As a “HemoWife,” I’ve had the privilege of connecting with numerous people in the hemophilia community. While our shared experiences allow us to create a strong bond, one important topic often remains unspoken: the social and mental maladjustment that some people with hemophilia may face due to…
Columns
Welcome to my world, where it seems like I’m perpetually hosting a pity party. The past year has thrown more curveballs my way than I’d ever anticipated, leaving me caught in a never-ending hurricane of challenges. While I’m sharing my struggles here, I’m also keeping in mind the resilience of…
After writing a weekly column for over six years, I needed the break I’ve just completed. I’ve spent the past few months working to renew my spirit and consider what’s essential. I didn’t realize how desperately I needed to let go of some things. While my recent sabbatical is technically…
On Tuesday morning of last week, as I sat at my desk sifting through emails and attempting to plan my afternoon, my phone rang. I saw it was Julian, my oldest son, so I picked up the phone and steadied myself for our usual late-morning chat. I said hello in…
My husband, Jared, and I have now been married five years! In celebration of our anniversary, I dedicate this letter to him. To my dearest husband (and our daughter’s one and only “bleedy boy“), Five years have passed since the day we made a lifelong commitment to each…
Recently, I came across an old DVD recording of a Fourth of July celebration on a hot summer day in Baytown, Texas. Many families had gathered on blankets and lawn chairs to celebrate with one another and watch the evening’s entertainment. The first star of the production was…
As the carer of my husband, Jared, who has hemophilia B and a seizure disorder, I’ve realized the importance of communication, understanding, and empathy. Focusing on these values helps us mature in our roles while balancing personal challenges, which for me include being a caregiver, mother, and a person…
During my teenage years, I vividly recall attempting to convey the severity of my menstrual bleeding to a male hematologist. I described my bleeding by giving examples of the products I used, such as “superplus tampons” and “overnight maxi pads.” He couldn’t relate. In a somewhat perplexed tone,…
In middle school, I faced bullies just about every day. I often experienced physical violence during the three years I attended what was then called Burbank Junior High School in Houston. The beatings occurred so frequently that my speech teacher allowed me to stay in her class and…
In a society deeply rooted in patriarchal values, expectations regarding masculinity often dictate men’s roles and behaviors. With its historical background of colonization, the Philippines, where I live, has fostered a set of traditional norms regarding how men must assert dominance, provide for their families, and adhere to…
Recent Posts
- January’s reset means the system restarts, but our bodies do not
- People with hemophilia face 46% higher risk of bone fractures
- It’s important to find moments of joy amid the darkness of hemophilia
- With hemophilia, time went from standing still to flying by
- An unsettling dream reinforced the importance of building connections