Kevin Leurquin of Green Bay, Wisconsin, shares how living with hemophilia A has shaped his journey of learning, acceptance, and gratitude. In this video, he discusses staying active, protecting his health while racing and running, and using adaptation and creativity to manage daily life — from workouts to long hours working at his food truck.
Transcript
Hi. My name is Kevin Leurquin. I’m from Green Bay, Wisconsin. So I live with hemophilia A. My journey with hemophilia has been that of learning and acceptance and gratitude.
I definitely, when I’m doing my races, yeah, I definitely make sure that I’m healthy and protected before I hit the start line, you know, making sure that when I’m doing my workouts — even before, even after I run or I workout — making sure that I don’t have any injuries or encountered a bleed.
So really making sure that I’m really, you know, protected and having that self-awareness of, “Am I good? Am I feeling, feeling good? Is this muscle strain? Is there a bleed in there?”
Adaptation and creativity just goes, you know, just goes hand-in-hand in terms of how to be resilient and how to, like, just find different ways to solve a problem or to kind of get through the day, especially when it comes to having, like, a bleeding disorder — like, for example, my food truck — being able to stand for a prolonged period of time.
I need to make sure that I’m on, like, an anti-fatigue mat or having the ability to kind of create a great sense of energy. So, like, sometimes you can be very drained, very fatigued.
So making sure that I’m in good, good condition or, I’m, like, foam rolling my hamstrings or my muscle tissue — just to make sure that I’m not strained — or making sure that I’m staying hydrated. So it kind of doing the doing the little things to incorporate my daily regimen.
I think it’s all about just having that belief in trying and not being afraid to fail and having that sense of resolve. You fail. You fail through it. And you try again.
