Columns

In my five-plus years of writing columns for Hemophilia News Today, I’ve missed two weeks. Many times, I feel that I’m repeating myself as I struggle to write something that matters to the bleeding disorders community. I share daily experiences as I navigate bad and good moments with…

“Save the best for last” has been one of my major life philosophies since childhood. Growing up, I’d hoard beautiful pens, colored pencil sets, and other art materials. I’d use the cheap ones first while keeping the best ones in a drawer. I have attention-deficit/hyperactivity disorder, so I tend to…

My family has rented an Airbnb for a week in Las Cruces, New Mexico. We decided to take a few days for ourselves before turning our attention to the reason for our trip: Through Friday, my wife and I, both pastors, are participating in the yearly meeting of the…

My 4-year-old daughter, Cittie, recently invented a song about her dad. It’s sung to a tune that’s quite popular in children’s short videos, with the words “Daddy is a bleedy boy.” When my husband, Jared, heard it for the first time, he cracked up. He’s often referred to himself as…

I rarely disclose my diagnosis of hemophilia B and von Willebrand disease to others. I don’t like to speak about it, which is odd for someone who writes a column on the topic. Writing is different, though. I hope it will make a difference. By sharing…

Last week proved a time of celebration in the MacDonald house as my oldest son, Julian, came home to spend a few days with our family before going to Big Bend Ranch State Park for the summer. He successfully auditioned for his first paid acting gig in the show “…

My husband, Jared, is an avid eater. He’s especially fond of meaty dishes like pizza, barbecue, and steaks. He’d never pass up the chance to try a new restaurant, unique meal, or a different country’s cuisine. (No wonder he also loves to experiment in the kitchen!) There’s just one…

I spent some of the best years of my life at Galena Park High School in Texas. I participated in clubs only if they didn’t interfere with my work with band, and my grades were excellent. When I met my now husband in college, our drive to…

Clinical trials for hemophilia are essential to advance medical knowledge and develop treatments. But for decades, trials related to hemophilia enrolled only men, given the assumption that women were only carriers of the disease. Consequently, women with the disorder were denied the opportunity to participate in…

Last Friday, I had the honor of presiding over the funeral of my aunt Joyce. As I started to speak, I asked those attending to remember a particular date in 1973 when we, the family, celebrated the wedding of my uncle Pat. Everyone was dancing, and joy just filled…