An Open Letter to My Husband’s Hemophilia
Dear hemophilia, Truth be told, I hate you sometimes. I especially hate you when you suddenly pop out of nowhere and find ways ... Read more
Updates
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New Analysis Confirms Hemlibra’s Sustained Efficacy in Controlling Bleeding in Some Children With Hemophilia A
A new analysis of the Phase 3 HAVEN 2 study’s results shows that Genentech’s Hemlibra (emicizumab-kxwh) prophylaxis (preventive treatment) leads to significant reductions in the number of ... Read more -
Adynovate Approved in Canada for Hemophilia A Patients Younger Than 12
Health Canada recently authorized Shire Pharma Canada‘s treatment Adynovate for hemophilia A patients younger than 12 based on results of a Phase 3 clinical ... Read more -
Merry Christmas, Now Let’s Infuse
Special days come up: holidays, birthdays, and vacations. We take time to relax and enjoy ourselves, but there is always something staring us in ... Read more -
Merry Christmas from Our HAPLOS Community
My local hemophilia organization just held its annual Christmas party. During these celebrations, we are reminded that we belong to a community that ... Read more
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Reaching Out and Inspiring Joy
I vividly remember attending my first bleeding disorder conference in 2008. It was overwhelming. ... -
For 25th Year, College Scholarship Run by NuFactor Will Honor Hemophilic’s Memory by Helping Others
NuFactor Specialty Pharmacy is seeking applicants for next year’s Eric Dostie Memorial College Scholarship, established ... -
The Truth About Running a Business as a Person with Disabilities
These past few days have been extremely busy for my husband Jared and me. ... -
Bayer Announces the Approval of Jivi for Hemophilia A in Europe
Jivi (BAY94-9027), a lab-made version of the blood clotting factor VIII (FVIII), has been ... -
I’ve Learned to Accept My Way of Handling a Crisis
My profession as a pastor allows me to celebrate with and be a source ... -
It’s Time for Inventory, and Perhaps Giving
At this time of the year, I like to clean. Not just dusting and ...
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Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A
News
Europe’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion supporting the approval of Hemlibra (emicizumab) for routine prophylaxis of bleeding episodes in hemophilia A patients with factor VIII inhibitors. Hemlibra is a humanized monoclonal antibody that ... Read more