Updates
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Proper Nutrition Lacking in Children with Hemophilia in Iraqi Province, Study Says
Proper nutrition is lacking in almost half of children with hemophilia in Iraq, with a significant portion of these children underweight compared to peers and a ... Read more -
Here’s a Thumbs-up to Taking Back Control
You don’t have to look far to find people who are afraid of needles. There is something to be said about sharp, pointy things ... Read more -
Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 ... Read more -
Sharing Stories Comes with Responsibility
I attended the Hope for Hemophilia conference last weekend and met some wonderful people. I delivered a keynote address and shared my story of ... Read more -
Modified Clotting Factor X Slowed Bleeding in Mouse Model of Hemophilia A, Study Reports
A modified version of the coagulation protein factor X was able to significantly reduce bleeding in a mouse model of hemophilia A, and ... Read more
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Your Joint Health Is Important Sponsored Post
Submitted by Takeda Every joint bleed matters 70% to 80% of all bleeds in ... -
I’m Bleeding, Believe Me
I recently attended a national conference for women with hemophilia. Common themes emerged as ... -
Adulting Is Hard, Especially with Chronic Illness
Many in my millennial generation dread adulting. The idea of surviving in the real ... -
Updated Alta Trial Results Support Advancement of SB-525 Gene Therapy for Hemophilia A
Updated results from the Alta trial show that a single infusion with the highest ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more