World Hemophilia Day, an annual effort to raise awareness of hemophilia and other bleeding disorders, is on April 17, and this year, the focus is on the importance of a prompt, accurate diagnosis as a key step toward achieving good health for people…
Discussion
The pool was loud in the way summer pools usually are — whistles, splashes, kids calling out to each other, coaches raising their voices above the noise, parents chatting on the sidelines. Our 7-year-old daughter stood at the edge, waiting for her instructor to guide her into the Olympic-sized pool.
Discussion
Most people probably don’t think twice about getting dressed. For me, it’s never just about what looks good. It’s about what feels right. Every morning, a quiet calculation happens before I even leave my closet. What am I doing today? How far will I be walking? Will I be sitting…
Discussion
Preventive treatment with Hemlibra (emicizumab) is associated with better bleeding control and lower medication costs compared with immune tolerance induction, or ITI, among children with severe hemophilia A with inhibitors, a new study in China found. The researchers noted that use of the injection therapy Hemlibra also led…
Discussion
Thirteen years ago, when my youngest son, Caeleb, was 7, he suffered a horrible spontaneous internal bleeding episode in his right knee, a complication of hemophilia. His right knee and ankle were target joints, meaning they were susceptible to frequent bleeding. This proved to be one of…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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