Radio and the Persistence of the Bleeding Disorders Community
It started the fall of my daughter’s sixth-grade year in school. While I had listened to DJ Elliot Segal of the radio talk show “Elliot in the Morning” for nearly 20 years by…
Stories from the Road
— Ann Kendall
Ann is an English professor and freelance writer with strong ties to the bleeding disorders community. She believes that advocacy is an essential skill for all connected to rare diseases; and that together, we have the power to impact and lead change by sharing our individual and collective stories, whether to meet personal needs with our medical providers or through involvement in policy work and legislation.
Featured Post
Would You Choose Another Path?
Usually, as the year comes to a close, we turn our attention to resolutions. It’s often a reflective time, when the prior year’s events and actions come under scrutiny. The most common resolution usually…
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‘Tis the Season for Conquering Soup
Long a food literature devotee, I continually marvel at the seeming effortlessness with which authors, home chefs, and Michelin triple stars approach the kitchen. Their sense of matter-of-fact wonder at gathering simple or impossible-to-find…
The Leaves Among Us
Fall has set in, and the leaves around us provide a colorful daily show as we creep out into the world. The endless pelting of falling acorns constantly startles. Is the roof caving in?…
Finding the Familiar on an Old Stretch of Highway
On a recent Sunday afternoon, cabin fever got the best of my family and we headed out to see where the road would take us. Our parameters were straightforward: It had to be within…
Surveys on the Sidewalk
I first noticed the survey as I headed down the street while the sun was rising last Sunday morning. A rock painted bright orange with the words “poll of the day” anchored a sheet…
The Lure of the Open Road
“A River Runs Through It” is one of my favorite movies, but calling it that doesn’t conjure up just how deeply I feel about it. This movie is more than a favorite —…
Mama Bears, It’s Time to Take Action
A few weeks ago, the news media broadcasted a video of Jill Biden — spouse of presidential hopeful and former vice president Joe Biden — physically blocking a protester in California from coming into…
Keep Your Swing in the Barrel
I met my husband on the golf course. Now, one of my greatest joys is watching my daughter learn to play at that very same course. It is where I feel most at home.
Cookie Sheet, Muffin Tin, Cardboard: A Lesson for Rare Disease Week
Science projects at home are often cause for consternation. We’ve all been there: Where do we find the supplies, where do we set up, and what sort of mess will this make? These are…
On the Road with Ross: Driving in the Winter
Lately, I’ve spent a lot of time driving on Interstate 95. I barely like driving across town, let alone spending eight or more hours a week on one of the most congested stretches of…
Moving from Darkness into Light
This month has brought a holiday rush of hemophilia news on potential new treatments, studies, and acquisitions — all of which serve to raise hope during this solstice season,…
