News

September 21, 2018

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News

More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to converge on Washington, D.C., next month for the 2018 NORD Rare Diseases & Orphan Products ... Read more

September 20, 2018September 20, 2018

Call Out for Original Artwork by Hemophilia Patients To Be Part of NHF October Conference

News

Creative expression within the bleeding disorders community will be on display for the thousands expected to attend the National Hemophilia Foundation’s (NHF) Annual Bleeding Disorders Conference next month in Orlando, Florida. ... Read more

September 19, 2018September 19, 2018

Bike Ride Honors Barry Haarde, Who Championed Fight Against Bleeding Disorders

News

Barry Haarde was a tough man to stop. Despite a decades-long battle with HIV and a near-death brush with hepatitis C, he made history in 2012 as the first ... Read more

September 17, 2018September 17, 2018

Octapharma USA, GutMonkey Sponsor Week-long Adventure Trip to San Juan Islands

News

In keeping with its mission to change how members of the bleeding disorder community think about their condition, Octapharma USA has joined with GutMonkey to provide a challenging week-long, ... Read more

September 14, 2018September 14, 2018

Liver Transplant Highly Benefits, But May Not Fully Cure, Hemophilia, Case Report Shows

News

A liver transplant can be live-saving for hemophilia patients, but may not always fully cure the disease, according to the case report about a hemophilia A patient. The letter ... Read more

September 12, 2018September 12, 2018

Hemophilia A Gene Therapy Candidate SB-525 Posts Good Early Trial Results

News

The investigational gene therapy SB-525 is tolerated well by patients, and dose-dependent responses are positive, according to preliminary results of a Phase 1/2 clinical trial of hemophilia A. The potential ... Read more

September 10, 2018September 10, 2018

Excess Weight, Obesity Affecting More Hemophilia Patients, Study Shows

News

About a third of European and North American hemophilia patients are overweight or obese, which is associated with increased joint dysfunction and chronic pain, according to a recent review ... Read more

September 7, 2018September 7, 2018

Idelvion for Hemophilia B Now Available in Large 3500 IU Vial Size, CSL Behring Announces

News

Idelvion (albutrepenonacog alfa), a hemophilia B treatment approved for up to 14-day dosing, is now available in a large, 3500 IU vial size (3500 IU), CSL Behring announced. Vials for the ... Read more

September 5, 2018September 5, 2018

Hemlibra Reduces Bleeds in Hemophilia A Patients Without Inhibitors, Phase 3 Trial Shows

News

Hemlibra (emicizumab) was able to prevent excessive bleeding in patients with severe hemophilia A without inhibitors, according to results from a Phase 3 trial. Trial findings were published in the study, ... Read more

August 31, 2018August 31, 2018

FDA Approves Bayer’s Jivi for Hemophilia A Patients 12 and Older

News

The U.S. Food and Drug Administration has approved Bayer’s Jivi, previously known as BAY94-9027, as a preventive therapy for hemophilia A in patients ages 12 and older, the company announced. The ... Read more

Pin It on Pinterest