The Dreaded ‘Beginning of School’ Question
“MacDonald the Younger” is entering the seventh grade this year. His health is terrific, and for the first time in his life, there is ... Read more
Updates
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I Will Not Be Quick to Blame My Child’s School
Having a bleeding disorder can be frightening. In the beginning, it is normal to think about the what-ifs when you’re unsure of what to ... Read more -
Help Me Help You: A Carer’s Perspective
Last week, just after our wedding, Jared got a shoulder bleed. Jared has severe hemophilia B, but he does not get bleeds often. ... Read more -
Hemlibra Approved in Canada to Treat Hemophilia A Patients with Factor VIII Inhibitors
Health Canada has approved Hemlibra (emicizumab) as a treatment to prevent or reduce bleeding in Hemophilia A patients in Canada who have factor ... Read more -
Our Family’s Second Hemophilia Diagnosis Was Harder than the First
My eldest son was about to celebrate his ninth birthday. He had attended a fantastic performing arts camp. My wife and I bought ... Read more
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Thinking About Finances and Fatherhood
The topic of fatherhood is often an awkward one to talk about with other ... -
You Can Advocate for Your Child with These Back-to-school Tips
Summer vacation flies by so quickly! We start preparing for the new school year ... -
Multiple Factors Contribute to Development of FVIII Inhibitors in Hemophilia, Review Finds
Several genetic and environmental factors can play a role in the development of inhibitors ... -
Employment Status, Pain, Low Physical Activity Linked to Anxiety, Depression in Hemophilia Patients
A study that examined the role of emotional distress in the lives of hemophilia ... -
Life Can Change In an Instant
In an instant, things can change and redefine who we are. One minute life ... -
What Is a 504 Plan and Why Do I Need It?
Special education. Those two words strike fear into the hearts of many parents. “But ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more