In recent years, there has been a massive shift in the understanding that female hemophilia carriers can indeed have the condition themselves. Fellow Hemophilia News Today columnist Jennifer Lynne and I both write regularly about the struggles women with hemophilia face, though more are now being properly diagnosed…

With a new label expansion cleared by the U.S. Food and Drug Administration (FDA), Hympavzi (marstacimab-hncq) is now approved for preventing or reducing the frequency of bleeds in all people with hemophilia A or hemophilia B, ages 6 and older, regardless of inhibitor status. The injectable therapy…

If you’re raising a child with hemophilia, I understand the fear. It starts early — before sports, sleepovers, and field trips, and often before they’re old enough to understand their diagnosis. You learn about joint bleeds, head injuries, emergency room visits, and all the things that can go wrong.

It happened three times in 48 hours. I didn’t go looking for them — the conversations found me. Three different people from our bleeding disorders community, none knowing about the others, told me a similar version of the same story. They had tried to talk to their mothers about bleeding…