuary’
The U.K. charity Veganuary challenges people to eat only vegan foods in the month of January as part of…
Hemophilia and Blood Clots: A Surgery That Nearly Cost Me My Life
January is my three-year “clotaversary,” a holiday I celebrate every year after surviving a life-threatening situation during a major…
Women Can Have Hemophilia, Too
Imagine you are in an emergency room with a life-threatening bleeding problem. How would you convince an ER doctor that…
Weighty Matters: The Relationship Between Hemophilia and Weight
Welcome to 2022, a new year and a clean slate. Year after year, my New Year’s resolutions are the same:…