My husband, Jared, first set foot in a gym just months into our relationship. It wasn’t some grand fitness decision — just curiosity. What would it feel like to work out? That question led us to a small, hole-in-the-wall bakal gym near his university — a Filipino term…
Discussion
I recently wrote a paper that compared how different religious traditions address bleeding disorders, starting with where they are mentioned in sacred texts. The study of theology is one of my many interests. As someone who identifies as a polysectarian (I’m connected to two religions, both of which often demand…
Discussion
“I don’t see blood, so you must not be bleeding.” For people with bleeding disorders, that kind of thinking isn’t just frustrating; it can be dangerous. Bleeding isn’t always visible or dramatic. It doesn’t always look like blood pouring from a wound or a bruise that appears immediately. For…
Discussion
Many women carrying hemophilia-related mutations are not receiving the medical attention they need, according to a large-scale multinational study. Despite being treated in established healthcare systems, these women, often referred to as hemophilia carriers, frequently remain undiagnosed and excluded from official patient registries. Researchers found that a lack…
Discussion
One thing that moves me is watching my sons find pockets of time when their bleeding disorder doesn’t take center stage in their lives. During these periods of freedom, time seems to suspend itself for a moment, and Julian and Caeleb are able to live their best lives without worrying…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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