My sons have severe hemophilia A and are 10 years apart. Such a considerable age difference once posed challenges, especially when they were younger. Back then, my oldest son, Julian, felt he…
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Preparing for major spinal surgery has me feeling more than the usual pre-op jitters. There’s something more profound at work — a feeling that connects me to the years of watching my son Caeleb…
“Use the Press’n Seal to cover his bandages when showering!” That’s the text I sent to the wife of a hospitalized friend, who was preparing to be released after an arduous stay. Hearing of…
I signed up for a Facebook account in 2008. Social media was foreign to me then, but I tried it and was excited to find old friends from high school and college. Catching up…
My 18-year-old son, Caeleb, is an artist. When he starts talking about colors, a lengthy conversation will ensue. Now in college majoring in digital arts, he’s passionate about his field, and his love…
Imagine a large pickle jar, the kind you might see at a movie concession stand filled with pickles. But inside this otherwise empty jar sits a large ball that’s pressing against the…
I was honored to speak with my husband last week at the National Bleeding Disorders Foundation‘s annual Bleeding Disorders Conference, held this year in Atlanta. It was a memorable experience to…
“Be prepared.” Scouts around the world have this motto ingrained in their hearts. While I was a Girl Scout for only a short time, this practice remains essential to me. I look ahead and…
I live in the high desert of New Mexico, where we have over 300 days of sunshine each year. It’s a perfect place to hike, bike, climb, and run. The beauty of this…
My son Caeleb recently started college. He’s enjoyed the beginning of school and appreciates the flexibility of his schedule, but there’s one problem: his mobility. Caeleb lives with severe hemophilia A with…
I’m trying to accept that my youngest son, Caeleb, is a college freshman. People say that time flies by, and we should enjoy our children when they’re little. Those people are right. As my…
One of my favorite movies is “Galaxy Quest,” a comedy that parodies and pays homage to science fiction films and TV. In it, the cast members of a cult series much like…
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