Before I ever met my husband, Jared, he had learned to adapt well to having severe hemophilia B and seizures. But one moment from his childhood still finds its way back to him. On the first day of fifth grade, his teacher told the class there would be a…
Discussion
I just returned from the Hemophilia Federation of America (HFA) Symposium in New Orleans, and like many gatherings in the bleeding disorders community, it left me inspired, reflective, and deeply grateful. This was my first HFA Symposium, and I’m truly grateful to the organization for including me. There’s something…
Discussion
Roctavian (valoctocogene roxaparvovec-rvox) was associated with fewer bleeding episodes and less need for preventive treatment, or prophylaxis, in most adult men with severe hemophilia A for up to seven years after a single infusion, according to final results from a completed clinical trial. The Phase 1/2 clinical…
Discussion
Last Friday, my wife, Cazandra, and I drove to Albuquerque from our home in Las Cruces, New Mexico, for doctor visits and other personal business. One of the best parts of the trip was taking our youngest son, Caeleb, to lunch. I know he’s 20, but sometimes I have to…
Discussion
Watching gymnasts Nadia Comaneci and Olga Korbut in the 1976 Olympic Games inspired me to do front rolls in my backyard. I knew back flips and aerial twirls weren’t in my reach, so I set my sights on mastering the cartwheel. But it was never to…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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