Hemophilia and Me – a Column by Jennifer Lynne

Jennifer is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. Jennifer has strong ties to the bleeding disorder community; she was diagnosed in 1975 with hemophilia B and Von Willebrand’s disease at age 10.

She is a graduate of the University of Wisconsin, Madison with a BA in marketing and journalism, and MIT’s Birthing of Giants Fellowship Program. A native of Brookfield, Wisconsin, she now resides in sunny Punta Gorda, Florida. Jennifer hopes that her column will raise awareness for hemophilia and other bleeding disorders, especially among women.

My hemophilia management involves rituals and chocolate

Several members of my family are diehard Purdue University basketball fans. This year was particularly exciting for them due to Purdue’s performance in the recent NCAA basketball tournament. During a gathering at their house on Easter Sunday, which included watching an important March Madness game, I gained insight…

Me, toxic? How I’m learning to rein in too much positivity

As someone who typically sees the glass half full, I’ve found myself to be the go-to adviser for my nephews, especially when they’re having a full-blown panic attack, which unfortunately seem to be increasingly common among young people, at least in my family. Whether they’re venting about their jobs or…

Discussing platelet disorders with advocate Jeanette Jones

Last year, I had the privilege of connecting with Jeanette Jones, a former education manager at the Hemophilia Federation of America. During our conversation, she graciously guided me through a period tracker toolkit that she played a pivotal role in developing. Jeanette is a passionate advocate for…

Navigating the financial challenges of bleeding disorders

A person like me, with bleeding disorders like hemophilia and von Willebrand disease, can incur staggering expenses. The cost of medications alone can soar into the thousands of dollars per dose, and multiple doses are frequently required to manage bleeding episodes effectively. In 2019, I faced the…