UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Articles by Mary Chapman
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
Rare Diseases Clinical Research Network Opens Online Survey on COVID-19
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
NORD Opens COVID-19 Financial Aid Program for Rare Disease Community
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
WFH Takes This Year’s April 17 ‘World Hemophilia Day’ Campaign Online
Due to the global COVID-19 pandemic, World Hemophilia Day (WHD) will be  a little different this year to keep everyone…
Sigilon Gets $80.3M to Support Trial of Hemophilia A Candidate SIG-001
Some $80.3 million in financing will support the first clinical trial of Sigilon Therapeutics’ new hemophilia A cell…
In Potential $100M Deal, Medexus Acquires Ixinity for Hemophilia B
In an agreement expected to exceed $100 million, Medexus Pharmaceuticals has bought global commercial rights to Ixinity, an…
Patients With Bleeding Disorders Given Global Voice in PPTA Awareness Campaign
In support of Bleeding Disorders Awareness Month in March, the Plasma Protein Therapeutics Association (PPTA) is providing a global outlet for…
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…