Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

September 18, 2019September 16, 2019

Cutting Remarks Can Harm Those with Invisible Illness

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior, Caeleb, has been in great health for the past five years. Five years of the occasional ear infection, strep throat, or allergies, but no bleeds. In ... Read more

September 11, 2019September 9, 2019

I Am Grateful for My Son’s Marching Band Role, Despite His Joint Pain

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My 13-year-old son Caeleb has had five years without experiencing any bleeding episodes. He developed an inhibitor at 11 months old, which is still active. Sometimes I find it ... Read more

September 4, 2019August 30, 2019

My Message to Teachers: When in Doubt, Call Me

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The start of a new school year is one of my favorite times. It smells of new pencils and crayons, lunchboxes, and my favorite, spiral notebooks. It’s a season ... Read more

August 28, 2019August 23, 2019

Practicing Self-care Is Key to Caregiver Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Caregiving is hard work. When your child is chronically ill, caregiving goes beyond the expected parental duties. You have overwhelming responsibilities. There are doctor’s appointments, infusions, and treatments at ... Read more

August 21, 2019August 19, 2019

Receiving News That’s Hard to Hear

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Over the past few months, my son Caeleb has complained of knee pain. “It’s not buzzy or achy, Mom,” he would say. “It just really hurts.” After his annual ... Read more

August 14, 2019August 12, 2019

A Letter to My Younger Self: Looking Back at My Son’s Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It’s easy to look back and think about what one could have done differently. Handling a crisis with grace rather than anger, calling the doctor immediately instead of waiting, ... Read more

August 7, 2019August 5, 2019

When Plans Go Awry: I’m Trying My Best to Be Grateful

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Raising two sons with hemophilia has taught me to be flexible. I have learned that my best attempts to make plans can be thrown out the window in an ... Read more

July 31, 2019July 29, 2019

Looking to My Sons’ Futures with Hope

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I have big dreams for my sons. I want them to go to college, have successful careers, and find loving partners. I hadn’t thought that these things would be ... Read more

July 24, 2019July 22, 2019

3 Little Words that Remind Me of the Presence of My PTSD

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My 13-year-old son Caeleb, who had severe hemophilia A and an inhibitor, has not had a bleed in five years. For three of those years, he received a daily ... Read more

July 17, 2019July 15, 2019

Change Is Hard, but My Son Realizes He Needs to Take Control of His Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When your children move into adulthood, managing their bleeding disorder becomes their responsibility. I have worked hard to prepare my adult son. He says “adulting” is not fun. I ... Read more

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