The 'I' in Hemophilia - a Column by Jared Formalejo

Jared is a 25-year-old man from the Philippines who has hemophilia and
epilepsy. He’s an aspiring entrepreneur happily living with his partner, Cza, and his daughter, Cittie — his pillars of strength and support.

What I Want for My Future Child

Time flies so surprisingly fast. It just dawned on me that I’ll be a father in three months; my wife, Cza, is already 26 weeks into her pregnancy. There’s a lot of pressure, but I hope that my kid can be proud to have me as a father. It’s of…

Where We Are Now in Hemophilia Care

It’s not easy to live with hemophilia in the Philippines. When we hear stories of hemophilia care around the world, it’s hard not to feel envious of hemophiliacs outside of our country who receive proper healthcare and can live a normal life. In this column, I will tackle the issue…

Thinking About Finances and Fatherhood

The topic of fatherhood is often an awkward one to talk about with other men. To an extent, I have that same sort of apprehension as I always find myself asking the question, “Am I truly ready to take care of a child?” I imagine others may find it difficult…

I’m Learning to Accept My Normal

My condition, hemophilia, has always been an enigma for me. It’s been a huge challenge to my personal development, physical health, and mental stability. I wanted to believe that this disease was given to me for a reason. However, as the years progressed, I was wracked with hemophilia complications, and…