The Marvel Cinematic Universe is part of today’s culture. Its movies take theatergoers to places never imagined. Iron Man, Thor, and Doctor Strange are a few of the characters that it brings to life, and each seems incredibly realistic. When I watch these movies, I can’t help but…
Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald
I arrived late for the concert. An usher whisked me to my seat, as my husband and our son Caeleb had already arrived. As I walked down the aisle, feeling very conspicuous in my clerical collar (I didn’t have time to change), I noticed the backs of hundreds…
When I was a young woman, I was very negative. I would look ahead to a situation and immediately imagine the possible pitfalls. I never considered everything would work according to plan. When plans went better than expected, it was a bonus. As a former glass-half-empty kind of person,…
I have a variety of satellite radio stations saved as favorites in my car, with Broadway, The Blend, Classic Rock, The Groove, Symphony Hall, and ’80s as the ones I enjoy the most. The ’80s music transports me to my high school days, which were filled with beautiful memories.
When my youngest son, Caeleb, was 8 years old, our family went on a trip that required him to use a wheelchair at the airport. His severe hemophilia A with an inhibitor had caused persistent joint bleeds, which resulted in significant pain and limited mobility, as well as…
I have battled weight and self-image issues since I was a teenager. Being present with my hospice patients day in and day out becomes draining. I take on any pain and disappointment my husband and sons experience. And when I witness my boys struggle because of hemophilia, the…
The adventure of life is filled with ups and downs. Focusing on a word instead of on New Year’s resolutions can be a powerful practice when navigating a bleeding disorder. A focus word serves as a daily reminder and source of motivation, providing a lens through which to…
The holiday season means different things for different people. Wrapping presents, taking a family vacation, or simply baking cookies are some of the activities that bring people happiness during this time. Regardless of a person’s faith, tradition, or experience, the holidays are meant to bring joy, love, hope, and…
Taking time off is critical for our mental health. Even if a vacation is a staycation, having time to relax and have fun is essential for our overall well-being. Rest and rejuvenation also help make us more productive. But vacations are a luxury. Traveling to Europe, cruising to Mexico, and…
This time of year brings many changes to the usual routines of life. The weather is colder, the leaves have fallen off the trees, and the days are shorter, with darkness arriving early. It’s also a time of joyous celebrations, traditions, and memory-making. For many, this season includes cookies,…
Recent Posts
- Little interest in gene therapy for many with severe hemophilia: German study
- With bleeding disorders, how do we know when pain isn’t ‘just pain’?
- 17-year-old advocate shares her NMOSD story to raise awareness
- Accommodations won’t keep us from enjoying a day at the museum
- I unpack the past with hemophilia and discover the strength of my adult son