Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

July 11, 2018July 6, 2018

My House Move Sparked Memories of Previous Bleeds

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My family just moved. My husband’s job has led us on another adventure. With moving comes boxes. They are everywhere, and we are in the midst of finding our ... Read more

June 20, 2018June 18, 2018

Giving Thanks for My Partner This Father’s Day

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a woman who is extremely blessed. I have a roof over my head, food on the table, a little bit of money in my pocket, and two ... Read more

June 6, 2018June 4, 2018

It’s Time for My Son to Spend a Week at Hemophilia Camp

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

New swimming trunks, sunscreen, cap, sleeping bag — gathering these items means it’s time for hemophilia camp! My son Caeleb is so excited that he is driving his dad ... Read more

May 30, 2018May 29, 2018

Showing Appreciation for the People Behind the Scenes

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a musician who has played in orchestra pits, wind ensembles, chamber groups, and orchestras. I even played antiphonal oboe one Christmas! Music is powerful. It transforms you ... Read more

May 23, 2018May 23, 2018

My Son’s Birth Led to the Discovery of a Family Secret

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

There are moments in life that seem to disappear, while others have burned into my memory. I can remember a moment that took place 20 years ago, and my ... Read more

May 16, 2018May 15, 2018

Despite Hemophilia Joint Damage, New Treatment Opens Up Possibilities

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior Caeleb came home from school last week with a question. “Mom,” he asked, “my knee is really messed up, isn’t it?” I couldn’t see an injury, and so I ... Read more

May 9, 2018May 9, 2018

New Hemophilia Therapy Could Be a Game Changer

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

With my oldest son, who is now 21, I never worried about limitations. He played soccer for a season, and that was the extent of his athletic pursuits. He ... Read more

May 2, 2018April 30, 2018

Why Do We Walk? Because We Can!

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I recently spoke to members of the Sangre de Oro Chapter of the National Hemophilia Foundation, based in Albuquerque, New Mexico. They are my family. We gathered to “kick ... Read more

April 18, 2018April 17, 2018

A Month’s Supply and Feeling Lost

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I couldn’t believe Caeleb was about to get his first dose of Hemlibra (emicizumab-kxwh). I have been following several people whose children participated in the Hemlibra study (NCT02622321) before ... Read more

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