Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

My youngest son, Caeleb, begins middle school this year. He is super-excited about starting the sixth grade, but I am not nearly as enthusiastic. He’s already thinking about new ... Read more

August 9, 2017August 9, 2017

Bleeding Disorder Community: Your Stories Matter

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Two likes. No comments. Just. Two. Likes. A friend, who has a son with hemophilia, told me about her daughter’s new diagnosis unrelated to bleeding disorders. She was scared ... Read more

August 2, 2017August 1, 2017

PE and 504s: A New Year is Beginning

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my oldest son, Julian, started elementary school in 2001, I was encouraged to proceed with a 504 plan for his protection. Section 504 refers to the Rehabilitation Act ... Read more

July 26, 2017August 1, 2017

Finding Joy and Giving Thanks

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you live with a bleeding disorder, life can sometimes seem to be nothing but chaos. Just as one bleed seems to heal, another one begins. You start to ... Read more

July 19, 2017July 19, 2017

New Products for Hemophilia: An Ever-Changing Landscape

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

More than 21 years ago, when my first child was born and diagnosed with severe hemophilia A, he was very fortunate to have first-generation clotting factors available. These were ... Read more

July 12, 2017July 12, 2017

Knowledge is Power

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Whenever I hear the phrase, “Knowledge is power, ” I think back to the animated children’s television show Schoolhouse Rock. I loved how fun, catchy songs taught kids how ... Read more

July 5, 2017July 2, 2017

Pulling My Head Out of the Sand on Health Coverage Changes That Could Affect Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my oldest son was diagnosed with severe hemophilia at birth, I found myself catapulted into a world I never knew existed. I became part of the bleeding disorder ... Read more

June 28, 2017June 27, 2017

Honorarium Offered: A Chance to Spread the Word

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

In the bleeding disorder world, there are often opportunities to earn a few extra dollars. Research companies, pharmaceutical companies, and reporters will often reach out to members of the ... Read more

June 21, 2017June 20, 2017

Advocating in Changing Times

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you live with a bleeding disorder, there are many things that are out of your control. When the next bleed will happen, how long a hospital stay will ... Read more

June 14, 2017June 14, 2017

The Change of Seasons Can be a Blessing

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you live with a bleeding disorder there are both good seasons and bad seasons. The good seasons are filled with scheduled prophy infusions, no bleeds, no missed days ... Read more