My oldest son, Julian, is a working actor in a touring production. For this show, he is trained to perform both male lead roles. Over the last six months, he performed one role, and he recently began the other role in a new city. Even though he knows the script…
Discussion
Long-term treatment with Hemlibra (emicizumab) provided sustained protection against bleeding for up to five years in people with hemophilia A, with no new safety concerns identified, according to a large real-world study from Canada. The study, which analyzed data from 710 people with hemophilia A, found that more…
Discussion
There’s a moment I’ve heard described so many times that it feels like a shared memory. A woman finally learns the name of the bleeding disorder she’s carried for so many years without answers. Perhaps it’s von Willebrand disease (VWD), or maybe it’s hemophilia. Then, the doctor’s appointment…
Discussion
Recognizing acquired hemophilia A (AHA) early and ordering simple blood clotting tests in older patients with unexplained bruising or anemia — a low number of red blood cells — may help shorten diagnostic delays, according to a Singapore study in which the median time to diagnosis was four days,…
Discussion
More than 30 years ago, my wife, Cazandra, and I began our work in the bleeding disorders community after our oldest son, Julian, was diagnosed with hemophilia. Since then, we have served on the boards of several chapters and presented workshops across the country. We love the work because…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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