Hemophilia Patients Can Now Share Treatment Information With Their Healthcare Team
A new online service allows patients with bleeding disorders like hemophilia to share important information about their treatment and bleeds with their…
Articles by Wendy Henderson
Young Boys Explain What It’s Like to Live With Hemophilia
In this video from the Hemophilia Federation of America, Kyle McCullough and Jesse Mayhan share what…
Explaining the Causes of Hemophilia
Hemophilia is a disease where a person blood lacks a factor which enables it to clot. This can lead to severe…
Could Genome Editing Be a Future Treatment for Hemophilia?
An experimental form of genome editing called clustered regularly interspaced short palindromic repeats or CRISPR/Cas9 could offer a faster and cheaper…
How to Explain Hemophilia to Children
In this simple animated video from CSL Behring US, hemophilia is explained in easy-to-understand language…
The Symptoms of Hemophilia
Hemophilia is a rare disorder where a person’s blood lacks a factor which enables it to clot, leading to excessive bleeding…
U.K. Launches Program to Raise Awareness of Invisible Illnesses
Signs are appearing outside restrooms in the United Kingdom to advise members of the public that not all disabilities are…
Explaining Joint Bleeding in Hemophilia
https://www.youtube.com/watch?v=NYdlke9Qo6w In this video from Medic Tube, find out how hemophilia patients can…
How to Create a Family Emergency Kit
The National Center on Birth Defects and Development Disabilities has an online booklet that helps hemophiliacs and…
What Causes Hemophilia?
https://www.youtube.com/watch?v=0_EmvUb171I This video from Medic Tube gives an overview of the genetic causes behind hemophilia. The narrator explains…