Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

July 17, 2019July 15, 2019

Change Is Hard, but My Son Realizes He Needs to Take Control of His Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When your children move into adulthood, managing their bleeding disorder becomes their responsibility. I have worked hard to prepare my adult son. He says “adulting” is not fun. I ... Read more

July 10, 2019July 8, 2019

From Severe to Mild: My Son Embarks on a New Adventure

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Severe, moderate, and mild: These are the degrees with which a person with hemophilia is labeled based on the percentage of clotting factor in their blood. With the word ... Read more

July 3, 2019July 1, 2019

My Son’s Trip to a Trampoline Park Is a Triumph Over Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When I was a kid in the 1970s and ’80s, I thought children who had trampolines in their yards were amazing. Being invited over to jump on a friend’s ... Read more

June 26, 2019June 24, 2019

Lessons I Learned from My Son’s Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Twenty-three years ago, my life changed dramatically. I became a mom. My firstborn, Julian, entered the world screaming at the top of his lungs with a head full of ... Read more

June 19, 2019June 17, 2019

Children Are Different, and So Are Their Experiences with Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Most people will tell you that their children are opposites. One is outgoing, the other would rather be left alone. One will talk until your head hurts, the other ... Read more

June 12, 2019June 10, 2019

Summer Camp Success: Time with Fellow Warriors Fosters Independence

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a believer in the benefits of summer camp — hemophilia camp to be specific. Children with bleeding disorders across the U.S. have the opportunity to spend time ... Read more

June 5, 2019June 3, 2019

With a New Treatment, It’s Time to Reorganize Our Routines

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my youngest son needed daily infusions, keeping up with factor and supplies was not difficult. There was never any question as to when an infusion would take place, ... Read more

May 29, 2019May 28, 2019

Recognizing the Signs of Depression During Mental Health Month

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

May is a busy month — with end of school year parties and graduations, the time flies as summer begins. This month is significant for another reason: May is ... Read more

May 22, 2019May 20, 2019

This Graduation Season, Take Stock of Your Achievements

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The month of May can be an emotional roller coaster for many. Social media fills up with parents bragging about their children’s latest accomplishments — honor society, college acceptance ... Read more

May 15, 2019May 13, 2019

New Treatments Mean Summer Camps Can Focus on Fun

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Summer is upon us. Our kids have big plans: sleeping in, watching television, playing video games, sleepovers, vacations, and summer camp. From church camp to athletic and band camp, ... Read more