G Shellye Horowitz, an artist and advocate who writes the column The Forgotten Factor for Hemophilia News Today, has been selected as a winner of the RARE Foundation‘s 2026 RARE Artist program. “I’m thrilled to use art to advocate for hemophilia and superior mesenteric artery syndrome,” Horowitz…
Discussion
Every Thanksgiving, my family gathers around a table crowded with turkey, stuffing, and more pie than anyone needs. We talk about football, the weather, and who drove the farthest. We almost never talk about health. That’s a missed opportunity. Since 2004, the U.S. surgeon general has recognized Thanksgiving as…
Discussion
Once-weekly preventive treatment with Altuviiio (efanesoctocog alfa) safely reduced bleeding rates while maintaining protective clotting factor levels without triggering neutralizing antibodies in pediatric patients with hemophilia A. That’s according to a real-world study that reviewed data from 22 boys at the University…
Discussion
As we honor National Family Caregivers Month this November, I think back to what my wife, Cazandra, and I were told when our 20-year-old son, Caeleb, was born. Our oldest son, Julian, had been diagnosed with hemophilia 10 years earlier, and a friend in the bleeding disorders community who…
Discussion
People have often known me by a role. The former gifted child (now neurodivergent adult). The wife. The mother. The HemoWife. Each one belongs to my story. Some have brought me work I care deeply about. Writing about life with my husband’s hemophilia has given me a…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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