Explaining Chronic Illness: An Alternative to the Spoon Theory


If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day.  As she was in a cafe at the time, she grabbed a bunch of spoons to demonstrate how much energy even seemingly small tasks take, such as getting dressed or showering. She then wrote about the conversation with her friend on her blog.

MORE: What is a “spoonie”?

The unpredictability of fatigue and energy levels is one of the main symptoms people with chronic illnesses face. Rationing their energy becomes something that most people need to do to get through each day.

But sometimes the spoon theory isn’t quite so easy to demonstrate, particularly if you don’t have a bunch of spoons handy (or other props). Michelle has another way of explaining her energy levels, as she writes on The Mighty. Instead of using spoons to illustrate her point, Michelle uses batteries, in particular, a cellphone battery. She explains that often with older cellphones, the battery isn’t as good as it used to be. It can often be unpredictable, even when left charging overnight.

Sometimes your cellphone will have a lot of charge and you can be on Facebook and Instagram for hours, whereas other times your cellphone will barely have enough juice to make a quick call to your mom. This is when you have to put your phone into battery-saving mode to conserve energy, just as a person with a chronic illness needs to stop, take a break and conserve what little energy they have until they too can recharge their battery.

MORE: These lifestyle hacks will help anyone with a chronic illness.

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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One comment

  1. Peggy Wallace says:

    Very interesting article about aging hemophiliacs. My husband is 84 and was born with hemophilia. Stories abound in his family of men who bled to death. Just in the last few years, he has had several severe bleeds. His diagnosis is -4 Hemophilia A (moderate). Our biggest problem has been with specialists who decide that they can open his skin for a minor thing, knowing that he is a hemophiliac and believing that “it’s just a minor thing and he won’t bleed much.” He had made it to this age, I believe, because he wasn’t interested in athletics, and has had minor falls. Things are changing now, however, as he ages, and has several of the 6 things mentioned in this article. He has severe AFib that the cardiologist has decided not to treat! Familial heart disease. He exercises daily, and eats moderately. BUT, he takes lots of meds. I didn’t think about them affecting his hemophilia.

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