Columns, HemoGirlfriend - a Column by Alliah Czarielle On Entrepreneurship, Pregnancy, and a Husband’s Chronic Illnesses

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Look Ma, No Port!

News Call Out for Original Artwork by Hemophilia Patients To Be Part of NHF October Conference

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald How to Find and Give Hope in the Bleeding Disorder Community

News Bike Ride Honors Barry Haarde, Who Championed Fight Against Bleeding Disorders

Columns, HemoGirlfriend - a Column by Alliah Czarielle I Will Not Baby My Husband

News Octapharma USA, GutMonkey Sponsor Week-long Adventure Trip to San Juan Islands

News Liver Transplant Highly Benefits, But May Not Fully Cure, Hemophilia, Case Report Shows

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald What About Hemophilia?

News Hemophilia A Gene Therapy Candidate SB-525 Posts Good Early Trial Results

Columns, HemoGirlfriend - a Column by Alliah Czarielle Coping with Anxiety While Contemplating Motherhood

News Excess Weight, Obesity Affecting More Hemophilia Patients, Study Shows

News Idelvion for Hemophilia B Now Available in Large 3500 IU Vial Size, CSL Behring Announces

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Helpless, but Not Hopeless: Part 3

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Where We Are Now in Hemophilia Care

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald I Still Worry About My Son with Hemophilia, but He’s an Adult Now

News Hemlibra Reduces Bleeds in Hemophilia A Patients Without Inhibitors, Phase 3 Trial Shows

News FDA Approves Bayer’s Jivi for Hemophilia A Patients 12 and Older

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Helpless, but Not Hopeless: Part 2

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Letting Go: The Transition Begins

Columns, HemoGirlfriend - a Column by Alliah Czarielle Why Can’t a Person with Hemophilia Be Considered ‘Healthy?’

News First Hemophilia B Patient Treated with AMT-061 in Phase 2b Trial

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Helpless, but Not Hopeless

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo I Graduated from College and I Have Hemophilia, so What Now?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Basketball Hopes for My Son with Hemophilia

News Irish Medical University and Bayer Partner to Advance Treatments for Hemophilia

Columns, HemoGirlfriend - a Column by Alliah Czarielle A Carer’s Experience of ‘Invisible Disability’ Discrimination

News Phase 2/3 Clinical Trial of MarzAA Shows Promise in Hemophilia Treatment

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Dreaded ‘Beginning of School’ Question

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald I Will Not Be Quick to Blame My Child’s School

Columns, HemoGirlfriend - a Column by Alliah Czarielle Help Me Help You: A Carer’s Perspective

News Hemlibra Approved in Canada to Treat Hemophilia A Patients with Factor VIII Inhibitors

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Our Family’s Second Hemophilia Diagnosis Was Harder than the First

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Thinking About Finances and Fatherhood

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald You Can Advocate for Your Child with These Back-to-school Tips

News Multiple Factors Contribute to Development of FVIII Inhibitors in Hemophilia, Review Finds

News Employment Status, Pain, Low Physical Activity Linked to Anxiety, Depression in Hemophilia Patients

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Life Can Change In an Instant

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald What Is a 504 Plan and Why Do I Need It?

News Hemophilia Federation of America Gathering Memorabilia to Mark 25 Years of Service

Columns, HemoGirlfriend - a Column by Alliah Czarielle Entering Married Life with a Husband Who Has Hemophilia

News Gene Therapy Wins Over Prophylaxis in Cost-Benefit Analysis as Long-term Treatment for Severe Hemophilia A

News New Kit Demonstrates Clinical Validity as Measure of FVIII Inhibitors in Hemophilia A

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald I Will Teach You How to Skate and Sing

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Mighty Warrior Is in a Bubble No More

News The Assistance Fund Offers New Program to Help Hemophilia Patients with Medical Expenses

Columns, HemoGirlfriend - a Column by Alliah Czarielle A Field Guide to Dating Someone with Hemophilia

News BAY 94-9027 Shows Extended Duration in Hemophilia A Patients in Analysis of Trial Data

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald We Struggle and We Move On

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Frogs, Snails, and a New Chapter

News Pfizer Launches Phase 3 Program to Test Gene Therapy for Treating Hemophilia B

News XaTek Raises $9M to Advance ClotChip, Portable Device That Quickly Analyzes Blood’s Ability to Clot

News Companies Collaborating to Conduct Musical Workshop for Teens Affected by Bleeding Disorders

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald My Sons’ Courage with Hemophilia Help Me Face Diabetes Injections

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo I’m Learning to Accept My Normal

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My House Move Sparked Memories of Previous Bleeds

News Experts Define Recommendations for Best Surgery Management Practices in Hemophilia Patients

Columns, HemoGirlfriend - a Column by Alliah Czarielle Starting My Journey to Motherhood as a #HemoGirlfriend

News Despite Protective Effects, Cardiovascular Disease Still a Risk in Moderate to Severe Hemophilia Patients, Study Finds

News Hemophilia Drug Development Summit Takes Aim at Hurdles Facing New and Upcoming Treatments

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald It’s a Long Way from Home to First Base

Columns, HemoGirlfriend - a Column by Alliah Czarielle Remembering My Mom, a Brave Chronic Illness Fighter

News First Patient Enrolled in Phase 3 Trial of uniQure’s AMT-061 for Hemophilia B

News Canadian PREVAIL Trial Investigates Use of Wilate for Certain Hemophilia A Patients

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Moving Forward Despite Hemophilia Battle Fatigue

News CB 2679d Brings Clotting Protein Levels Closer to Normal in Hemophilia B Patients, Phase 1/2 Data Show

News Oxidation of FVIII Increases Immune Response in Hemophilia A Mouse Model, Study Finds

News Developing Inhibitors Inflates Treatment Costs and Impairs Quality of Life, Study Finds

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald When I Hear ‘Hey, Padre!’ I Know All is Right in My World

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Giving Thanks for My Partner This Father’s Day

News New Program Offers Second Expert Opinion to Patients with Rare Diseases Like Hemophilia

News Data Supports Potential for Personalized Hemophilia A Therapy with Nuwiq, WFH Presentations Show

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Hemophilia Camp Sparks Joy in My Son

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Can Hemophilia Be a Disability?

News Hemophilia Patients Want to Lead More Active Lives, Survey Results Indicate

News US Bioservices Working with MedImpact to Offer Select Services to Members with Hemophilia

News uniQure Granted 2 New Patents Covering Gene Therapy Approach for Hemophilia B

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald The Lessons Our Son Taught Us One Day at the Pool

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald It’s Time for My Son to Spend a Week at Hemophilia Camp

News FDA Grants Priority Review to Hemlibra for Treatment of Hemophilia A Without Factor VIII Inhibitors

Columns, HemoGirlfriend - a Column by Alliah Czarielle How I Chose a Man with Severe Hemophilia to Be My Life Partner

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News FDA Approves Larger Idelvion Vial Size for Hemophilia B Patients Requiring Higher Doses

News #WFH2018 — SPK-9001 Reduces Bleeding Rates by 98% in Hemophilia B Patients, Phase 1/2 Trial Shows

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Finding the Meaning in the Word ‘Team’

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Showing Appreciation for the People Behind the Scenes

News BIVV001 Extends Lifetime of Hemophilia A Replacement Therapy, Early Trial Data Shows

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Hemlibra Looks to Reach ‘Ultimate Goal’ of Treating All with Hemophilia A and with Choice in Dosing, Genentech Director Says

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald We Are Mighty as We Face Hemophilia Challenges Together

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Son’s Birth Led to the Discovery of a Family Secret

News Hemlibra Ably Treats Hemophilia A Patients Regardless of Inhibitor Status, Data from 2 Phase 3 Trials Show

News Patient Advocacy Groups Focus on Key Issues Affecting Hemophilia in 5 States

News Joint Inflammation Can Lessen Life Quality in People with Severe Hemophilia, Study Says

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Finding Answers Together

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News National Camp Exchange, Program for Hemophilia Camp Leaders, Now Taking Applications

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Despite Hemophilia Joint Damage, New Treatment Opens Up Possibilities