Raising a Successful Family Amid Hemophilia
At 28 weeks pregnant, it seems I have entered my “nesting” phase. Two days ago, my husband Jared and I chanced upon a good ... Read more
Updates
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Patient Enrollment Ongoing in Phase 3 Trial of AMT-061 for Hemophilia B, uniQure Says in Update
uniQure is continuing to enroll participants for its global Phase 3 trial (NCT03569891) testing the potential gene therapy AMT-061 in men with severe or moderately ... Read more -
Caring for Adult Children
“MacDonald the Older” and I drove down the road that leads to his college. We stopped at a local restaurant, had a good meal, ... Read more -
Bioverativ to Present New Data on Hemophilia and Other Blood Disorders at ASH
Bioverativ will present some of its most recent therapeutic advancements regarding hemophilia and other blood diseases at the 60th Annual Meeting of the American ... Read more -
There’s No Need to Fear a Little Blood
As I write this, it’s Nov. 1 and we’re observing All Saints’ Day. On this day, I remember my mom, who passed away last ... Read more
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A Visit to the Dentist Reminds Me of How Far We’ve Come
Recently, I took my son to the dentist to have a couple of cavities ... -
Ixinity Soon To Be Available in Larger Vial and Trial Likely in Younger Children with Hemophilia B, Aptevo Says
Aptevo Therapeutics provided an update on Ixinity, its hemophilia B therapy, that includes developing a ... -
Managing My Husband’s Hemophilia and Child-rearing Are Both Processes
“Write about the first time you witnessed me with a bleed,” offered my husband ... -
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
With the U.S. midterm elections now less than two weeks away, patient advocacy groups ... -
Bayer’s rFVIII Replacement Therapy Jivi Approved in Canada for Hemophilia A Patients 12 and Older
Hemophilia A patients age 12 and older who live in Canada now may receive ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more