Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

November 14, 2018November 14, 2018

PTSD Will Not Define Us

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My seventh-grade son, Caeleb, is the new kid in a small, rural community where everyone has grown up together, so it’s hard to fit in and make friends. He ... Read more

October 31, 2018October 31, 2018

Keep Your Hands and Feet to Yourself

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Perhaps the most important lesson we learn at school is to keep our hands and feet to ourselves. I have thought about this rule every time my sons have ... Read more

October 24, 2018October 22, 2018

Stories and the Sacred: I Wouldn’t Change a Thing

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior Caeleb is 12 years old and officially an inch taller than me. Every day he stands next to me, checking to see if that inch has ... Read more

October 17, 2018October 15, 2018

Invisibility Is Not the Easy Way

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I loved watching the Harry Potter movies with my sons, especially the earlier ones where Harry, Ron, and Hermione were much younger. The magic and wonder of wizards and ... Read more

October 10, 2018October 9, 2018

A Routine Ailment … Maybe One Day

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

There is a funny cartoon making the Facebook rounds. It shows two images, one for “normal parents” and the other for “medical field parents.” The normal parents’ side has ... Read more

October 3, 2018October 1, 2018

Chronic Illness and Depression Often Go Hand in Hand

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I have suffered from clinical depression most of my life. Five weeks after my eldest son was born over 22 years ago and diagnosed with hemophilia, my mom passed ... Read more

September 26, 2018September 25, 2018

Lessons Learned, the Hard Way

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Wash your hair. Brush your teeth. Please, for the sake of the world, put on deodorant! Hundreds of times I have given those commands to my sons. Well, not ... Read more

September 19, 2018September 17, 2018

How to Find and Give Hope in the Bleeding Disorder Community

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I get many opportunities to travel across the country to speak with families affected by bleeding disorders. Everywhere I go, I see familiar faces — faces that bring me ... Read more

September 5, 2018September 4, 2018

I Still Worry About My Son with Hemophilia, but He’s an Adult Now

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My eldest son, Julian, is 22. He is studying music at college. It’s his passion, and as I have a music education degree and my husband has a music ... Read more

August 29, 2018August 24, 2018

Letting Go: The Transition Begins

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I met with my mighty warrior’s new principal and school nurse last week. I took my presentation, and thanks to the Hemophilia Federation of America, I was ready to teach and ... Read more