I recently had the opportunity to spend the afternoon with a group of teens from our local bleeding disorders organization,…
Ann Kendall
Ann is an English professor and freelance writer with strong ties to the bleeding disorders community. She believes that advocacy is an essential skill for all connected to rare diseases; and that together, we have the power to impact and lead change by sharing our individual and collective stories, whether to meet personal needs with our medical providers or through involvement in policy work and legislation.
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Articles by Ann Kendall
The toughest part about moving to a new city or state is locating health providers that are covered (most likely)…
Many years ago, while working in the association management world, I had a director who challenged his managers (including me)…
I once spent an entire summer reading Emily Dickinson’s work and analyzing it, from the literal meaning of her…
We all enter history at a different point; our entry into the timeline of the world marks where the future…