Why access to treatment is crucial with von Willebrand disease
I’ve previously written about fellow Floridian Kayla Mack, a woman in her 50s who has Type 3 von…
Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. She has deep roots in the bleeding disorder community, having been diagnosed with hemophilia B and Von Willebrand’s disease in 1975 at the age of 10. A proud graduate of the University of Wisconsin–Madison with a BA in marketing and journalism, Jennifer also completed MIT’s prestigious Birthing of Giants Fellowship Program. Originally from Brookfield, Wisconsin, she now lives in sunny Punta Gorda, Florida. Jennifer is the founder of GirlsBleedToo.com, a platform dedicated to raising awareness about bleeding disorders in women and girls. Through her writing, she hopes to educate, advocate, and amplify the voices of those—especially women—living with these often-overlooked conditions.
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I’ve previously written about fellow Floridian Kayla Mack, a woman in her 50s who has Type 3 von…
Dear 11-year-old me, Life might feel overwhelming at this moment, but remember, you are stronger than you realize.
I’d enjoyed several months without any bleeding problems until I experienced an unexpected ankle bleed last week. The elevator…
Nearly a year has passed since Hurricane Ian wreaked havoc on southwest Florida, leaving my hometown of Punta Gorda…
Last week, I stumbled upon the Tour de France while aimlessly flipping through TV channels. This annual professional…
When dealing with health issues, does when you were born matter? For those living with hemophilia, the answer is…
The pain that accompanied my periods was excruciating, exacerbated by my two bleeding disorders, hemophilia B and von…
I rarely disclose my diagnosis of hemophilia B and von Willebrand disease to others. I don’t like…
Clinical trials for hemophilia are essential to advance medical knowledge and develop treatments. But for decades, trials related…
Note: This column describes the author’s own experiences with Mounjaro (tirzepatide). Not everyone will have the same response to…
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