Extended FIX Preventive Therapy May Not Ease Pain, Study Finds
Chronic pain and a reliance on pain killers remains high among adult men with severe hemophilia B after two…
Articles by Patricia Inácio, PhD
8-Week Exercise Program Yields Multiple Benefits
Hemophilia patients experienced improvements in joint health, mobility, and overall quality of life after completing a supervised eight-week exercise…
Regular MRI Scans May Help Assess Joint Damage Risk in Hemophilia A
Preventive treatment with factor VIII (FVIII) — the missing blood clotting protein in hemophilia A — was not fully…
Eptacog Beta Lowers Surgery Risk for Hem A Patients With Inhibitors
Eptacog beta was safe and 100% effective at preventing bleeds during and after minor surgeries in hemophilia A patients with…
Syrians Claim First Case of Girl With Both Hemophilia A and C
A report describes — for the first time, according to study authors — the case of a girl who has…
China OKs Hemophilia B Trial Testing BBM-H901 Gene Therapy
Belief Biomed is launching a Phase 1/2 clinical trial in China to test BBM-H901, its investigational one-time gene therapy for…
Dutch Patients Seem to Engage in Sports as Much as General Public
In the Netherlands, children and adults with hemophilia participate in sports as much or more than people from the…
EMA OKs Biomarin’s New Application to Approve Roctavian
The European Medicines Agency (EMA) has validated BioMarin Pharmaceutical’s new application seeking approval of its investigational one-time gene therapy…
Less-frequent FVIII Dosing May Improve Treatment Adherence
Less-frequent and easier administration of factor VIII (FVIII) — the clotting protein that is missing or defective in people with…
Poorer Joint Health, Greater Pain Evident After COVID Lockdown
Joint pain significantly rose and overall joint health — particularly range of motion — diminished with limitations on physical activities during…