Having severe hemophilia A means everything can be life-threatening. In February, I had a tooth extraction that required sedation, after a year of preparation. It took that long because, here in the Philippines, a vial of factor VIII can cost up to $163, which we had to save.
Discussion
I woke up on Saturday morning and struggled to stand upright. My back had given out, and I could hardly take a step forward. Sunday morning was no better, but I had to prepare for worship, so I was determined to get dressed, get to church, and fulfill my duties…
Discussion
I have two dogs, Laggie and Hildie, that are a mix of border collie and Australian shepherd. They’re 5 years old and came from the same litter, even sharing the same sac, which is pretty rare. Laggie looks more like a border collie, while Hildie takes after the Australian shepherd…
Discussion
In a small study, children with hemophilia A had distinct changes in certain immune cells and inflammatory signaling molecules compared with healthy children, and the type of preventive treatment they receive may shape those immune responses in different ways, according to the researchers. In lab experiments, macrophages — immune…
Discussion
When I first started writing for Hemophilia News Today in 2018, I never imagined it would become part of my career. At the time, I was a young woman preparing for marriage and trying to make sense of life with hemophilia. I had stories to tell, lessons to…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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