Students Chosen for “Hemophilia: The Musical” Production Announced by BioMarin and Believe Limited

Students Chosen for “Hemophilia: The Musical” Production Announced by BioMarin and Believe Limited

BioMarin Pharmaceutical Inc. and Believe Limited have announced the students chosen to participate in the theatrical production of “Hemophilia: The Musical,” a program that aims to empower the bleeding community through performance while raising public awareness of the connection between arts and wellness.

The 25 high school students hail from all over the United States, and have either hemophilia or another bleeding disorder, carry a disorder gene, or are a sibling or child of an individual with one of these conditions. Applications had been accepted through Sept. 1.

The Broadway-style musical will take place at 1 p.m. (EST) Nov. 12 at New World Stages in New York City. The performance will be live-streamed and can be viewed here.

Written from the perspectives and experiences of young people with bleeding disorders, the production is being touted as the first of its kind.

According to Jeremy Nobel, MD, a Harvard Medical School faculty member and president of The UnLonely Project: The Foundation of Art & Healing, creative expression can have an enduring positive effect on people with illnesses. Productions such as this musical provide a “unique and important” opportunity for the young participants, he says.

Prior to the performance, the students will complete a three-day workshop called “Breaking Through!” Produced in collaboration with Believe Limited, the musical theater intensive will include sessions on the effects of breathing and relaxation on pain management, and the holistic advantages of artful expression. Los Angeles-based Believe Limited creates content and live events for rare disease communities with a focus on bleeding disorders.

“Young adults with bleeding disorders need a creative outlet that allows them to express what they are thinking or feeling, and specifically showcase how their lives are impacted,” Patrick James Lynch, Believe Limited’s CEO and workshop director, said in a press release.

“We were blown away by the talent and thoughtfulness of the applicants. We applaud BioMarin for helping these teens bring their stories and talent to life as we also introduce them to just how beneficial the arts can be for young people affected by chronic illness,” he said.

Hank Fuchs, BioMarin’s president of worldwide research and development, said the production — to be directed by Paul Russell, renowned vocal coach and director of the Haemophilia Society choir — will also hopefully serve to educate the public.

“We are thrilled to be a part in sharing this first-of-its kind workshop and performance. Our hope is that this program will reach beyond the teens performing in the musical, and provide learnings for the broader community on the connection between artistic expression and wellness,” he said.

More information on the workshop can be found here.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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