Losing a Legend: Barry Haarde Passes Away at 52
The bleeding disorder community has suffered an unimaginable loss:Â Barry Haarde, the founder of the “Wheels for the World” campaign,…
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The bleeding disorder community has suffered an unimaginable loss:Â Barry Haarde, the founder of the “Wheels for the World” campaign,…
There’s a good chance those who don’t have a close connection with hemophilia don’t know much about the…
Earlier this month, Chris Bombardier became the first person to climb the Seven Summits with severe hemophilia. The Seven Summits consist…
The first patient in a Phase 1/2 clinical trial (“the Alta trial”) designed to assess safety and tolerability of SB-525…
Discovering your child has hemophilia can be devastating. While you will certainly need to make some lifestyle changes moving forward, with…
In order to determine if a person has hemophilia, they will have to undergo various tests to see if…
Hemophilia is a genetic disorder, mainly affecting men, caused by a deficiency in clotting factors VIII (hemophilia A), factor IX (hemophilia…
Having a service dog can greatly enhance the life of someone living with a chronic disease. They allow patients to regain some…
https://www.youtube.com/watch?v=rCZunn4ML5o If you’re living with a chronic illness, it’s easy to slip into a malaise and feel sorry for yourself.
https://www.youtube.com/watch?v=dpUNgYbsQms If you have a chronic illness, you know just how much energy it takes to complete your daily chores…
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