The Time Spent Together Is What Matters
Last week, my 16-year-old son, Caeleb, had a physical therapy session at 1 p.m. Unfortunately, the business of the…
Rev. Dr. Joe K. MacDonald is a pastor in the New Mexico Annual Conference of the United Methodist Church. He and his wife, Cazandra, live in Belen, New Mexico, along with their youngest son, Caeleb, and two fur babies, Laggie and Hildie. Both of Joe’s sons (the oldest is Julian) have severe hemophilia A, factor VIII deficiency. Julian was diagnosed in 1996 and Caeleb in 2006. Joe serves on the Board of the Sangre de Oro Chapter of the National Hemophilia Foundation. Joe’s goal is to help his sons and others in the community use their voices to help improve the quality of life for those with bleeding disorders.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Last week, my 16-year-old son, Caeleb, had a physical therapy session at 1 p.m. Unfortunately, the business of the…
As summer begins, the MacDonald family continues a great tradition of visiting a local museum every Friday. We started…
Last night, I dreamed that I attended a doctor appointment for my wife, Cazandra. It was a follow-up to…
Many times when my sons were younger, I found myself overwhelmed by the constant demands of their bleeding disorder…
One of the unexpected issues I struggled with when my youngest son, Caeleb, faced many prolonged hospital stays due to…
I love the final-night event of a national bleeding disorder conference. Different groups invite community members to play games,…
Affirmation: one word with significant connotations. From the day we come into this world, we seek an acknowledgment that…
Last week, my wife, Cazandra, my youngest son, Caeleb, and I attended the annual meeting of the Hemophilia Federation…
This past week my adult son, Julian, made a decision that I didn’t like. I wanted badly to tell him…
I often tell people to check my refrigerator if they want to track the development of hemophilia care in my…
Get regular updates to your inbox.