Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

“How many kids with hemophilia does it take to change a light bulb?” “None. Their mother will do it for them.” This is a joke that was told by ... Read more

September 13, 2017September 13, 2017

How Our Family Regained Control

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

There have been seasons when hemophilia became the center of my family’s universe. A bleed would start and before it healed completely, it re-bled, or a new one began. ... Read more

September 6, 2017September 6, 2017

Inhibitors and Blood Work: No Fear of Numbers

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Routine blood draws are a necessity when you have an active inhibitor. I try to get Caeleb’s lab work done at least every two months, and the results will ... Read more

August 30, 2017August 29, 2017

Bullies, the Bus, and Warriors: Reminders of Magnificence

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It amazes me how people with a bleeding disorder just go with the flow, living their lives and accepting their routines as normal. They forget that what they do ... Read more

August 23, 2017August 22, 2017

New Products in the Marketplace: What Do I Look For?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Changes are happening in the bleeding disorder community like I never imagined. New product after new product has hit the marketplace, each one claiming to be the best available. ... Read more

August 16, 2017August 16, 2017

Back to School: Hemo-mom Ready to Educate, Advocate

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My youngest son, Caeleb, begins middle school this year. He is super-excited about starting the sixth grade, but I am not nearly as enthusiastic. He’s already thinking about new ... Read more

August 9, 2017August 9, 2017

Bleeding Disorder Community: Your Stories Matter

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Two likes. No comments. Just. Two. Likes. A friend, who has a son with hemophilia, told me about her daughter’s new diagnosis unrelated to bleeding disorders. She was scared ... Read more

August 2, 2017August 1, 2017

PE and 504s: A New Year is Beginning

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my oldest son, Julian, started elementary school in 2001, I was encouraged to proceed with a 504 plan for his protection. Section 504 refers to the Rehabilitation Act ... Read more

July 26, 2017August 1, 2017

Finding Joy and Giving Thanks

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you live with a bleeding disorder, life can sometimes seem to be nothing but chaos. Just as one bleed seems to heal, another one begins. You start to ... Read more

July 19, 2017July 19, 2017

New Products for Hemophilia: An Ever-Changing Landscape

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

More than 21 years ago, when my first child was born and diagnosed with severe hemophilia A, he was very fortunate to have first-generation clotting factors available. These were ... Read more