For more than nine years, I’ve shared my experiences raising two sons with hemophilia through hundreds of columns, articles, and videos. Sept. 30 will be my last column, and these last few pieces capture what matters most to me. I’m excited for what comes next in my writing journey.
Discussion
A branch of the European Medicines Agency (EMA) has recommended that the experimental therapy denecimig be approved to treat adults and children with hemophilia A, with or without inhibitors. The recommendation from the EMA’s Committee for Medicinal Products for Human Use (CHMP) will be reviewed by the European…
Discussion
Here is something many people do not know about me: I spent a year studying industrial pharmacy. I don’t always think to mention it. After all, I never earned the degree. I had attended a science high school, so pursuing a science degree at university felt like the natural next…
Discussion
When I was diagnosed with hemophilia decades ago, I was 10 years old, and nobody asked me what I wanted. That isn’t a complaint about my doctors. There was nothing to ask. There was hemophilia B and von Willebrand disease, and one way to treat them. You…
Discussion
Heavy periods in teenage girls should prompt further evaluation for an underlying bleeding disorder, such as hemophilia, rather than simply being considered a normal part of adolescence, according to a call to action from an international group of experts. Heavy menstrual bleeding, or HMB, can sometimes be the first — or…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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