June 20, 2018June 18, 2018
Giving Thanks for My Partner This Father’s Day
Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald
I am a woman who is extremely blessed. I have a roof over my head, food on the table, ... Read more
June 18, 2018June 18, 2018
New Program Offers Second Expert Opinion to Patients with Rare Diseases Like Hemophilia
News
Express Scripts has teamed up with PinnacleCare to include in its new Rare Conditions Care Value (RCCV) program a service that ... Read more
June 15, 2018June 15, 2018
Data Supports Potential for Personalized Hemophilia A Therapy with Nuwiq, WFH Presentations Show
News
Since every hemophilia A patient responds differently to therapies, researchers are working to develop personalized preventive (prophylaxis) strategies with ... Read more
June 14, 2018June 12, 2018
Hemophilia Camp Sparks Joy in My Son
Columns, In the Twinkling of an Eye - a Column by Joe MacDonald
My son gets off the bus. I look at his face, hoping to see an indication of how his ... Read more
June 13, 2018June 13, 2018
Can Hemophilia Be a Disability?
Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald
Social media. You either love it or hate it. I must confess that I am guilty of wasting time ... Read more
June 13, 2018June 13, 2018
Hemophilia Patients Want to Lead More Active Lives, Survey Results Indicate
News
Preliminary results from the U.S. part of Bayer’s global HemACTIVE patient survey show that a majority of hemophilia ... Read more
June 11, 2018June 14, 2018
US Bioservices Working with MedImpact to Offer Select Services to Members with Hemophilia
News
US Bioservices, a specialty pharmacy, announced that it is working with the pharmacy benefit management company MedImpact to dispense prescriptions ... Read more
June 8, 2018June 8, 2018
uniQure Granted 2 New Patents Covering Gene Therapy Approach for Hemophilia B
News
A gene therapy approach acquired by uniQure was recently covered in two new patents, one issued in the United ... Read more
June 7, 2018June 5, 2018
The Lessons Our Son Taught Us One Day at the Pool
Columns, In the Twinkling of an Eye - a Column by Joe MacDonald
My wife and I sat by the pool and watched our 3-year-old super fish glide through the water. The ... Read more
June 6, 2018June 4, 2018
It’s Time for My Son to Spend a Week at Hemophilia Camp
Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald
New swimming trunks, sunscreen, cap, sleeping bag — gathering these items means it’s time for hemophilia camp! My ... Read more
June 6, 2018June 6, 2018
FDA Grants Priority Review to Hemlibra for Treatment of Hemophilia A Without Factor VIII Inhibitors
News
Hemlibra (emicizumab-kxwh) was recently granted priority review status by the U.S. Food and Drug Administration following the agency’s acceptance ... Read more
June 4, 2018June 1, 2018
How I Chose a Man with Severe Hemophilia to Be My Life Partner
Columns, HemoGirlfriend - a Column by Alliah Czarielle
When I was younger, my parents would tell me to date a particular “ideal” man. This man need not ... Read more

June 20, 2018June 18, 2018

Giving Thanks for My Partner This Father’s Day

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a woman who is extremely blessed. I have a roof over my head, food on the table, a little bit of money in my pocket, and two ... Read more

June 18, 2018June 18, 2018

New Program Offers Second Expert Opinion to Patients with Rare Diseases Like Hemophilia

News

Express Scripts has teamed up with PinnacleCare to include in its new Rare Conditions Care Value (RCCV) program a service that provides patients with rare diseases like hemophilia a second opinion ... Read more

June 15, 2018June 15, 2018

Data Supports Potential for Personalized Hemophilia A Therapy with Nuwiq, WFH Presentations Show

News

Since every hemophilia A patient responds differently to therapies, researchers are working to develop personalized preventive (prophylaxis) strategies with Nuwiq (antihemophilic factor .) Octapharma, the treatment’s manufacturer, presented data showing that ... Read more

June 14, 2018June 12, 2018

Hemophilia Camp Sparks Joy in My Son

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My son gets off the bus. I look at his face, hoping to see an indication of how his first camp experience went. Did he have a good time? ... Read more

June 13, 2018June 13, 2018

Hemophilia Patients Want to Lead More Active Lives, Survey Results Indicate

News

Preliminary results from the U.S. part of Bayer’s global HemACTIVE patient survey show that a majority of hemophilia patients want to be more active but are limited in their ... Read more

June 11, 2018June 14, 2018

US Bioservices Working with MedImpact to Offer Select Services to Members with Hemophilia

News

US Bioservices, a specialty pharmacy, announced that it is working with the pharmacy benefit management company MedImpact to dispense prescriptions and select services through the MedImpact Direct Specialty Program for the hemophilia ... Read more

June 8, 2018June 8, 2018

uniQure Granted 2 New Patents Covering Gene Therapy Approach for Hemophilia B

News

A gene therapy approach acquired by uniQure was recently covered in two new patents, one issued in the United States and one in Canada, broadly covering ways of treating ... Read more

June 7, 2018June 5, 2018

The Lessons Our Son Taught Us One Day at the Pool

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My wife and I sat by the pool and watched our 3-year-old super fish glide through the water. The skill he displayed with a set of floaties wrapped around ... Read more

June 6, 2018June 4, 2018

It’s Time for My Son to Spend a Week at Hemophilia Camp

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

New swimming trunks, sunscreen, cap, sleeping bag — gathering these items means it’s time for hemophilia camp! My son Caeleb is so excited that he is driving his dad ... Read more

June 6, 2018June 6, 2018

FDA Grants Priority Review to Hemlibra for Treatment of Hemophilia A Without Factor VIII Inhibitors

News

Hemlibra (emicizumab-kxwh) was recently granted priority review status by the U.S. Food and Drug Administration following the agency’s acceptance of Genentech’s supplemental biologics license application (sBLA) for the treatment ... Read more

June 4, 2018June 1, 2018

How I Chose a Man with Severe Hemophilia to Be My Life Partner

Columns, HemoGirlfriend - a Column by Alliah Czarielle

When I was younger, my parents would tell me to date a particular “ideal” man. This man need not be good looking, but he’d better be a good guy ... Read more