Stories from the Road – a Column by Ann Kendall

November 8, 2019November 6, 2019

Innovation Required: Taking Care on the Road

Columns, Stories from the Road - a Column by Ann Kendall

People with bleeding disorders face a variety of challenges. Healthcare access is a constant concern and covers myriad issues, including political and financial stability and regulatory and provider awareness. ... Read more

October 25, 2019October 23, 2019

‘Wash Your Face First’: Lessons in Self-care for Caregivers

Columns, Stories from the Road - a Column by Ann Kendall

For at least 30 minutes nearly every day, while buzzing along on our YMCA’s treadmill or bike, I’m captive to the machine’s built-in cable and Wi-Fi. Though we’ve gone ... Read more

September 27, 2019September 26, 2019

Provider Education and Outreach Are What Our Community Needs Now

Columns, Stories from the Road - a Column by Ann Kendall

Recently, I’ve been reading a lot of online content about hemophilia on forums dedicated to the disease and in articles. It could be because my Google Alerts and scholar searches ... Read more

September 13, 2019September 11, 2019

Hemophilia in Fiction: Where Is It?

Columns, Stories from the Road - a Column by Ann Kendall

Last week, I read Gill Paul’s latest novel, “The Lost Daughter.” The book is a historical fiction account of Russia’s Romanov family. It is well-known that the Romanovs and ... Read more

July 26, 2019July 25, 2019

Could Telehealth Create New Opportunities for Hemophilia Care?

Columns, Stories from the Road - a Column by Ann Kendall

I recently noticed that our healthcare providers offer virtual visits as part of our current insurance. I was fortunate last week to attend an event hosted by the Virginia ... Read more

July 12, 2019July 10, 2019

The Summer of Love Is Alive and Well

Columns, Stories from the Road - a Column by Ann Kendall

About this time every summer, my social media feeds begin to fill with lots of smiling faces from hemophilia camps across the country. Photos showing kids pursuing myriad activities ... Read more

June 21, 2019June 19, 2019

Teens Using the Gift of Gab for Action

Columns, Stories from the Road - a Column by Ann Kendall

I recently had the opportunity to spend the afternoon with a group of teens from our local bleeding disorders organization, HACA, which stands for Hemophilia Association of the Capital ... Read more

June 7, 2019June 5, 2019

When You Don’t Have to Be the First

Columns, Stories from the Road - a Column by Ann Kendall

The toughest part about moving to a new city or state is locating health providers that are covered (most likely) by a new insurance plan. It’s difficult for families ... Read more

May 24, 2019May 22, 2019

Posing a Challenge: The True Cost of Mental Healthcare

Columns, Stories from the Road - a Column by Ann Kendall

Many years ago, while working in the association management world, I had a director who challenged his managers (including me) to calculate the “true” cost of every program we ... Read more

May 10, 2019May 8, 2019

Writing Out Chronic Worry Doesn’t Have to Mean Writing About Worry

Columns, Stories from the Road - a Column by Ann Kendall

I once spent an entire summer reading Emily Dickinson’s work and analyzing it, from the literal meaning of her words to the historical context of her work and the ... Read more

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