For most of my life, “tired” was the only word I had, and it was never enough. I’d say it to doctors the way you’d mention the weather — a fact so ordinary it wasn’t worth writing down. And mostly, it wasn’t. Tired was normal. Heavy periods were normal. Being…

The Haemophilia Joint Health Score (HJHS), a standard tool used to assess joint health in people with bleeding disorders, including hemophilia, may underestimate joint damage, or haemarthropathy, in women and girls, a study suggests. That’s because the HJHS assesses joint mobility by comparing a person’s joint range of motion…

My sons, Julian and Caeleb, were both diagnosed with hemophilia as babies. Although they’re 10 years apart, each diagnosis was overwhelming and affected my wife, Cazandra, and me differently. I remember feeling helpless, not knowing anyone who had the slightest idea how to manage a bleeding disorder. For the…

I grew up in a mostly white suburb of Houston. My dad, who was of Mexican descent and had dark skin, spoke English as his second language. He worked hard, went to school, and earned both his bachelor’s and master’s degrees in education from the University of Texas. He became…