Acquired hemophilia can leave patients and their families feeling fearful and out of control. Clear information, ongoing medical follow-up, and good support systems are important for helping them regain confidence and a sense of normalcy, according to a study from Sweden based on interviews with patients and their family…
Discussion
If I could go back in time, I would learn to control my anger sooner. I didn’t say unkind things or become physical, but my voice did get loud enough to frighten my children. After I regained my senses, I would punish myself for the panic I saw in…
Discussion
I went on a date with my husband, Joe, when I was a 19-year-old college freshman. Thirty-eight years later, we’re still together. Like most couples, we had our share of challenges early on, but we made it through. Building a life together at a young age isn’t easy, but…
Discussion
Routine preventive, or prophylactic, treatment reduces bleeding rates in children with severe hemophilia A, regardless of whether prophylaxis is started before or after significant joint bleeds occur, a small Brazilian study found. Data showed that children in the South American nation who started preventive therapy earlier had fewer joint…
Discussion
Recently, my husband, Jared, and I asked our 7-year-old daughter what she knew about being a hemophilia carrier. It wasn’t a serious family meeting. There was no carefully prepared speech. She was stimming and half-playing while we talked, and at times I wasn’t entirely sure how much of the…
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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