Growing up in Houston, I remember the now-defunct amusement park AstroWorld being a significant part of summer for many people. Its star attraction was the Texas Cyclone, a nearly 100-foot-tall wooden roller coaster whose steep drops and quick turns could make your stomach do somersaults. If…
Discussion
Switching clotting factor products did not cause new inhibitors (neutralizing antibodies that can prevent the treatment from working) to develop in previously treated patients with moderate or severe hemophilia A or B who had no detectable inhibitors at the time of switching. That’s according to data from ATHN…
Discussion
Due to my husband Jared’s severe hemophilia B, we keep a small, personal supply of factor replacement therapy in our refrigerator that typically is enough to cover one bleeding emergency. This isn’t a small detail for families like ours who live in the Philippines, where access to factor products…
Discussion
My Peloton bike doesn’t go anywhere. That’s the whole point. It sits in my bedroom, stationary, pedals turning against resistance I set myself, wheels spinning in place while the rest of the world stays exactly where it is. No cross-country route, no open road, no wind at my back. Just…
Discussion
Children with hemophilia who underwent surgery to remove the tonsils or adenoids experienced almost no bleeding complications when surgeons followed a structured bleeding management plan, according to a 14-year single medical center review. Of 18 pediatric hemophilia patients who underwent the surgery, one child had a minor bleeding episode,…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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