Help Me Help You: A Carer’s Perspective
Last week, just after our wedding, Jared got a shoulder bleed. Jared has severe hemophilia B, but he does not get bleeds often. ... Read more
Updates
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Hemlibra Approved in Canada to Treat Hemophilia A Patients with Factor VIII Inhibitors
Health Canada has approved Hemlibra (emicizumab) as a treatment to prevent or reduce bleeding in Hemophilia A patients in Canada who have factor ... Read more -
Our Family’s Second Hemophilia Diagnosis Was Harder than the First
My eldest son was about to celebrate his ninth birthday. He had attended a fantastic performing arts camp. My wife and I bought ... Read more -
Thinking About Finances and Fatherhood
The topic of fatherhood is often an awkward one to talk about with other men. To an extent, I have that same sort of ... Read more -
You Can Advocate for Your Child with These Back-to-school Tips
Summer vacation flies by so quickly! We start preparing for the new school year by shopping for new clothes, school supplies, and shoes. However, ... Read more
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Multiple Factors Contribute to Development of FVIII Inhibitors in Hemophilia, Review Finds
Several genetic and environmental factors can play a role in the development of inhibitors ... -
Employment Status, Pain, Low Physical Activity Linked to Anxiety, Depression in Hemophilia Patients
A study that examined the role of emotional distress in the lives of hemophilia ... -
Life Can Change In an Instant
In an instant, things can change and redefine who we are. One minute life ... -
What Is a 504 Plan and Why Do I Need It?
Special education. Those two words strike fear into the hearts of many parents. “But ... -
Hemophilia Federation of America Gathering Memorabilia to Mark 25 Years of Service
The Hemophilia Federation of America (HFA) is seeking a variety of historical artifacts and records ... -
Entering Married Life with a Husband Who Has Hemophilia
In a week’s time, I’ll be a 20-something married woman. I’ll be transitioning from ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more