In the Twinkling of an Eye - a Column by Joe MacDonald

manual, rest, unexpected, work ethic, pets

Joe is the father of two sons with hemophilia. He and his wife, Cazandra, are active members in the bleeding disorders community and often facilitate workshops both locally and nationally. Joe is a pastor in the United Methodist Church and writes a blog about spirituality and faith. You may follow his blog at www.joekmac.com.

Why I Say ‘Yes’ to the Bleeding Disorders Community

Recently, I opened an email from a company inviting me to share my insights regarding bleeding disorders and how my family handles the struggles of chronic illness. Before my sons were born, I think I would’ve hit the delete button without giving a similar invitation a second thought. But…

Walking Down a Hospital Hallway Brings Back Memories

This morning, I took my 16-year-old son, Caeleb, to physical therapy at Carrie Tingley Hospital in Albuquerque, New Mexico. He continues to experience recurring pains from past internal bleeding episodes in his right knee and ankle. The goal is to find the source of the pain and a…

When Two Caregivers Meet, We Recognize Each Other

Last week, I visited an outstanding church member in a local hospital. When I arrived, I saw a friend in the lobby, looked into her eyes, and knew that something was dreadfully wrong. She explained that her baby suffered unexplained medical issues and required immediate care. Parents whose children are…

Sometimes as a Caregiver, I Learn From My Son

As I entered my son’s bedroom this morning to turn on his light and wake him up, I heard him say a phrase that sent shivers down my spine. Caeleb, my boy, said, “Dad, my ankle hurts.” My first instinct wanted to allow him extra time to get himself together.

Proactivity Is a Great Tool When Treating Hemophilia

Last school year, my youngest son, Caeleb, had a difficult time as pain in his right knee and ankle resurfaced. Thank God he didn’t have any bleeding episodes, but he experienced the chronic symptoms of damage to his joints caused by past internal bleeds. His pain often proved too…