Chris Bombardier may have been born with severe hemophilia B but he hasn’t let it stop him from setting his sights high — literally. MORE: Five tips for living healthily with hemophilia. Bombardier is currently at Camp 3 of Mount Everest. He’s getting ready to climb the summit of the world’s highest…
Service dogs are typically thought of as necessary companions for the visually impaired, but service and therapy dogs can be a practical solution for people with a variety of chronic illnesses. As well as being a trusted friend, service dogs can expand owners’ motor abilities, granting them new independence and allowing them…
Gentle exercise has many health benefits, particularly for anyone suffering from a chronic illness. In this video, personal trainer Ryan Krane demonstrates some simple exercises that can help counter the effects of chronic fatigue. MORE: Although there’s no cure for hemophilia, there are ways that to manage the disease…
The first recorded mention of hemophilia came in the second century when a collection of ancient Jewish writings noted that baby boys did not need to be circumcised if two of their older brothers had bled to death following the procedure. Later in the 10th century, an Arabian doctor described cases of…
Hemophilia is a rare blood disorder that primarily affects males, but females can be carriers of the disease. There are two different types of hemophilia carriers: possible carriers and obligate carriers. According to Steps For Living, the mutated genes associated with hemophilia lie on the X chromosome. If a woman…
A new online service allows patients with bleeding disorders like hemophilia to share important information about their treatment and bleeds with their healthcare team in real time. MORE: Five tips for living healthily with hemophilia. The HemaGo XChange portal was created by Novo Nordisk A/S as an update to their existing…
In this video from the Hemophilia Federation of America, Kyle McCullough and Jesse Mayhan share what it’s like living with severe hemophilia. The boys discuss their treatment and what they tell friends when they ask about their condition. They also talk about what they’d like to…
Hemophilia is a disease where a person blood lacks a factor which enables it to clot. This can lead to severe bleeding which can be life-threatening if left untreated. According to the World Federation of Hemophilia, there are three types of hemophilia: inherited, sporadic, and acquired. MORE: Five…
An experimental form of genome editing called clustered regularly interspaced short palindromic repeats or CRISPR/Cas9 could offer a faster and cheaper method of treating people with hemophilia, compared to the current DNA editing method. Because hemophilia is due to DNA mutations, the genome editing could be used to efficiently slice at the DNA,…
In this simple animated video from CSL Behring US, hemophilia is explained in easy-to-understand language aimed at children and caregivers of newly diagnosed hemophilia patients. MORE: Explaining hemophilia A and hemophilia B The narrator shares the basic difference between hemophilia A and hemophilia B, and that…
Get regular updates to your inbox.