Posts by: Mary Chapman

News

A new five-year alliance between Bayer and the World Federation of Hemophilia (WFH) Humanitarian Aid Program will deliver training, education and treatments to healthcare professionals in more than 60 ... Read more

May 10, 2019May 10, 2019

St. Jude and WFH Working Together to Treat Hemophilia in Underserved Countries

News

A new collaboration between St. Jude Children’s Research Hospital and the World Federation of Hemophilia (WFH) is aimed at helping blood disorder patients in countries where they may not ... Read more

April 26, 2019April 26, 2019

Believe Limited to Present its First Hemophilia Science Fair, Releases ‘Hemophilia: The Musical’ Soundtrack

News

To help people understand the science behind hemophilia and other bleeding disorders, digital content agency Believe Limited will present its first science fair this fall. Sponsored by commercial gene therapy company ... Read more

April 15, 2019April 15, 2019

Catalyst Presenting Reddit Q&A on Bleeding Disorders to Mark World Hemophilia Day

News

In recognition of World Hemophilia Day (WHD), Catalyst Biosciences is hosting an “Ask Me Anything” (AMA) session on Reddit on April 17. During the Reddit AMA event, which will take ... Read more

April 10, 2019April 10, 2019

‘Bombardier Blood,’ Film of Hemophiliac Who Climbed Everest and 7 Summits, Set for April 14 in NYC

News

The remarkable journey of Chris Bombardier, the first hemophiliac to reach the pinnacle of Mount Everest and the Seven Summits, will be shown in a free screening April 14 ... Read more

February 15, 2019February 15, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run ... Read more

February 1, 2019

FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News

The U.S. Food and Drug Administration(FDA) is updating its 2015 draft guidelines for drug discovery in rare diseases, with new guidance on natural history— how disorders such as spinal ... Read more

December 7, 2018December 7, 2018

Adynovate Approved in Canada for Hemophilia A Patients Younger Than 12

News

Health Canada recently authorized Shire Pharma Canada‘s treatment Adynovate for hemophilia A patients younger than 12 based on results of a Phase 3 clinical trial. Approved Nov. 21, the injectible ... Read more

December 5, 2018December 5, 2018

For 25th Year, College Scholarship Run by NuFactor Will Honor Hemophilic’s Memory by Helping Others

News

NuFactor Specialty Pharmacy is seeking applicants for next year’s Eric Dostie Memorial College Scholarship, established 25 years ago to honor the memory of an inspirational boy with hemophilia who died ... Read more

November 21, 2018November 21, 2018

‘Hemophilia: The Musical’ Lets Teens Confront Their Illness, and Educate Others, via Song

News

The workshop and production process over, it was curtains up for “Hemophilia: The Musical,” a unique theatrical event starring high school students affected by bleeding disorders. Performed at New ... Read more

Posts by: Mary Chapman

Mary Chapman

Bayer Commits to 5-Year Pact with WFH to Help Hemophilia Patients in Underserved Countries

St. Jude and WFH Working Together to Treat Hemophilia in Underserved Countries

Believe Limited to Present its First Hemophilia Science Fair, Releases ‘Hemophilia: The Musical’ Soundtrack

Catalyst Presenting Reddit Q&A on Bleeding Disorders to Mark World Hemophilia Day

‘Bombardier Blood,’ Film of Hemophiliac Who Climbed Everest and 7 Summits, Set for April 14 in NYC

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

Adynovate Approved in Canada for Hemophilia A Patients Younger Than 12

For 25th Year, College Scholarship Run by NuFactor Will Honor Hemophilic’s Memory by Helping Others

‘Hemophilia: The Musical’ Lets Teens Confront Their Illness, and Educate Others, via Song

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