Memories of My Son’s Hospitalizations Are a Matter of Perspective
I have guaranteed quality time with my youngest son, Caeleb, who is 15 and has hemophilia, every Sunday morning. He…
Articles by Cazandra Campos-MacDonald
A Lot Has Changed Since My Son Last Attended School in Person
Though the school year is nearly over for my youngest son, Caeleb, who is 15, he just returned to…
Parenting a Child With a Rare Condition Is Different and Spectacular
As an expectant mother, I dreamed about my son’s future. I imagined the sound of his voice, the daily rituals…
Sometimes a Fun Day With Friends Outweighs the Pain That Follows
My youngest son, Caeleb, became best friends with a girl named Taylor in sixth grade. Then, our family moved away…
This Bleeding Disorders Awareness Month, Your Story Can Make a Difference
March is Bleeding Disorders Awareness Month. It is a time when organizations such as the National Hemophilia Foundation…
Isolation Has Had Lingering Effects on My Son’s Mental Health
When my youngest son, Caeleb, was in elementary school, my main objective was to get him to school every day…
Teaching Young Adults About Hemophilia Is a Never-ending Process
My adult son, Julian, does a wonderful job managing his hemophilia. He infuses twice a week per doctor’s orders, and…
Sharing Our Personal Stories With Lawmakers Is a Transformative Process
Most people probably have a handful of good stories to tell at parties, but someone with a rare medical condition…
Tips for Offering Help to a Loved One During a Crisis
“Fine.” People have asked hundreds of times how my family and I were doing — particularly my youngest son, Caeleb,…
In Caregiving, Raising the White Flag Can Be a Sign of Strength
There is no shame in raising the white flag when caregiving challenges become too taxing. The white flag, an…