NHF changes name to reflect support for other bleeding disorders

The organization's new name is the National Bleeding Disorders Foundation

Andrea Lobo, PhD avatar

by Andrea Lobo, PhD |

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The National Hemophilia Foundation (NHF) has changed its name to the National Bleeding Disorders Foundation (NBDF) to reflect its support for people with inheritable blood and bleeding disorders other than hemophilia.

The new name includes a new visual identity and logo. The foundation also unveiled a new tagline —  Innovate, Educate, Advocate.

The organization’s core mission remains the same — to find better treatments, preventive measures, and cures for bleeding disorders through research, education, and advocacy. It also works to support people with blood and bleeding disorders, their families, and clinicians, and to provide local access to healthcare.

“Our new name is one that’s inclusive, trying to represent that entire blood and bleeding disorders community based on our past. We think that this really embraces what we’re going to offer into the future by bringing everybody in and offering them something,” Leonard Valentino, MD, NBDF’s CEO, said in a press release.

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The NBDF and its mission

Founded more than seven decades ago to support people with hemophilia, the foundation grew over time to  also serve people with von Willebrand disease, platelet disorders, among others.

“No matter what disorder you have, you will find a home in the National Bleeding Disorders Foundation,” Valentino said.

In recent years, the foundation has worked to eliminate barriers to access to care for underserved populations across the U.S. in order to ensure that every person with a blood or bleeding disorder has equal access to healthcare, regardless of age, gender, ethnicity, location, or socioeconomic status.

The NBDF supports a network of more than 50 chapters across the country, which will be critical to introducing the change to the community.

“For decades, the Foundation has served the hemophilia community and other conditions, but even though our work supported people and families impacted by ultra-rare blood and bleeding disorders as well as those with von Willebrand disease and more, our name and look did not properly reflect that,” said Dawn Rotellini, NBDF’s chief operating officer.

The foundation plans to use its resources and networks to help people with an even broader range of blood and bleeding disorders, many of which still lack a national network that supports and advocates for them.

“Now is the time to better reflect all of those that we serve,” Rotellini said. “I’m so excited to introduce the National Bleeding Disorders Foundation, an organization that can now truly say it’s a home to so many.”

The NBDF will continue rolling out the new brand in the coming months and asks the community for their patience during the transition.