My oldest son, Julian, has one life goal in mind: to make it to Broadway. From his earliest years, my boy would sing for anybody who would listen to him. While we share a love of music, I admit that he can sing so much better than I ever dreamed.
Discussion
I never thought my life would be like this, but as a mother, I had no choice but to be strong for my children. As a mother of two sons with severe hemophilia A, Lean Archer and Lukas, my world has been shaped by fear, vigilance, and unconditional love.
Discussion
As we approach our one-year anniversary in our home in Las Cruces, New Mexico, I want to spend more time on our beautiful, shaded back patio. We just got a new flat-top griddle, which works like a big cast-iron skillet. It’s great for everything from eggs and pancakes to veggies…
Discussion
In the large clinical trial that supported the 2024 approval of Hympavzi (marstacimab) for adults and children with hemophilia, use of the prophylactic injection therapy was found to help prevent bleeding episodes. Breakthrough bleeds that did occur, or minor surgical procedures that were needed, were generally effectively treated…
Discussion
I once arrived late to an event and offered no explanation. I’d been standing at my door, ready to go, when I realized I needed to infuse factor VIII before I could proceed safely. Because I have hemophilia, I infuse factor every 48 hours to prevent bleeding. I use…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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