There’s No Such Thing as a Silly Question
Rarely am I the first to raise my hand in a class or give my opinion before others have shared. I do not want ... Read more
Updates
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Patients Report Mostly High Satisfaction With US Hemophilia Treatment Centers
People living with bleeding disorders such as hemophilia and von Willebrand disease report consistently high levels of satisfaction with the care they receive at ... Read more -
UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front ... Read more -
My Husband and I Are Equal Partners
In our marriage, my husband, Jared, and I are equals. He may have chronic illnesses, which means there are certain adjustments he must make ... Read more
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Good Long-term Outcomes After Knee Replacement in Hemophilia Patients, Study Finds
Most people with hemophilia who undergo knee replacement surgery have favorable outcomes, including less ... -
What Are You Thankful For?
I love the months of October and November. Leaves change colors, and the air ... -
A Life-changing Second Opinion
I am a fierce advocate for my sons. I question doctors professionally. I say ... -
Telehealth Favored by Hemophilia Patients at Dublin Center, Survey Finds
The widespread adoption of telehealth during the COVID-19 pandemic has improved access to specialty ... -
Lessons in Self-care: I’m Keeping My Best Roses for Myself
This year, my flower garden has grown exponentially. A wonderful gift that “bloomed” from ... -
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that binds ... Read more