Stories from the Road – a Column by Ann Kendall

December 20, 2019December 18, 2019

Moving from Darkness into Light

Columns, Stories from the Road - a Column by Ann Kendall

This month has brought a holiday rush of hemophilia news on potential new treatments, studies, and acquisitions — all of which serve to raise hope during this solstice season, as ... Read more

December 6, 2019December 4, 2019

Our Tiny Traveling Notebooks

Columns, Stories from the Road - a Column by Ann Kendall

We’re a family that has the good fortune of traveling often. It’s not always a grand journey — most trips are just a few miles from home. One constant ... Read more

November 22, 2019November 20, 2019

Clap After Every Pirouette

Columns, Stories from the Road - a Column by Ann Kendall

When my daughter was little, she had the most amazing dance teacher, Jenna. Jenna was a mom of boys who loved the rough and tumble, but her dance studio ... Read more

November 8, 2019November 6, 2019

Innovation Required: Taking Care on the Road

Columns, Stories from the Road - a Column by Ann Kendall

People with bleeding disorders face a variety of challenges. Healthcare access is a constant concern and covers myriad issues, including political and financial stability and regulatory and provider awareness. ... Read more

October 25, 2019October 23, 2019

‘Wash Your Face First’: Lessons in Self-care for Caregivers

Columns, Stories from the Road - a Column by Ann Kendall

For at least 30 minutes nearly every day, while buzzing along on our YMCA’s treadmill or bike, I’m captive to the machine’s built-in cable and Wi-Fi. Though we’ve gone ... Read more

September 27, 2019September 26, 2019

Provider Education and Outreach Are What Our Community Needs Now

Columns, Stories from the Road - a Column by Ann Kendall

Recently, I’ve been reading a lot of online content about hemophilia on forums dedicated to the disease and in articles. It could be because my Google Alerts and scholar searches ... Read more

September 13, 2019September 11, 2019

Hemophilia in Fiction: Where Is It?

Columns, Stories from the Road - a Column by Ann Kendall

Last week, I read Gill Paul’s latest novel, “The Lost Daughter.” The book is a historical fiction account of Russia’s Romanov family. It is well-known that the Romanovs and ... Read more

July 26, 2019July 25, 2019

Could Telehealth Create New Opportunities for Hemophilia Care?

Columns, Stories from the Road - a Column by Ann Kendall

I recently noticed that our healthcare providers offer virtual visits as part of our current insurance. I was fortunate last week to attend an event hosted by the Virginia ... Read more

July 12, 2019July 10, 2019

The Summer of Love Is Alive and Well

Columns, Stories from the Road - a Column by Ann Kendall

About this time every summer, my social media feeds begin to fill with lots of smiling faces from hemophilia camps across the country. Photos showing kids pursuing myriad activities ... Read more

June 21, 2019June 19, 2019

Teens Using the Gift of Gab for Action

Columns, Stories from the Road - a Column by Ann Kendall

I recently had the opportunity to spend the afternoon with a group of teens from our local bleeding disorders organization, HACA, which stands for Hemophilia Association of the Capital ... Read more

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