In the Twinkling of an Eye – a Column by Joe MacDonald

March 19, 2020March 18, 2020

As Parents, We Are in the Construction Business

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Raising children is like building a house. For those of us who manage chronic illness and other disorders, our floor plans may look a little different, but at the ... Read more

March 12, 2020March 10, 2020

Music Is in the MacDonald Blood

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I do not have hemophilia. My sons are the ones who live with a chronic bleeding disorder, and at first, I struggled to find something we might have in ... Read more

March 5, 2020March 3, 2020

Hemophilia Does Not Define My Sons

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I do not like to tell people that my sons are hemophiliacs. It is not that I am blind to the reality that they have a bleeding disorder, but ... Read more

February 27, 2020February 25, 2020

Managing Multiple Hemophilia Diagnoses: How My Family Responded

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As I mentioned in an earlier column, the news that my firstborn son had hemophilia caught my wife and me entirely off guard. When we spoke with the obstetrician, ... Read more

February 20, 2020February 18, 2020

A Time to Celebrate Our Family

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I am sitting in a favorite restaurant with the three great loves of my life: my wife and two sons. It is Valentine’s Day, and the place is packed ... Read more

February 13, 2020February 11, 2020

The Importance of Self-care

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

A lack of control is one of the most frustrating things about staying in the hospital. Doctors, nurses, and everyone else enters the room without permission. Nothing runs on ... Read more

February 6, 2020February 4, 2020

Surrounded by Breathtaking Works of Art

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As a father of sons with hemophilia, I know my way around a hospital like the back of my hand. We have visited the emergency room far too often. ... Read more

January 30, 2020January 28, 2020

Reflecting on the Community Support We Received After Diagnosis

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

We all have a story about a time when our lives changed. Some memories elicit the best of times, while others recall deep pain. For me, the day my ... Read more

January 23, 2020January 21, 2020

My Family Is Facing Unexpected Challenges

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

We have looked forward to this moment for years. No longer do we have to find veins or stick a 2-inch needle into a port-a-cath under the skin every ... Read more

January 16, 2020January 14, 2020

Wanting More Won’t Stop My Family from Being Content Now

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My son couldn’t walk, and placing him in a wheelchair proved to be impossible. Internal bleeding into a knee or ankle forced my “stinky boy” to remain in bed. ... Read more