Long before our sons could advocate for themselves, my wife, Cazandra, and I spoke on their behalf. At the beginning of every school year, we met with the principal, school nurse, social worker, faculty, and other staff members who would work with them. We explained concerns related to their…
Discussion
Inno8, a potential oral treatment to prevent bleeds in people with hemophilia A, appears more potent and long-lasting than currently available injectable treatments in preclinical laboratory and animal studies, a study suggested. The candidate therapy, being developed by Novo Nordisk, is undergoing clinical testing and has completed…
Discussion
“Mom, I want to visit somewhere famous!” “Sweetie,” I replied to my youngest child, “We live in one of the most famous cities in the world.” Exasperated, she chirped back, “But it doesn’t feel famous.” A few months later, our family took a cruise. We started in Genoa, Italy, sailed…
Discussion
Some medical offices won’t schedule me for a procedure without clearance from my hematologist. Others never even ask. I’m the same patient with the same blood, yet I get completely different answers to the same question: Does my bleeding disorder matter? For my colonoscopy earlier this year, the answer…
Discussion
More people are being identified with hemophilia B across the eastern Mediterranean region, suggesting improvements in hemophilia diagnosis and reporting, according to a study analyzing 10 years of data from 14 countries in North Africa, the Middle East, and parts of Asia. Yet…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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