Posts by: Jared Formalejo

Jared Formalejo

I'm Jared Formalejo. I'm a 25-year old person with hemophilia and epilepsy from the Philippines. I'm an aspiring entrepreneur and I'm happily living with my partner, whom I want to cite as my primary source of strength and support.

February 13, 2019February 12, 2019

My First Steps into Parenthood

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

As I write this, I’m bedridden from a bleed in my right hip. I’m learning what it means to have both hemophilia and a baby girl. Although I could ... Read more

January 23, 2019January 22, 2019

Hi, Baby! My Thoughts on Becoming a Father

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

Editor’s note: After this column was written, Jared and his wife welcomed a healthy baby girl, Melanie Citrine, on Jan. 18. Congratulations! My wife is 38 weeks pregnant. I’ll ... Read more

December 19, 2018December 18, 2018

Finding Meaning in Chronic Illness

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I was born into this world with hemophilia. As a child, it was a reality I had to face, and I have no one to blame for my misfortune. ... Read more

December 5, 2018December 3, 2018

Merry Christmas from Our HAPLOS Community

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

My local hemophilia organization just held its annual Christmas party. During these celebrations, we are reminded that we belong to a community that empowers, cares, and provides us with ... Read more

November 14, 2018November 13, 2018

Exercising with Hemophilia Has More Pros Than Cons

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

An important part of my role in the Hemophilia Association of the Philippines for Love and Service (HAPLOS) is the promotion of physical fitness and exercise. I see many ... Read more

October 24, 2018October 23, 2018

What I Want for My Future Child

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

Time flies so surprisingly fast. It just dawned on me that I’ll be a father in three months; my wife, Cza, is already 26 weeks into her pregnancy. There’s ... Read more

October 10, 2018October 9, 2018

I Work in a Hemophilia Organization to Serve My Fellow Hemophiliacs

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

It’s rewarding to be able to serve my fellow people with hemophilia. I have often mentioned the Hemophilia Association of the Philippines for Love and Service (HAPLOS) in my ... Read more

September 26, 2018September 25, 2018

Hemophilia, Epilepsy, and Independence: Time to Fly, Baby Bird

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I’m a 25-year-old “PWD” (person with disabilities), and I’m not a baby bird anymore. It’s time for me to fly on my own, be independent, and take care of ... Read more

September 5, 2018August 30, 2018

Where We Are Now in Hemophilia Care

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

It’s not easy to live with hemophilia in the Philippines. When we hear stories of hemophilia care around the world, it’s hard not to feel envious of hemophiliacs outside ... Read more

August 22, 2018August 20, 2018

I Graduated from College and I Have Hemophilia, so What Now?

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I’ve always had a hard time coping with the fact that it’s quite difficult for me to find a decent source of income due to hemophilia and epilepsy. Although ... Read more

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