In the Twinkling of an Eye – a Column by Joe MacDonald

May 28, 2020May 26, 2020

And Then Came Aunt Jessie

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Heroes come in all shapes and sizes. Sometimes, it is challenging to recognize the people in our lives who overcame overwhelming odds to remind us that life means more ... Read more

May 7, 2020May 6, 2020

Life May Be Difficult, but We’ve Got This

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Families who live with chronic illness have quickly learned to place trust in medical teams to determine the best course of action. If doctors and nurses suggest we quarantine, ... Read more

April 9, 2020April 6, 2020

In Times of Crisis, Hope Reigns Supreme

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

With all the issues surrounding the new coronavirus, I can’t help remembering about 15 years ago when we faced the possibilities of a medical shortage in the bleeding disorders ... Read more

March 19, 2020March 18, 2020

As Parents, We Are in the Construction Business

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Raising children is like building a house. For those of us who manage chronic illness and other disorders, our floor plans may look a little different, but at the ... Read more

March 12, 2020March 10, 2020

Music Is in the MacDonald Blood

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I do not have hemophilia. My sons are the ones who live with a chronic bleeding disorder, and at first, I struggled to find something we might have in ... Read more

March 5, 2020March 3, 2020

Hemophilia Does Not Define My Sons

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I do not like to tell people that my sons are hemophiliacs. It is not that I am blind to the reality that they have a bleeding disorder, but ... Read more

February 27, 2020February 25, 2020

Managing Multiple Hemophilia Diagnoses: How My Family Responded

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As I mentioned in an earlier column, the news that my firstborn son had hemophilia caught my wife and me entirely off guard. When we spoke with the obstetrician, ... Read more

February 20, 2020February 18, 2020

A Time to Celebrate Our Family

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I am sitting in a favorite restaurant with the three great loves of my life: my wife and two sons. It is Valentine’s Day, and the place is packed ... Read more

February 13, 2020February 11, 2020

The Importance of Self-care

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

A lack of control is one of the most frustrating things about staying in the hospital. Doctors, nurses, and everyone else enters the room without permission. Nothing runs on ... Read more

February 6, 2020February 4, 2020

Surrounded by Breathtaking Works of Art

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As a father of sons with hemophilia, I know my way around a hospital like the back of my hand. We have visited the emergency room far too often. ... Read more