Whenever I’m on social media, I find myself questioning everything. Is that picture real or made by AI? Is this headline accurate? Are these videos genuine? I mostly stick to following family and friends, though I do enjoy dog videos. When it comes to messages from strangers, I’m pretty cautious.
Hemophilia 24/7
— Cazandra Campos-MacDonald
Rev. Cazandra Campos-MacDonald is a pastor, author, motivational speaker, and encourager. She lives in New Mexico with her husband, Rev. Dr. Joe MacDonald, and youngest son, Caeleb. Their adult son, Julian, is living the bohemian life of a starving artist and goes wherever there is an audition. Her sons live with severe hemophilia A and inhibitors. Her older brother died shortly after birth due to complications from hemophilia. Cazandra writes candidly of raising two sons with a rare bleeding disorder. She believes storytelling is about redeeming the journey and connecting with others.
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I’ve lived in New Mexico for 20 years, but I only recently visited the Loretto Chapel in Santa Fe. The chapel is known for its spiral staircase, built in 1878 with wooden pegs only, no nails. The staircase rises 22 feet to the choir loft without any central support.
As a chaplain, I am privileged to stand at the bedside of someone who is dying. Often, few words are exchanged. I know it is my presence there that matters most. When people learn that I work in hospice, they often say, “Oh, my goodness, that must be hard work.
Some of the funniest commercials are for insurance companies. Allstate’s Mayhem always makes me laugh. The GEICO Gecko is a fun, familiar character, and so are Flo from Progressive and Liberty Mutual’s LiMu Emu and Doug. But one series of commercials feels…
A voice memo appeared in a text from one of my hemophilia mom friends. We usually see each other at national meetings or on social media, but we don’t talk much outside of that. She’s one of the coolest women I know, so I always wonder why we don’t…
My husband, Joe, and I recently officiated a marriage vow renewal for close friends in Santa Fe, New Mexico, one of our favorite places. We made a long weekend of it, spending time with friends, meeting new people, and enjoying each other’s company. The next morning, we had breakfast at…
I love making quilts. Some people wonder why anyone would buy new fabric just to cut it up and sew it back together. It might sound odd, but for quilters like me, creating something by hand brings comfort, joy, and satisfaction. There is a rule when preparing to make…
I have a bad habit. When I shop for groceries, I grab what I need but often get distracted by a bright package. A new cookie? How many carbs are in it? The same thing happens when I watch a movie or listen to a podcast with lots of twists.
My husband, Joe, and my sons, Julian and Caeleb, each have their own unofficial jobs when we decorate for the holidays. Julian brings the dusty red and green totes full of Christmas decorations in from the shed. I open them and decide what comes inside first. Joe and Caeleb…
In my work as a hospice chaplain, I take the same routes when I drive to patients’ homes, assisted living facilities, or hospitals. Without thinking about changing lanes or adjusting my speed, my mind settles into autopilot, and I often arrive at my destination without realizing how far I’ve…
I rumbled around the house one evening, wrapped in my favorite oversized sweatshirt and cozy socks, the comfort like a warm embrace. I left my latest craft, hands marked with thread and bits of fabric, to refill my iced tea. As I made my way to the kitchen, I left…
Moving is challenging. Moving means packing, having to decide what to keep and what not to keep, learning a new place, having to find a new grocery store, a new hair and nail salon, a new healthcare provider. Doing all that this time offered an opportunity to remember and…
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