When I was in the fifth grade, I’d look in the mirror every morning and hate who I saw. I believed I was ugly, unpopular, and weird, and the hand-me-down clothes I wore made me look different. I’d say horrible things to myself, like, “You really are a dog.” I…
Discussion
People with hemophilia still experience significant unmet health needs despite receiving preventive treatment, according to an international study. “Despite current treatment, many [people with hemophilia] continue to experience limitations to their daily activities, productivity, and physical independence,” researchers wrote. Specific problems that emerged in the survey included breakthrough…
Discussion
Lately, I’ve been seeing a trend on social media where people ask artificial intelligence (AI) tools to write them a letter. Usually, the prompts are deeply personal. People ask for letters from their future selves, their inner child, or versions of themselves they feel disconnected from after grief, burnout, heartbreak,…
Discussion
There are events I know I should attend but talk myself out of. The Bleeding Disorders Foundation of Florida’s special Ladies Tea Luncheon has often been one of them. It’s not because it isn’t worthwhile — it absolutely is — but because getting to Tampa from where I live…
Discussion
Hemlibra (emicizumab) alongside immunosuppressive therapy appears safe for use in acquired hemophilia A (AHA), according to initial results of a real-world study in Japan, the only country where Hemlibra has approval for this indication. “At this interim analysis, there were no unexpected safety concerns for … patients with…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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