News Sigilon, MIT Collaborating to Develop Programmable Cell Therapies for Hemophilia, Other Diseases

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Resolutions to Keep All Year Round

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald When Loss Leads to Strength

Columns, HemoGirlfriend - a Column by Alliah Czarielle Dear Person with Disability: Money Matters, but Not Always

News Researchers Recommend Changes to Protocol in Novoseven/Feiba Combo Therapy

News Hepatitis C Virus Is Major Predictor of Liver Cancer in Hemophilia, U.S. Inpatient Data Reveals

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald What Is in a Name?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Holding onto Hope During the Worst Hemophilia Challenges

News BIVV001 Increases Half-life of Factor VIII in People with Severe Hemophilia A, Phase 1/2a Trial Shows

Columns, HemoGirlfriend - a Column by Alliah Czarielle Keeping It Real and Staying Inspired

News Novoeight Safe, Effective in Hemophilia A Patients Over Long Term, Phase 3b Trial Shows

News First Hemophilia B Patient Treated with SB-FIX Gene Therapy in Phase 1/2 Trial

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Our Greatest Masterpieces

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald My Wishes for the New Year

News Catalyst Announces Updates on Two Lead Compounds for Hemophilia

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Hemophilia Patients Show Worse Oral Hygiene than Healthy Controls, Study Reports

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald When I Have Nothing Left to Give

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Finding Meaning in Chronic Illness

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Marriage and Chronic Illness: One of the Lucky Ones

News Preventive Use of Idelvion Lets Kids with Hemophilia B Need Fewer Infusions, Trial Shows

Columns, HemoGirlfriend - a Column by Alliah Czarielle Minimalism, Filipinos, and Disability

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Memory is Necessary to Move Forward

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald One-word Resolutions for the New Year

News Eloctate and Alprolix Show Long-Term Effectiveness for Hemophilia in Extension Studies

Columns, HemoGirlfriend - a Column by Alliah Czarielle An Open Letter to My Husband’s Hemophilia

News New Analysis Confirms Hemlibra’s Sustained Efficacy in Controlling Bleeding in Some Children With Hemophilia A

News Adynovate Approved in Canada for Hemophilia A Patients Younger Than 12

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Merry Christmas, Now Let’s Infuse

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Merry Christmas from Our HAPLOS Community

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Reaching Out and Inspiring Joy

News For 25th Year, College Scholarship Run by NuFactor Will Honor Hemophilic’s Memory by Helping Others

Columns, HemoGirlfriend - a Column by Alliah Czarielle The Truth About Running a Business as a Person with Disabilities

News Bayer Announces the Approval of Jivi for Hemophilia A in Europe

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald I’ve Learned to Accept My Way of Handling a Crisis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald It’s Time for Inventory, and Perhaps Giving

News Gene Therapies Advancing in Trials Offer Hope to Hemophiliacs, But Concerns Abound

News Potential Gene Therapy for Hemophilia A, AMT-180, May Treat Patients Regardless of Inhibitor Status, uniQure Says

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald This Thanksgiving, I’m Grateful for Family and Peace

News ‘Hemophilia: The Musical’ Lets Teens Confront Their Illness, and Educate Others, via Song

Columns, HemoGirlfriend - a Column by Alliah Czarielle My Husband and I Are Each Other’s Keepers

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Ways to Claim a Season of Joy During Difficult Circumstances

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Exercising with Hemophilia Has More Pros Than Cons

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald PTSD Will Not Define Us

Columns, HemoGirlfriend - a Column by Alliah Czarielle Raising a Successful Family Amid Hemophilia

News Patient Enrollment Ongoing in Phase 3 Trial of AMT-061 for Hemophilia B, uniQure Says in Update

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Caring for Adult Children

News Bioverativ to Present New Data on Hemophilia and Other Blood Disorders at ASH

Columns, HemoGirlfriend - a Column by Alliah Czarielle There’s No Need to Fear a Little Blood

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Visit to the Dentist Reminds Me of How Far We’ve Come

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Keep Your Hands and Feet to Yourself

News Ixinity Soon To Be Available in Larger Vial and Trial Likely in Younger Children with Hemophilia B, Aptevo Says

Columns, HemoGirlfriend - a Column by Alliah Czarielle Managing My Husband’s Hemophilia and Child-rearing Are Both Processes

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Bayer’s rFVIII Replacement Therapy Jivi Approved in Canada for Hemophilia A Patients 12 and Older

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Battling the Monsters Together

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo What I Want for My Future Child

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Stories and the Sacred: I Wouldn’t Change a Thing

News AVV-Gene Therapy Successfully Given Again to Dogs in Model of Hemophilia A

Columns, HemoGirlfriend - a Column by Alliah Czarielle Talking to Our Future Daughter About Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald A Not-So-Healthy Dose of Nerves

News Students Chosen for “Hemophilia: The Musical” Production Announced by BioMarin and Believe Limited

News Octapharma USA Sponsors Retreat for Women With Bleeding Disorders and Screens ‘Bombardier Blood’

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Invisibility Is Not the Easy Way

Columns, HemoGirlfriend - a Column by Alliah Czarielle How I’ve Combined Being a New Bride with Volunteering

News Rate of Total Joint Replacement Similar in Hemophilia A and B, Study Reports

News Bypassing Agents Used for Hemophilia A May Also Benefit Children with Hemophilia B, Case Series Reports

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald ‘Baby Is Sooo Big’

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo I Work in a Hemophilia Organization to Serve My Fellow Hemophiliacs

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald A Routine Ailment … Maybe One Day

News FDA Approves Hemlibra to Treat Hemophilia A Without Factor VIII Inhibitors

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

Columns, HemoGirlfriend - a Column by Alliah Czarielle When Safety Is a State of Mind and Not a Set of Circumstances

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald ‘Dear Doctor’: The Letter We Wrote to Our Sons’ Medical Team

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Chronic Illness and Depression Often Go Hand in Hand

Columns, HemoGirlfriend - a Column by Alliah Czarielle Baby Fever for HemoHubby and Me

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Giving Thanks for My Hero, My Mother

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Hemophilia, Epilepsy, and Independence: Time to Fly, Baby Bird

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Lessons Learned, the Hard Way

Columns, HemoGirlfriend - a Column by Alliah Czarielle On Entrepreneurship, Pregnancy, and a Husband’s Chronic Illnesses

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Look Ma, No Port!

News Call Out for Original Artwork by Hemophilia Patients To Be Part of NHF October Conference

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald How to Find and Give Hope in the Bleeding Disorder Community

News Bike Ride Honors Barry Haarde, Who Championed Fight Against Bleeding Disorders

Columns, HemoGirlfriend - a Column by Alliah Czarielle I Will Not Baby My Husband

News Octapharma USA, GutMonkey Sponsor Week-long Adventure Trip to San Juan Islands

News Liver Transplant Highly Benefits, But May Not Fully Cure, Hemophilia, Case Report Shows

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald What About Hemophilia?

News Hemophilia A Gene Therapy Candidate SB-525 Posts Good Early Trial Results

Columns, HemoGirlfriend - a Column by Alliah Czarielle Coping with Anxiety While Contemplating Motherhood

News Excess Weight, Obesity Affecting More Hemophilia Patients, Study Shows

News Idelvion for Hemophilia B Now Available in Large 3500 IU Vial Size, CSL Behring Announces

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Helpless, but Not Hopeless: Part 3

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo Where We Are Now in Hemophilia Care

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald I Still Worry About My Son with Hemophilia, but He’s an Adult Now

News Hemlibra Reduces Bleeds in Hemophilia A Patients Without Inhibitors, Phase 3 Trial Shows

News FDA Approves Bayer’s Jivi for Hemophilia A Patients 12 and Older

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald Helpless, but Not Hopeless: Part 2

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald Letting Go: The Transition Begins