I was born into this world with hemophilia. As a child, it was a reality I had to face, and I have no one to blame for my misfortune. Did I want to be born? Did my parents intend that I have a different life? No. It would be wrong…

I’ve been pondering the minimalism movement a lot lately. This is because I recently found myself with more than a dozen boxes from my childhood home, and along with these came a sense of responsibility to organize the contents inside of them. As my husband and I unpacked the…

The MacDonald home celebrates this Christmas season with a little more excitement than those holidays of the not-so-distant past. My youngest son’s health is the best it’s ever been, and we are in an excellent place. We have nothing to complain about. Life is good and the business…

I am already looking forward to 2019. The first half of 2018 was not filled with joy, but fortunately, the last six months have been pretty wonderful. Part of this has been Caeleb’s new treatment with Hemlibra (emicizumab-kxwh). It has truly changed our lives. His quality of…

Special days come up: holidays, birthdays, and vacations. We take time to relax and enjoy ourselves, but there is always something staring us in the face. Needles do not care what days may be essential or ordinary. They call to our families, reminding us that hemophilia does not…

My local hemophilia organization just held its annual Christmas party. During these celebrations, we are reminded that we belong to a community that empowers, cares, and provides us with support and service. Christmas is a time for giving, showing gratitude, and spreading love. During our Christmas party, it was heartwarming…

NuFactor Specialty Pharmacy is seeking applicants for next year’s Eric Dostie Memorial College Scholarship, established 25 years ago to honor the memory of  an inspirational boy with hemophilia who died at age 5. Every year, 10 people are selected to receive the $1,000 scholarship. It is open to…

These past few days have been extremely busy for my husband Jared and me. We decided to rent a couple of commercial booths at the barangay (or district) hall for the duration of our town’s weeklong fiesta — one dry goods stall for us and one for my…

My profession as a pastor allows me to celebrate with and be a source of support to members of my church. They come to me seeking a message of hope in the worst of circumstances. And the need for peace is greater when one faces surgery. When asked,…

At this time of the year, I like to clean. Not just dusting and mopping, but also purging my home of unnecessary items. Unworn clothes, worn-out shoes, and overwhelming stacks of papers and magazines. The other important area that needs a thorough inventory is my home medical supply…