Skip to content
Hemophilia News Today logo Newsletter
Newsletter
  • About hemophilia
    What is hemophilia?
    Types
    Causes
    Symptoms
    Diagnosis
    Living with hemophilia
  • Treatment
    Approved treatments
    Experimental treatments
    Non-drug treatments
    • Hemophilia: Exercise and physiotherapy
  • Featured topics
    Reality of Rare [videos]
    • Infusion comments and misconceptions
    • Debunking HEM bleed myths
    • Creative bleed solutions
    • Humor in HEM challenges
    • Menstrual bleeding and HEM
    • Laughing through HEM crises
  • News
  • Columns
    Hemophilia 24/7 — Cazandra Campos-MacDonald
    Hemophilia and Me — Jennifer Lynne
    HemoWife — Alliah Czarielle
    In the Twinkling of an Eye — Joe MacDonald
    The Forgotten Factor — G Shellye Horowitz
    Archived columns
    • Stories from the Road — Ann Kendall
    • The ‘I’ in Hemophilia — Jared Formalejo
  • Forums
  • What can we help you find today?

Dating gets awkward with hemophilia and epilepsy

Jared Formalejo, who has hemophilia B, and his wife, Alliah, live in the Philippines. They share their journey of love and navigating hemophilia and seizures together.

Transcript

Alliah: Jared had a seizure on our first date. Jared has a seizure disorder, aside from hemophilia.

Jared: It was caused by a brain injury during my fifth grade. So I have complex partial seizures.

Alliah: So that type of seizure isn’t the common type of seizure that you know of, the shaky kind of seizure. It’s more he’s in a dreamlike state during and after his seizure. So on that day, it was our first date, and he somehow managed to have a seizure.

Jared: And imagine this: We were in the middle of a big, open, well, field, and then, you know, stars under us and, you know.

Alliah: It’s very romantic. And somehow that’s how our first kiss happened.

Jared: Our first kiss happened, and I was not conscious.

Alliah: Semi-conscious, right?

Jared: Semi-conscious, yeah.

Alliah: Semi-conscious.

Jared: Yeah, I was dreaming that time, but apparently it happened. So I guess it was a dream come true.

Alliah: Somehow he remembered. So thankful for that. And there were a second and third date, so all’s well that ends well.

Jared: Turned out well. Something that defined our marriage — a first-date seizure and a first-date-seizure first kiss. So.

Recent Posts

  • What decades-long diagnosis delays mean for women with VWD
  • CAR T-cell therapy successfully treats man’s acquired hemophilia A
  • An athlete’s mindset can be an asset when living with hemophilia
  • It’s a myth that the grass would be greener without hemophilia
  • A man with hemophilia B shares his gene therapy story, part 2


Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.