In the Twinkling of an Eye – a Column by Joe MacDonald

October 10, 2019October 8, 2019

Wishing My Wife a ‘Happy Birthday’

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Oct. 7, 2019, came and went like any other day. Our family went about our business: my son went to school, and I sat at my desk, planning my ... Read more

October 3, 2019September 30, 2019

The Lingering Effects of Recurring Joint Bleeds

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Years ago, I watched my youngest son, “MacDonald the Younger,” as he struggled with recurring joint bleeds. Each episode took more of his mobility away. He could not extend ... Read more

September 26, 2019September 24, 2019

We All Need More Disney Moments

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

When “MacDonald the Younger” was 5, a social worker from the hemophilia treatment center gave his name to the Make-A-Wish Foundation. They granted my son’s wish to go to ... Read more

September 19, 2019September 17, 2019

The Unwritten Rules of Processing Information

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

One of my favorite educational philosophers is Ruby Payne. Payne focuses on the unwritten rules of social classes and how various groups respond to and receive information. Payne suggests ... Read more

September 12, 2019September 10, 2019

Let Us Cross the Bridge

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

A few years ago, my family and I attended an inhibitor symposium in San Francisco. While the conference was jam-packed with incredible information, we did have a little free ... Read more

September 5, 2019September 3, 2019

Hope in the Toughest of Circumstances

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Yesterday, I went through the pictures on my iPhone. I started with the most recent, moving backward, my heart beating faster with each swipe. By the time I had ... Read more

August 29, 2019August 27, 2019

Changes in Treatment Options Result in Redefining Boundaries

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

There is no doubt that the new medicine Hemlibra (emicizumab) is a game changer in the treatment of hemophilia. Instead of multiple infusions daily, one injection could last two ... Read more

August 22, 2019August 20, 2019

A Leap of Faith and an Allergy Treatment Changed My Son’s Life

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

For many years we tried to overcome my younger son’s reaction to factor VIII. No matter which medical product we tried, we ended up with the same results. He ... Read more

August 15, 2019August 13, 2019

A Coloring Book Prompts Reflection on My Choice of a Road to Treatment

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I was with my son in a store recently when a coloring book for adults caught my eye. Ordinarily, I wouldn’t have given it a second glance. But what ... Read more

August 8, 2019August 5, 2019

The Faces of Worry: Raising Children with Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

There is never a time that I do not worry about my sons. “MacDonald the Older” is 23, but not a day goes by that I do not feel ... Read more