How I’ve Combined Being a New Bride with Volunteering
My husband Jared mentioned in his latest column that he works at a local organization called the Hemophilia Association of the Philippines for ... Read more
Updates
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Bypassing Agents Used for Hemophilia A May Also Benefit Children with Hemophilia B, Case Series Reports
Single or combination therapy with bypassing agents used for hemophilia A patients with inhibitors can be suitable treatment options for children with ... Read more -
‘Baby Is Sooo Big’
There is a children’s picture book called “How Big is Baby?” The response to the baby is, “Baby is sooo big!” It is a ... Read more -
I Work in a Hemophilia Organization to Serve My Fellow Hemophiliacs
It’s rewarding to be able to serve my fellow people with hemophilia. I have often mentioned the Hemophilia Association of the Philippines for ... Read more -
A Routine Ailment … Maybe One Day
There is a funny cartoon making the Facebook rounds. It shows two images, one for “normal parents” and the other for “medical field parents.” ... Read more
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FDA Approves Hemlibra to Treat Hemophilia A Without Factor VIII Inhibitors
The U.S. Food and Drug administration (FDA) has approved Genentech’s Hemlibra (emicizumab-kxwh) for routine prophylactic ... -
Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced ... -
When Safety Is a State of Mind and Not a Set of Circumstances
Today, I received a phone call from my dad. He wanted to talk to ... -
‘Dear Doctor’: The Letter We Wrote to Our Sons’ Medical Team
Dear Doctor, We are concerned about the plan regarding our son’s treatment … ... -
Chronic Illness and Depression Often Go Hand in Hand
I have suffered from clinical depression most of my life. Five weeks after my ... -
Baby Fever for HemoHubby and Me
Tomorrow is a long-awaited milestone in my pregnancy. I am scheduled to have an ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more