No, really: Committing to
your hemophilia care desires
Don’t wait for others to fight your battles with hemophilia
Julian Macdonald shares why self-advocacy has been essential to his journey and the driving force behind his care.
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Confidence starts with understanding your hemophilia story
G Shellye Horowitz shares how learning to understand and share your story can help you communicate effectively with your healthcare team.
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Don’t wait for others to fight your battles with hemophilia
Julian Macdonald shares why self-advocacy has been essential to his journey and the driving force behind his care.
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The lasting impact of pain in hemophilia care
Thomas Graham shares how lingering pain and joint damage continue to affect quality of life long after bleeds are treated.
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Navigating insurance challenges in hemophilia care
Thomas Graham shares his experience fighting insurance barriers and why patients must advocate for their own care.
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Understanding how hemophilia treatments work in your body
G Shellye Horowitz explains why requesting pharmacokinetic testing can help ensure therapies meet individual needs.
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Hemophilia treatment should keep up with your life pace
G Shellye Horowitz explains how switching from on-demand treatment to prophylaxis helped her stay active and prevent repeated bleeds.
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Demand explanations to unexplained hemophilia pain
Thomas Graham shares how unexplained pain before his diagnosis was often dismissed.
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The keys to powerful self-advocacy with hemophilia
Julian Macdonald shares advice on training oneself in self-advocacy with hemophilia.
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Raise a ruckus for the hemophilia care you deserve
Thomas Graham shares why patients sometimes must push to be heard in emergency settings.
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