We Struggle and We Move On
Both of my sons packed and all three of us MacDonald guys were ready for what my youngest calls a “Daddy and Son Mad-capped ... Read more
Updates
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Frogs, Snails, and a New Chapter
We are in a new town. A fresh start. My mighty warrior already loves the landscape that allows him to catch frogs and snails ... Read more -
Pfizer Launches Phase 3 Program to Test Gene Therapy for Treating Hemophilia B
Pfizer has partnered with Spark Therapeutics to launch a Phase 3 program to evaluate the safety and effectiveness of its factor IX replacement gene therapy ... Read more -
XaTek Raises $9M to Advance ClotChip, Portable Device That Quickly Analyzes Blood’s Ability to Clot
XaTek announced that it has raised $9.1 million to advance the development of ClotChip — a portable test designed to rapidly analyze, using a single ... Read more -
Companies Collaborating to Conduct Musical Workshop for Teens Affected by Bleeding Disorders
BioMarin Pharmaceutical Inc. is partnering with digital content agency Believe Limited to produce a three-day musical workshop for young members of the bleeding disorders community. The ... Read more
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My Sons’ Courage with Hemophilia Help Me Face Diabetes Injections
I have diabetes and give myself insulin shots every evening. There is not much ... -
I’m Learning to Accept My Normal
My condition, hemophilia, has always been an enigma for me. It’s been a huge ... -
My House Move Sparked Memories of Previous Bleeds
My family just moved. My husband’s job has led us on another adventure. With ... -
Experts Define Recommendations for Best Surgery Management Practices in Hemophilia Patients
A panel of multidisciplinary experts have developed recommendations for applying best practice guidelines in ... -
Starting My Journey to Motherhood as a #HemoGirlfriend
My partner Jared and I are confined to our bed. He got a small ... -
Despite Protective Effects, Cardiovascular Disease Still a Risk in Moderate to Severe Hemophilia Patients, Study Finds
Although moderate to severe hemophilia patients are generally protected against the development of cardiovascular ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more