My son Caeleb faced some of the most challenging periods of his life at the same time the hemophilia treatment center (HTC) we used was looking for a replacement hematologist who specialized in bleeding disorders. He was 8 and had begun having target joint bleeds, and a high-titer…
Discussion
Somewhere along my journey as a “HemoWife,” I realized that being a good care partner and looking like one were two different jobs. One mattered to my marriage. The other seemed to exist largely for the benefit of an imaginary audience. We have a familiar image…
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Note: This story was updated Nov. 12, 2026, to clarify that the art, IV Couture, was created with unused supplies; used needles are a biohazard. G Shellye Horowitz, an artist and advocate who writes the column The Forgotten Factor for Hemophilia News Today, has been selected as a winner…
Discussion
Every Thanksgiving, my family gathers around a table crowded with turkey, stuffing, and more pie than anyone needs. We talk about football, the weather, and who drove the farthest. We almost never talk about health. That’s a missed opportunity. Since 2004, the U.S. surgeon general has recognized Thanksgiving as…
Discussion
Once-weekly preventive treatment with Altuviiio (efanesoctocog alfa) safely reduced bleeding rates while maintaining protective clotting factor levels without triggering neutralizing antibodies in pediatric patients with hemophilia A. That’s according to a real-world study that reviewed data from 22 boys at the University…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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