Children with hemophilia who underwent surgery to remove the tonsils or adenoids experienced almost no bleeding complications when surgeons followed a structured bleeding management plan, according to a 14-year single medical center review. Of 18 pediatric hemophilia patients who underwent the surgery, one child had a minor bleeding episode,…
Discussion
My son Caeleb has hemophilia, and when he was in high school, he dealt with a lot of chronic pain, the result of continuous bleeding episodes into his right knee and ankle. He missed many days of school because the pain was so great that he couldn’t focus. I…
Discussion
My son Caeleb recently had his wisdom teeth removed. Caeleb has severe hemophilia A with an inhibitor, but hemophilia hasn’t been the main focus in his life for years. Nevertheless, before the surgery, he called the hemophilia treatment center (HTC) to ask about what steps to…
Discussion
Note: This column describes the author’s and his sons’ experiences with Hemlibra (emicizumab-KXWH). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. The dog days of summer can lull you into a false sense of security. There’s not much going on,…
Discussion
While patient-reported measures can provide valuable insight into an individual’s experience with hemophilia, a study suggests they may not be reliable for comparing outcomes across different hospitals. “Patient-centered outcomes demonstrate low to moderate reliability for hospital-level comparisons,” researchers wrote in the paper, “Assessing the Real-World Value of Hemophilia…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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