New US Institute for Gene Therapies Seeks to Modernize Regulatory, Reimbursement Framework
The Institute for Gene Therapies (IGT) has launched, with the aim of maximizing the potential of gene therapies…
Articles by Mary Chapman
Audaire Health and AscellaHealth Partner to Promote Hemophilia Management Program
AscellaHealth and Audaire Health together are offering on a hemophilia management program that aims to containing prescription costs and…
Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
coreHEM Results Lead to Joint Effort to Create Tool for Assessing Mental Health in Gene Therapy
A publicly available, patient-reported outcome measure is being jointly developed by Green Park Collaborative (GPC) and the National Hemophilia…
Takeda, Virgin Pulse Team to ‘Challenge’ Hemophilia Patients into Adopting Healthy Lifestyles
To help promote healthy lifestyle changes, the pharmaceutical company Takeda has enrolled some 900 patients with bleeding disorders like …
Insurer Highmark Forges New Hemophilia Partnership Focused on Treatment, Management
As part of a new partnership focused on hemophilia treatment and management, members of insurer Highmark will receive medication exclusively…
Insurer Highmark Partners With Soleo Health for Hemophilia Care, Management
Citing Soleo Health’s clinical expertise and data-reporting capabilities, U.S. national insurer Highmark has tapped the specialty pharmacy and…
HFA’s FIRST Program, Promoting Women in Patient-centered Research, Wins PCORI Grant
To encourage more women to take part in disease research, the Patient-Centered Outcomes Research Institute (PCORI) has chosen the…
Ixinity for Hemophilia B Now Available in Larger 3,000 IU Vial Size, Aptevo Announces
Based on feedback from the hemophilia B community, Aptevo Therapeutics announced that a 3,000 international unit (IU) vial…
Bayer Commits to 5-Year Pact with WFH to Help Hemophilia Patients in Underserved Countries
A new five-year alliance between Bayer and the World Federation of Hemophilia (WFH) Humanitarian Aid Program will deliver…