My hemophilia management involves rituals and chocolate
Several members of my family are diehard Purdue University basketball fans. This year was particularly exciting for them due…
Articles by Jennifer Lynne
Me, toxic? How I’m learning to rein in too much positivity
As someone who typically sees the glass half full, I’ve found myself to be the go-to adviser for my nephews,…
My top social media picks for the bleeding disorders community
Navigating social media for information about hemophilia and other health issues can produce mixed results, but amid the noise…
Transformed by Mounjaro: An update on my weight loss journey
Note: This column describes the author’s own experiences with Mounjaro (tirzepatide). Not everyone will have the same response…
Discussing platelet disorders with advocate Jeanette Jones
Last year, I had the privilege of connecting with Jeanette Jones, a former education manager at the Hemophilia Federation…
How I’ve handled several failures at feeling numb at the dentist
During the December holiday season, while visiting family in Illinois and Wisconsin, I had an unexpected dental emergency: A…
Where do we draw the line between advocacy efforts and complaints?
In a recent blog post on the Hemophilia Federation of America’s (HFA) website, HFA board member Joe Markowitz, 73,…
Dispelling myths about bleeding disorders, including hemophilia
Rare Disease Day, observed this year on Feb. 29, serves as a poignant reminder of the challenges facing those…
WHO’s guidance for the treatment of hemophilia sparks controversy
In the 1970s and ’80s, treating my von Willebrand disease and hemophilia B often involved a regimen that…
Navigating the financial challenges of bleeding disorders
A person like me, with bleeding disorders like hemophilia and von Willebrand disease, can incur staggering expenses. The…