Lately, I’ve been seeing a trend on social media where people ask artificial intelligence (AI) tools to write them a letter. Usually, the prompts are deeply personal. People ask for letters from their future selves, their inner child, or versions of themselves they feel disconnected from after grief, burnout, heartbreak,…
Discussion
There are events I know I should attend but talk myself out of. The Bleeding Disorders Foundation of Florida’s special Ladies Tea Luncheon has often been one of them. It’s not because it isn’t worthwhile — it absolutely is — but because getting to Tampa from where I live…
Discussion
Hemlibra (emicizumab) alongside immunosuppressive therapy appears safe for use in acquired hemophilia A (AHA), according to initial results of a real-world study in Japan, the only country where Hemlibra has approval for this indication. “At this interim analysis, there were no unexpected safety concerns for … patients with…
Discussion
My oldest son, Julian, has one life goal in mind: to make it to Broadway. From his earliest years, my boy would sing for anybody who would listen to him. While we share a love of music, I admit that he can sing so much better than I ever dreamed.
Discussion
I never thought my life would be like this, but as a mother, I had no choice but to be strong for my children. As a mother of two sons with severe hemophilia A, Lean Archer and Lukas, my world has been shaped by fear, vigilance, and unconditional love.
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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