More than 30 years ago, my wife, Cazandra, and I began our work in the bleeding disorders community after our oldest son, Julian, was diagnosed with hemophilia. Since then, we have served on the boards of several chapters and presented workshops across the country. We love the work because…

As a classically trained oboist, I enjoy attending the symphony, except when Wagner is on the program. I like to get there early and watch what happens before the performance starts. Musicians come on stage one by one, settle in, adjust their sheet music, and sometimes practice.

Once-weekly infusions of Altuvoct (efanesoctocog alfa) — a long-lasting hemophilia treatment marketed in the U.S. as Altuviiio — reduced bleeding in adults and children with hemophilia A for whom preventive treatment was not sufficiently effective. That’s the key finding of a new French real-world study that tracked…

Recently, I posed a question to Hemophilia News Today readers on social media for Disability Pride Month: “Do you consider hemophilia to be a disability? Yes, no, or somewhere in between?” The question prompted a wide-ranging public discussion. Some considered hemophilia to be a disability because of its…