Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

March 18, 2020March 17, 2020

How I React When Others Are Concerned About My Son’s Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It is hard for some of the people in my community to understand why my son Caeleb struggles when he walks. Many see him as a normal 14-year-old boy ... Read more

March 11, 2020March 9, 2020

It’s Hard to See My Son Walk with a Cane

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My 14-year-old son Caeleb is having trouble walking. Some days are better than others, but the bad days are filled with crazy pain. His right knee and ankle have ... Read more

March 4, 2020March 2, 2020

What It Means to Be Rare on Bleeding Disorders Awareness Month

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It seems as if there is a day for everything: there’s National Wear Red Day, Boss’s Day, Rare Disease Day, Love Your Pet Day, and even National Margarita Day. ... Read more

February 26, 2020February 24, 2020

Recognizing the Gift of Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Hemophilia has been a gift. Let me explain. I know some people will struggle to understand my viewpoint. I realize that they have suffered great physical and emotional pain ... Read more

February 19, 2020February 17, 2020

Switching Treatments: It’s Not Easy to Embrace Change

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Change is inevitable — like it or not, it’s a part of life. The seasons change and bring a crispness to the air or warmth after the bitter winter ... Read more

February 12, 2020February 10, 2020

The Stories We Don’t Hear

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It was a beautiful Sunday afternoon and I encouraged my son Caeleb to take our dog, Betty, for a walk. He gathered the necessities of a 14-year-old — headphones ... Read more

February 5, 2020February 3, 2020

Talking to My Son About Chronic Pain

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I’ve been living with chronic pain for several years. When I’m asked whether I had an accident or trauma to my neck and back, my answer is no. But ... Read more

January 29, 2020January 27, 2020

Physical Therapy Snapped Us Out of Complacency

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you are around someone day in and day out, there are things that you don’t notice. A few pounds lost, a change in mood, or even a change ... Read more

January 22, 2020January 20, 2020

How Do You Know When a Child’s Pain Is Real?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Parenting is not easy. And when you have a child with a rare bleeding disorder such as hemophilia, it is exponentially more difficult. Not only are you dealing with ... Read more

January 15, 2020January 13, 2020

Remembering the Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I received an email from a friend I hadn’t heard from in some time. She told me that her nephew and his wife just had a baby and he ... Read more