News Poor Joint Health Linked to Lower Self-Esteem in Adolescents with Hemophilia, Study Suggests

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald My Family Is Facing Unexpected Challenges

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald How Do You Know When a Child’s Pain Is Real?

News Hemlibra Used to Prevent Bleeds Can Aid Joint Health in Hemophilia A, Trial Data Show

Columns, The Forgotten Factor - a Column by Shellye Horowitz Horrible Periods Are Not Necessary

Columns, HemoWife - a Column by Alliah Czarielle Sometimes I Need to Take My Mind Off You

News Valrox, Potential Hemophilia A Gene Therapy, May Cost Up to $3 Million, BioMarin Says

News Risk of Inhibitors with Nuwiq Similar to Plasma-derived Products in Untreated Hemophilia A Patients, Trial Shows

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Wanting More Won’t Stop My Family from Being Content Now

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo 2019 Was Rough, So I’m Embracing a New Year

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Remembering the Diagnosis

News ASC Therapeutics Partners with Vigene for Manufacturing Support for Hemophilia A Gene Therapy Program

Columns, The Forgotten Factor - a Column by Shellye Horowitz Women Get Inhibitors, Too, and Should Be Tested Regularly

Columns, HemoWife - a Column by Alliah Czarielle The Joys of an Occasional Reprieve

News Generation Bio Raises $110 Million for Non-viral Gene Therapy for Hemophilia A, Other Diseases

News AMT-061 Increases FIX Activity, Prevents Bleeds in Severe Hemophilia B Patients, Phase 2b Data Show

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald I’m Thankful for Lessons Learned

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald It’s Time to Let Go of the Items That Haunt Me

News BioMarin’s Gene Therapy, Found to Reduce Bleeding Events in Hemophilia A, Submitted for U.S. Approval

Columns, The Forgotten Factor - a Column by Shellye Horowitz Hematologist Carol Kasper Discusses the Challenges for Women with Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle Enjoying the Gifts and Counting Our Blessings

News Pfizer Taking over Development of Potential Gene Therapy SB-525, Advancing into Phase 3 Trials

News Top 10 Hemophilia Stories of 2019

Columns, Stories from the Road - a Column by Ann Kendall Moving from Darkness into Light

News Takeda Presents Real-World Data on Cost-Effectiveness and Long-term Benefits of Adynovate and Feiba

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Quick Look Backward Before Moving Forward

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Looking Ahead to the New Year

News Takeda Presents Early Data About Improving Efficiency of Hemophilia A and B Gene Therapy

Columns, The Forgotten Factor - a Column by Shellye Horowitz Managing Holiday Stress with Hemophilia

News Takeda, Virgin Pulse Team to ‘Challenge’ Hemophilia Patients into Adopting Healthy Lifestyles

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Surrendering Worries for Moments of Rest

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo My Organization’s Christmas Party Overflowed with Hope and Gratitude

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Remembering the Power of a Small Gesture This Christmas

News Gene Therapy Takes Center Stage at 2019 NORD Summit

News Bayer, Children’s Hospital of Philadelphia Working on Non-replacement Hemophilia Therapies

Columns, The Forgotten Factor - a Column by Shellye Horowitz Counting the Missing Women with Hemophilia

News New Early Data Support Catalyst’s MarzAA in Treating Acute Bleeds in Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle My Baby’s Becoming a Daddy’s Girl

News Enzyre and Takeda to Develop Coagulation Test that Patients Can Use at Home

News HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

Columns, Stories from the Road - a Column by Ann Kendall Our Tiny Traveling Notebooks

News First 2 Adults with Severe Hemophilia A Respond Well to Gene Therapy in Clinical Trial

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald We Aren’t in Kansas Anymore

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald How to Be Prepared This Holiday Season

News Insurer Highmark Forges New Hemophilia Partnership Focused on Treatment, Management

Columns, The Forgotten Factor - a Column by Shellye Horowitz Breaking into the Boys Club: Women with Hemophilia

News Programmed Pump Infusions Aid in Care of Hemophilia A Patients After Surgery, Study Says

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Giving Thanks for the Blessings in My Life

News Lower-dose Preventive Therapy Reduced Bleeding Events in Thai Children with Hemophilia A, Study Shows

Columns, The Forgotten Factor - a Column by Shellye Horowitz Gratitude on the Hemophilia Journey

Columns, HemoWife - a Column by Alliah Czarielle Dreams of a Better Future

News BioMarin Seeks Marketing Approval in Europe for its Investigational Gene Therapy, Valoctocogene Roxaparvovec

Columns, Stories from the Road - a Column by Ann Kendall Clap After Every Pirouette

News Pregnant Hemophilia B Carriers Have Three Times the Risk of Postpartum Hemorrhage, Swedish Study Finds

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Learning to Manage My Anxiety While Serving as Caregiver

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Performing My First Self-infusion Was Empowering

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald A New Journey: My Son’s Chronic Pain

News Insurer Highmark Partners With Soleo Health for Hemophilia Care, Management

Columns, The Forgotten Factor - a Column by Shellye Horowitz We Need to Recognize the Treatment Needs of People with Mild Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle As New Parents, Scheduling Activities Is More Important than Ever

News China Opens Blood Disease Platform, Collecting Patient Data to Improve Research and Treatment

News Proper Nutrition Lacking in Children with Hemophilia in Iraqi Province, Study Says

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Here’s a Thumbs-up to Taking Back Control

News Rare Disease Film Festival Highlights Patient and Researcher Unity

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Sharing Stories Comes with Responsibility

News Modified Clotting Factor X Slowed Bleeding in Mouse Model of Hemophilia A, Study Reports

Columns, The Forgotten Factor - a Column by Shellye Horowitz I’m Bleeding, Believe Me

Columns, HemoWife - a Column by Alliah Czarielle Adulting Is Hard, Especially with Chronic Illness

News Hemophilia Patients, Caregivers Identify Factors That Influence Decision to Switch Treatments

Columns, Stories from the Road - a Column by Ann Kendall Innovation Required: Taking Care on the Road

News Updated Alta Trial Results Support Advancement of SB-525 Gene Therapy for Hemophilia A

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald We Never Stop Learning

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Children Hear More Than You Think

News uniQure Granted US Patent to Use FIX-Padua for Hemophilia B Gene Therapy

Columns, The Forgotten Factor - a Column by Shellye Horowitz Beautiful, Bachelorette, Bleeder: When to Disclose a Diagnosis

News Anticoagulant Protein TFPI Crucial to Bleeding Severity Profile of Hemophilia Patients, Study Says

News Promising Interim Results Reported for uniQure’s Gene Therapy AMT-061 in Phase 2b Hemophilia B Trial

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Joy of Serving in a Leadership Position

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Caregivers Are Huge Blessings in Our Lives

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Limited Choices Make for Hard Realizations

News Professional Help Essential for Parents Telling Daughters of Hemophilia Carrier Risk, Study Reports

Columns, The Forgotten Factor - a Column by Shellye Horowitz An Open Letter to Providers Treating Women with Hemophilia

News Older Hemophilia Patients have Lower Rates of Multiple Medication Use than Their Peers, Study Reports

Columns, Stories from the Road - a Column by Ann Kendall ‘Wash Your Face First’: Lessons in Self-care for Caregivers

News Elimination of HCV in People with Bleeding Disorders Surpasses WHO Goals, Study Finds

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Unpacking a New Reality in the Silence

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald An Upcoming Appointment Stirs Up Painful Memories

News Hemlibra Safe, Effective in Kids with Hemophilia A Regardless of Inhibitor Status, Data Show

Columns, The Forgotten Factor - a Column by Shellye Horowitz I Feared My Diagnosis and Loss of the Known

News Fitbit Can Be Used to Track Physical Activity in People with Hemophilia, Study Finds

News Novo Nordisk Opens Observational Study of Hemophilia Affects the Brain in Young People

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Eyes of ‘MacDonald the Older’

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald A Letter to Those Who Mean Well

News Bone Defects Detected at Birth, After Injury, in Mouse Models of Hemophilia A and B, Study Shows

Columns, The Forgotten Factor - a Column by Shellye Horowitz Today, I Dance: My Journey to Physical Activity

Columns, HemoWife - a Column by Alliah Czarielle Redefining Gender Roles as a Couple Living with Chronic Illness

News Novo Nordisk Partners with Bluebird Bio to Develop New Gene Therapies for Hemophilia, Other Disorders

News FDA Approves Wilate for Adults and Adolescents With Hemophilia A

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Wishing My Wife a ‘Happy Birthday’

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Muscular Atrophy Is a Sign That Something Needs to Change