In the Twinkling of an Eye – a Column by Joe MacDonald

August 6, 2020August 3, 2020

National Hemophilia Conference Provides Hope for the Future

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Saturday afternoon marked the opening of the virtual edition of the National Hemophilia Foundation’s Bleeding Disorders Conference. I immediately missed the in-person experience, meeting old friends, walking through the ... Read more

July 30, 2020July 28, 2020

Our Virtual Connectedness

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As we continue to practice social distancing, I find it exceedingly difficult to stay connected to brothers and sisters in the hemophilia community. I gain strength and hope from ... Read more

July 23, 2020July 20, 2020

Beyond Diagnosis, We Found Community

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I am the first person to insist that a diagnosis does not define my children. In my home, we never call our children hemophiliacs, rather we focus on the ... Read more

July 16, 2020July 15, 2020

We Are the Experts of Our Own Stories

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

At times I struggle with documenting my journey as a caregiver for a loved one with a bleeding disorder. I can’t offer medical advice because I am not an ... Read more

July 9, 2020July 6, 2020

The Roles We Play as Caregivers

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Two weeks ago, my family moved back to New Mexico. Today, I find myself attempting to bring order to my office. I started matching books with the subject matter ... Read more

July 2, 2020June 29, 2020

Accepting a Hemophilia Diagnosis Was a Question of Faith

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I entered my 3-month-old son’s room and stared at him as he peacefully slept in his cradle. Streetlights shined through the window into the darkened room. I glanced out ... Read more

June 25, 2020June 23, 2020

Managing Chaos as a Family

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

If there is one word in the English language that drives me batty, it’s “chaos.” It implies a lack of control and an inability to stand on firm ground. ... Read more

June 18, 2020June 16, 2020

Answering the Tough Questions

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As caregivers of loved ones managing chronic illness, we face questions that, when first heard, knock us to our knees. For my family, it was not so much a ... Read more

June 11, 2020June 10, 2020

Advocating Out of the Shadows and Into the Light

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

It’s essential that we inform the world about struggles in the bleeding disorders community by showing them how to be advocates. We must teach our loved ones how to ... Read more

June 4, 2020June 2, 2020

Keeping Museum Fridays Alive

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

During the summer, my sons and I usually choose a museum to visit on Fridays. It started with “MacDonald the Older” and continues with “MacDonald the Younger.” I look ... Read more

Pin It on Pinterest