Most mornings, before the day can get its hands on me, I do exercises for my spine. They are not impressive. No one would film them. They are slow, deliberate movements on a mat, the kind of thing that looks like nothing and costs more than it looks. Bracing. Holding.
Discussion
Denecimig (Mim8), an investigational antibody therapy being developed by Novo Nordisk, continued to maintain low bleeding rates in children, adolescents, and adults with hemophilia A, with safety findings consistent with earlier studies, regardless of inhibitor status or dosing schedule. That’s according to interim data from FRONTIER4 (NCT05685238), an…
Discussion
My youngest son, Caeleb, is working this summer as an office intern at St. Paul’s United Methodist Church in Las Cruces, New Mexico, where I serve as pastor. Even though I am his father, “MacDonald the Younger” does not report to me. He reports to the business manager. That boundary…
Discussion
Many people believe that if a disability or struggle is not visible, it must not be real. I learned this lesson firsthand as I watched my son Caeleb live with severe hemophilia A and its lasting effects. His challenges are not always obvious to others, but they affect nearly every…
Discussion
For couples affected by hemophilia who want to avoid passing the inherited bleeding disorder to their children, early genetic testing — done during the in vitro fertilization (IVF) process — may offer a reliable option for family planning, a new study from Italy suggests. That study investigated a procedure…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
Get regular updates to your inbox.
