Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

November 6, 2019November 4, 2019

Children Hear More Than You Think

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my oldest son was diagnosed with hemophilia, it did not take long for my husband and I to start researching. More than anything I wanted connection. We found ... Read more

October 30, 2019October 28, 2019

Limited Choices Make for Hard Realizations

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

“I wish that I were normal,” my mighty warrior Caeleb said as we returned from his recent orthopedic appointment. I looked at him and chuckled. “Son, there is no ... Read more

October 23, 2019October 21, 2019

An Upcoming Appointment Stirs Up Painful Memories

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a big list maker. Each day I start with a list of tasks that I need to accomplish. I find it gratifying to cross through each item ... Read more

October 16, 2019October 14, 2019

A Letter to Those Who Mean Well

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Dear Friend, We live in a world where people want to help each other. I know you mean well, but there are a few things I need you to ... Read more

October 9, 2019October 7, 2019

How to Connect and Share with Others in the Bleeding Disorder Community

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Organizations such as the Hemophilia Federation of America and the National Hemophilia Foundation provide the bleeding disorder community with a wide array of resources, support, and platforms to connect ... Read more

October 2, 2019September 30, 2019

It Costs Nothing to be Nice

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Last year was difficult for my mighty warrior Caeleb. Moving to a new school in a town where everyone knows everyone is not something you wish for as an ... Read more

September 25, 2019September 23, 2019

As Parents of Children with Invisible Illness, We Must Always Remain Vigilant

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My 13-year-old son, Caeleb, is a victim of bullying. This school year had a better start than the previous one until a couple of boys decided to pick on ... Read more

September 18, 2019September 16, 2019

Cutting Remarks Can Harm Those with Invisible Illness

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior, Caeleb, has been in great health for the past five years. Five years of the occasional ear infection, strep throat, or allergies, but no bleeds. In ... Read more

September 11, 2019September 9, 2019

I Am Grateful for My Son’s Marching Band Role, Despite His Joint Pain

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My 13-year-old son Caeleb has had five years without experiencing any bleeding episodes. He developed an inhibitor at 11 months old, which is still active. Sometimes I find it ... Read more

September 4, 2019August 30, 2019

My Message to Teachers: When in Doubt, Call Me

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The start of a new school year is one of my favorite times. It smells of new pencils and crayons, lunchboxes, and my favorite, spiral notebooks. It’s a season ... Read more

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