Weathering Our Storms As a Loving Family
Monsoon season has begun here in the Philippines. Every time I drive in downtown Manila, I’m reminded of a family trip last year to ... Read more
Updates
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FDA Clears CRYOcheck Lab Test of Factor VIII Activity in Hemophilia A
The U.S. Food and Drug Administration (FDA) has cleared for use CRYOcheck Chromogenic Factor VIII, Precision BioLogic‘s lab test to monitor factor VIII activity in the blood ... Read more -
Our Virtual Connectedness
As we continue to practice social distancing, I find it exceedingly difficult to stay connected to brothers and sisters in the hemophilia community. I ... Read more -
These Comments Make Me Uncomfortable as a Parent
When people find out my sons have hemophilia, their reactions often make me uncomfortable. “You are so brave, Cazandra,” one might say. “I don’t ... Read more -
Enzyre Secures €1.4M to Advance Portable Device to Monitor Coagulation
Novalis Biotechnology is supporting a €1.4 million ($1.64 million) investment in Enzyre to finalize the development of a handheld diagnostic device to monitor blood ... Read more
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When Hemophilia Isn’t the Worst Enemy
My husband, Jared, has had hemophilia since he was born. He has known no ... -
#ISTH2020 – Unmet Medical Need Found in Mild, Moderate Hemophilia A Care
Adults with mild and moderate hemophilia A have a substantial number of bleeds per ... -
#ISTH2020 – Gene Therapy BAY 2599023 Showing Steady FVIII Activity, Safety in Trial
A single dose of the investigational gene therapy BAY 2599023 safely promotes a sustained production ... -
Beyond Diagnosis, We Found Community
I am the first person to insist that a diagnosis does not define my ... -
#ISTH2020 – Eloctate Effective in Previously Untreated Hemophilia A Patients, Trial Shows
Treatment with Eloctate (efmoroctocog alfa) was well-tolerated and effective at preventing and treating bleeding ... -
Going Back to School With a 504 Plan on Standby
School is about to start — at least that’s the plan as of this ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that binds ... Read more