In a small study, children with hemophilia A had distinct changes in certain immune cells and inflammatory signaling molecules compared with healthy children, and the type of preventive treatment they receive may shape those immune responses in different ways, according to the researchers. In lab experiments, macrophages — immune…
Discussion
When I first started writing for Hemophilia News Today in 2018, I never imagined it would become part of my career. At the time, I was a young woman preparing for marriage and trying to make sense of life with hemophilia. I had stories to tell, lessons to…
Discussion
Nearly one-third of U.S. hemophilia treatment centers (HTCs) do not involve genetic counselors in patient care or refer patients for genetic counseling, despite widespread recognition among healthcare providers that these specialists offer valuable expertise, a U.S. survey found. Healthcare providers across treatment centers recognized the value of genetic counselors…
Discussion
My son Julian posted a picture on Facebook this week that took my breath away. I had to look at it twice to make sure it was really him. In the photo, he was sitting on large rocks on the shore, water swirling around his feet, his hands open as…
Discussion
I use Spotify to listen to my favorite podcasts, audiobooks, and music. Downloading what I like is simple, but there’s another fun part: the app makes playlists based on what you listen to. One recent playlist really surprised me. The playlist Spotify picked for me was called Oldies Mix.
Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your hemophilia journey.
There is no cure for hemophilia yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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