Posts by: Jared Formalejo

Jared Formalejo

Jared is a 25-year-old man from the Philippines who has hemophilia and epilepsy. He's an aspiring entrepreneur happily living with his partner, Cza, and his daughter, Cittie — his pillars of strength and support.

March 18, 2020March 17, 2020

When Hemophilia Meets Epilepsy

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

It’s a struggle to balance life with two disorders. I need to take daily medications for epilepsy while also self-infusing to treat internal bleeds. I recently suffered a horrible epileptic ... Read more

February 26, 2020February 24, 2020

I’m Grateful for Childhood Friends Who Showed They Care

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

Looking back at my younger self, I don’t think I fully appreciated the help I received from others around me during my school experience. Being one of the few people ... Read more

February 12, 2020February 10, 2020

Playtime Is Not so Simple with Hemophilia

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

Our baby girl turned one earlier this year. Watching Cittie mature makes me reflect on the innocent phase of childhood. Life was so simple back then. I believed games and ... Read more

January 15, 2020January 13, 2020

2019 Was Rough, So I’m Embracing a New Year

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

With 2019 behind us, it’s time for everyone to start anew and welcome 2020 into their lives. It’s hard to be fond of 2019 considering the impact my chronic illness ... Read more

December 11, 2019December 11, 2019

My Organization’s Christmas Party Overflowed with Hope and Gratitude

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

With Christmas only a few weeks away, Hemophilia Association of the Philippines for Love and Service (HAPLOS) threw its annual Christmas party. It’s a modest event, but seeing people gather, ... Read more

November 20, 2019November 18, 2019

Performing My First Self-infusion Was Empowering

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

With so many injuries lately, possibly because of a lack of exercise, I found it necessary to finally learn the ropes of self-infusion. Self-infusion of critical factor is important for ... Read more

October 30, 2019October 25, 2019

Caregivers Are Huge Blessings in Our Lives

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I’ve been struggling with hip bleeds lately. I’m in the middle of recovering from a bleed on my right hip, which may have started because I put too much pressure ... Read more

October 9, 2019October 8, 2019

Muscular Atrophy Is a Sign That Something Needs to Change

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I’m starting to recover from my recent iliopsoas bleed. I’m irritated that my right hip isn’t as flexible as it used to be, but that’s a normal part of recovery. ... Read more

September 25, 2019September 23, 2019

The Small Things I Do to Manage the Pain of Iliopsoas Bleeds

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I’m confined to my bed, suffering from a bleed once more. Many hemophiliacs dread having a bleed in this area, called the iliopsoas muscles. It’s considered a very serious bleed, ... Read more

September 11, 2019September 9, 2019

Building Confidence in My Identity as a Father

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

As time passes, I can feel both the joys and the pressures of fatherhood. My life has centered around our daughter’s needs and ensuring that she is always happy and ... Read more