News

October 30, 2020October 30, 2020

Acupuncture Might Work Better Than TENS to Reduce Chronic Joint Pain

News

Acupuncture was found to be more effective for reducing chronic joint pain in hemophilia patients than transcutaneous electrical nerve stimulation, or TENS, the results from a small clinical trial ... Read more

October 28, 2020October 28, 2020

Patients Report Mostly High Satisfaction With US Hemophilia Treatment Centers

News

People living with bleeding disorders such as hemophilia and von Willebrand disease report consistently high levels of satisfaction with the care they receive at U.S. hemophilia treatment centers (HTCs), ... Read more

October 27, 2020October 28, 2020

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

News, syndicated

A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front cover of an upcoming calendar ... Read more

October 26, 2020October 26, 2020

Hemlibra Improves Quality of Life in Children With Hemophilia A, Data Show

News

Preventive treatment with Hemlibra (emicizumab) improves health-related quality of life (HQRoL) in children with hemophilia A who develop inhibitors, or neutralizing antibodies, against engineered factor VIII (FVIII), an essential ... Read more

October 23, 2020October 23, 2020

Good Long-term Outcomes After Knee Replacement in Hemophilia Patients, Study Finds

News

Most people with hemophilia who undergo knee replacement surgery have favorable outcomes, including less pain and improved function, a new single-center study from South Korea reports. The study, “Mid-to ... Read more

October 21, 2020October 21, 2020

Telehealth Favored by Hemophilia Patients at Dublin Center, Survey Finds

News

The widespread adoption of telehealth during the COVID-19 pandemic has improved access to specialty care for people with hemophilia, made it more convenient, and increased patient engagement, a study based ... Read more

October 20, 2020October 20, 2020

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

News, syndicated

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its use in future appointments, a ... Read more

October 19, 2020October 26, 2020

Hemlibra ‘Comparable or Better’ Treatment for Hemophilia A, ICER Finds

News

At standard U.S. doses, Hemlibra (emicizumab) provides comparable or even superior clinical benefits than prophylactic factor VIII (FVIII) replacement therapy among adults with severe hemophilia A and no inhibitors, according ... Read more

October 16, 2020October 16, 2020

Alprolix Shows Key Benefits for Hemophilia B Patients in Real-World Setting

News

Treatment with Alprolix improves bleeding control, reduces the need for infusions, and improves patient compliance among people with hemophilia B, according to a review of real-world data. The study, “Real‐world ... Read more

October 14, 2020October 14, 2020

Interviews Reveal Women With Genetic Blood Disorders Share Uncertainties Regarding Diagnosis

News

Women with genetic blood disorders, including those who are carriers of hemophilia A and B, face multiple uncertainties surrounding their diagnosis, according to a recent interview-based study. Many women ... Read more